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Author Topic: Share: "Dear 16-year-old Me"  (Read 1872 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 20, 2011, 01:56:34 PM »

Share: "Dear 16-year-old Me" - Real people whose lives have been touched by melanoma. These are not actors. Skin cancer is a risk for transplant patients. Please pass it on.
http://www.youtube.com/watch?v=_4jgUcxMezM
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #1 on: May 20, 2011, 04:54:28 PM »

Thank you for sharing this!  I shared it on my facebook page.  Good video.  One we all need to see/hear!
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Rerun
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Going through life tied to a chair!

« Reply #2 on: May 20, 2011, 04:57:06 PM »

My good friend died March 10, of this year due to a mole on her foot that turned out to be melanoma.  Very sad.   :(
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natnnnat
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« Reply #3 on: June 10, 2011, 12:02:13 AM »

Yes, this is very important for kidney people as skin cancers may have their beginings long before they "flare up". 
I had a friend with a kidney tranplant who died of skin cancer on the eyelid.  It was a terrible, slow death. 
I keep a very watchful eye on Gregory's various skin abnormalities (moles etc).  He has had a patch cut off the side of his head above one ear, and I think the other side will go that way too at some point.  He visits a skin specialist every 6 months.

Be sun smart!
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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