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nothingsacred
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« on: August 02, 2011, 02:40:59 PM »
hey, i'm Julie, 30, from Southeastern PA. I started home hemo training 3/8.

I'm so sick of dialysis, feel like I don't have the time for it, and just overall burned out... anyone have any thoughts?

Also, has anyone ever suffered from random bouts of lazy eye/dizziness when they haven't dialyzed for a couple days, or even in general?

Thanks!
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MooseMom
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« Reply #1 on: August 02, 2011, 03:15:51 PM »
Hi there!  Yeah, a lot of people on dialysis really resent the time it takes out of your life.  Have you given any thought to dialyzing during the night while you sleep?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Ang
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« Reply #2 on: August 02, 2011, 04:39:31 PM »
 :welcomesign;  julie



 lazy eye could be thing you've had since birth, i know mine was.

 dizziness is a result of dialysis
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live  life  to  the  full  and you won't  die  wondering
jbeany
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Cattitude
« Reply #3 on: August 02, 2011, 04:49:08 PM »
 :welcomesign;

If this is your first round with home hemo - you may find a big difference in your quality of life.  I did NxStage, and even with doing it more often (I did 5 days a week.) it still went from this horrible 3 day a week imposition/unmiss-able appointment to something that felt more like a household chore.  I was at home, doing it while my friends (and cat!) called or wandered in and out, with my hobby stuff close enough at hand to work on, and my music or tv as loud as I felt like. My schedule and my start time, no waiting for a chair.
Hope you like the switch as much as I did!

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Chris
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« Reply #4 on: August 02, 2011, 10:03:12 PM »
Hi Julie,
Lazy eye, no just bouts of laziness and thoughts, yes I have plenty of those and at tims to many! ;D
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Rerun
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Going through life tied to a chair!
« Reply #5 on: August 03, 2011, 05:31:02 PM »
Hi Julie, and welcome to IHD.  I'm so glad you found us.  Yes, it takes a huge amount of time.  You are not on 4 hours..... you have to set up, clean up, do maintenance...... and the land of AND.  I go incenter during the night.  My days are free.  And I still hate going.  It just isn't natural.  But even people who are normal hate to go PEE.  How many times do you hear people say that.  Oh, wait, I have to go pee!!

It is all relative.

Rerun, Moderator      :welcomesign;
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lmunchkin
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"There Is No Place Like Home!"
« Reply #6 on: August 03, 2011, 08:01:04 PM »
Welcome, Julie to IHD. Iam caregiver to my husband who has been D. since 2004.  He did PD for 5years, then In-Center for 1year, and at present doing NxStage at home. You hate dialysis, and so does everyone else! You would have to have your head examined if you said you loved it!  But it is doable, and can become more routine for those who suffer this disease!

Youv'e lost a huge part of your life do to this disease, but you can and will manage it over time!  It will get better for you!  You have lots of people with IHD that know what you are going through and can lead you in knowledge the easiest way to deal with it!  I love my IHD family, and am so greatful to have found them!

You hang with us here! Lots of really good people and full of encouragement!

God Bless     :flower;

lmunchkin     :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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