Hello from Tulsa

[misslynette]

Hello ~ My husband Mike is a fairly new dialysis person. Just started about two months ago while in ICU with flash pulmonary edema. I came here trying to find out about traveling on dialysis. We were in the process of moving out of the country ~ container packed and ready to go ~ when he went into crisis.

So I'm hoping to find out more about that. He'd be here trying to find out more about it, but he's a committed technophobe and a hunt (and hunt and hunt and HUNT) and peck typist.

Mike's kidneys crashed because he had a @#$%@#$^ miserable #@%@#$^@ doctor who ignored what was going on for months and months, blocked every effort we made to get help elsewhere, and basically let his ego get in the way of providing good care for him.

Five ~ 5 ~ f.i.v.e. ~ that's the number of other doctors whose eyebrows raised, whose heads shook "nooooooo", and who said "Lasix really isn't a good medication for blood pressure."

I'm pretty angry but I try to control it. On a happier note, Mike's way better, is tolerating in-center hemo well, and we just had a meeting about PD, hoping that would let us at least visit our house on the beach in Yucatan.

Okay. Now I'm off to ask questions. Thanks for listening. I'll try to rein in the anger. It just flies out the tips of my fingers sometimes. Lynette (y Miguel)

[looneytunes]

Hi Lynette and welcome to IHD!  My spouse and I did quite a bit of traveling while on PD and a little since we started home hemo with NxStage.  Both are very portable dialysis systems. 

Glad to have you here and am looking forward to getting to know you.   

[peleroja]

Welcome to the group, Lynette y Miguel.  Have no fear of ranting.  We've all got pretty big shoulders.  Glad you found us!

[willowtreewren]

Hi, Lynette!

    to IHD!

Ask away, and there will surely be someone who can answer most questions. 

Aleta

[Poppylicious]

  Lynette! Lovely to 'meet' you!

 

[lmunchkin]

    Lynette.  My hubby did PD, then In-Center and now NxStage at home.  For traveling, I would say NxStage unless he is doing CAPD.  With CAPD he would just have to take bags and pole.  NxStage he would have to take portable machine and bags.  Both have necessary supplies needed to dialysis.  Sorry for the unpleasant surprise and all the idiot Doctors you have had to deal with.

Hubby needs you and this will require alot of commitment from you!  You are a caregiver now, as I.  This is an excellent site you have entered.  We welcome all things Dialysis!  And some other things too!

Hope you post often.
lmunchkin   

P.S. Is he eligible for a transplant?

[galvo]

G'day, Lynette, and  . 

[Rerun]

Hi Lynette, and welcome to IHD.  Listen, if you don't have anything nice to say about doctors.... sit by me.  They are very high paid idiots if you ask me. 

You may have to give your hubby some time to get use to dialysis before you ask him to move out of his new comfort zone.  It takes time to get this new life of relying on a machine to exist from week to week.

Hang in there and thanks for joining us.

Rerun, Moderator       

[misslynette]

thanks for the welcome, everybody. it means a lot to know we're not alone with this. and it FEELS so alone. i swear, the clinic's a good one, one of the better in town, and still it feels like fighting fog to get anyone to stand up and give us information, keep us informed about his progress, etc. It's just so half assed. I had to throw a screaming fit before we got someone to talk to us about diet before leaving the hospital. I was terrified of his K level, in particular.

Okay. Onward. We'll try to figure this out. I appreciate the welcome; looking forward to getting to know all y'all better over time.

[boswife]

So much information here and lots to share, so dont be afraid to ask...  And WELCOME!  your are NOT alone..     And.... being the cargiver/partner, i can tell ya i dont know what i would have done without this place as i was figiting for info too, and i came a lot more freely here than through the docs...

[Lindia]

Hi Lynette -   I'm in Wichita, and my hubby started dialysis in May.  His original kidney failure in 2001 was brought on by an idiot doctor and the drug metformin - which he should have NEVER  been given.  You are so lucky to have a good center, our center is "OK",  but- they have managed to infiltrate by hubby THREE TIMES.        I raised a ruckus - and said "If he is infiltrated ONE MORE TIME - we are changing centers"    since then, they've been more careful, and we've gone and gotten a sonogram to show them where his fistula is in his upper arm.    If only someone had sent us for the sonogram the first week, the infiltrations probably wouldn't have happened.  There is tons of information and help here - so welcome !

[Ang]

 



lasix is a med for fluid overload, downside is that it raises your creatinine level and not to be taken for more than a few days at a time