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Kenzie
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« on: June 09, 2011, 05:44:07 AM »

]I remember very clearly a couple of nights ago when I 1st come across the site name ‘I hate dialysis.com’, the first thing that came to my mind is “ahaa… this is another ‘opposition party website’ which will most probably be full of negativeness” and I really have to check it out just for the amusement as it will be interesting to once in a while read the politics of back-stabbing, screaming at conventional treatments etc… :stressed; :urcrazy; Not until I sign up last night and took some time off to read the posts carefully, only did I realize how my earlier assumption has been so wrong! To my astonishment, the marvelous people here are not the least after each others’ throats; either do they curse the ruling party of the day, or spitting at the government for not doing enough etc… These humble yet bighearted god send individuals I find in this website are actually helping one another by lending moral support, exchanging valuable information, a passionate shoulder to lean on and genuine attentive ears - especially to the newbies. Two thumbs up for you great guys!!! :angel; :clap; :2thumbsup; Tears gathered at the corner of my eyes even for a grownup man like me as I read some of the replies and posts - they are not only encouraging, some are even very motivating too… It’s really very unbelievable touching to apprehend that strangers will welcome a newbie with such genuine open arms through spontaneous, heartening and inspiring remarks

I am not on dialysis now either am I suffering from any malfunctions of my kidneys at this time but I would like to learn more about dialysis and its treatments as well as kidney transplants as one will never know what will happen tomorrow. I may seem to be enjoying generally good health now, but it doesn’t mean I will not be afflicted with kidney disorders or any other degenerative ailments forever. On the other hand, I want to keep people informed of the potential of one developing kidney failures amongst diabetics and those with hypertension should they not take seriously about their current health. I am sort of scared myself because I am a type 2 diabetic since my late teens. I find this website extremely educational too besides being uplifting and I will certainly invite many others to join this excellent site for enriching their knowledge, particularly those who are at risk of predialysis

I would like to thank and praise all the really nice and caring people here taking the effort and valuable time for all the sweet ‘hellos’ as you welcome newbies to the site even though you or perhaps your loved ones maybe agonizing from kidney failure too and yet you remain so ever strong and positively charged to brighten up someone’s day… And for the courageous dialysis patients, do stick around as you march down this road and I salute you for your guts to face the world with failing kidneys. Never for a second think that it’s the end of the world with failed kidneys, but look at the bright side of it, congratulate yourself that it’s a ‘blessing in disguise’ you have found this wonderful site which is filled with a bunch of so very loving, supportive and helpful community eagerly awaiting to fellowship with you anytime :thumbup; :yahoo;

Cheers & best regards
Kenzie





« Last Edit: June 09, 2011, 05:50:21 AM by Kenzie » Logged

http://kenziegg.blogspot.com. Bringing "Hope" to the hopeless...
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #1 on: June 09, 2011, 05:58:58 AM »

We are a pretty great bunch!  :grouphug;  I am a pretty new member myself, but I LOVE this site!!!

xo,
R

Hi Kenzie!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Kenzie
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« Reply #2 on: June 09, 2011, 06:23:40 AM »

Ohh..hh... rsudock, so next month will be your 1st anniversary on your first dialysis? I don’t know what to say? You are so young my dear, no wonder you are ‘missing your old life every single day’... I am as new as only 48 hours ago in this site. You know what rsudock? I not only love this site, seems like I am slowly getting addicted to it already hihi...
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http://kenziegg.blogspot.com. Bringing "Hope" to the hopeless...
Des
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« Reply #3 on: June 10, 2011, 01:14:54 AM »

Kenzie,

I am all the way from South Africa and I have to tell you that I have made TRUE friends on this site.

They have been with me through very bad times... and I wouldn't have made it without them.

I have received gifts (packages, cards) from all the way around the world from people I have never met....

We cry together, we laugh together, we rant together... It comes down to the fact that we are accepting of each other- no matter who you are.

We have lost a few of our members and I tell you that I cried for days on end.

I love IHD and I hate dialysis. :grouphug; 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Kenzie
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« Reply #4 on: June 10, 2011, 01:42:56 AM »

Hi Des, seems that all of us love “IHD” and hate it at the same time... Thanks for the trouble to write Des and I believe I am going to make quite a lot of true and good friends in here as well, including you. Yes, you are right; everybody here is so kind and compassionate that this community is just like a big family regardless of race and religion. I am sorry to know that you are on haemodialysis, I hope you are coping well with it and I can comprehend why you hate every second of it. May this be the beginning of a great friendship for both of us as I extend my best regards to you and your whole family too. Cheers and God bless abundantly
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http://kenziegg.blogspot.com. Bringing "Hope" to the hopeless...
billybags
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« Reply #5 on: June 29, 2011, 10:55:18 AM »

Kenzie, First of all Welcome to the site.  :welcomesign; What a lovely post you have written, I believe we all feel the same way. We are here to support each other, we are here to listen and advise, we give each other strength, we make each other laugh. I have made quite a few friends here and some times talking to people about this shitty disease gets us through the day. Please feel free to come to us with any questions, any thing you need to now about dialysis, there is always some one on here that will answer.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #6 on: June 29, 2011, 06:10:34 PM »

Welcome kenzie!  I too found this site to be very supportive and Knowledgeable! I have really learned alot from those on this site and have found that they really do KNOW their stuff not only in ther area of dialysis, but in alot of others!  If I want to know something, I ask here, and I get my answer!

Again, Welcome and we thank you for your HEARTFELT words!  We are all here for You!


lmunchkin     :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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