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Author Topic: Newbie caregiver  (Read 2527 times)
freeman
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« on: September 04, 2011, 06:57:55 AM »
Hello everyone,I'm a care giver and I work with a charity organisation to help people in need.My greatest accomplishment in life would have occured two weeks ago after I decided to donate a kidney to a 15years old orphan,but it didn't happen because the doctors said she was not eligible due to other health issues.In my zeal to learn more about helping and caring for people with renal disease,I came across this site.I would like to thank the founder and moderators of this forum for their great work and I hope to learn a lot here to help further in my philosophy of life.elp further in my philosophy of life.
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Rerun
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« Reply #1 on: September 04, 2011, 09:47:10 AM »
Welcome Freeman.  This is the place to come to learn about dialysis and transplantation.  Please ask questions along your journey reading this site.

Rerun, Moderator         :welcomesign;
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alewis328
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« Reply #2 on: September 04, 2011, 11:42:57 AM »
Welcome!  I am also a caregiver to my boyfriend D. I became this due to his ESRD that he developed due to type 1 diabetes he has had since youth. This all started for me about a year ago.  This site has been by far the most imformative and supportive thing I have found. I find myself slightly addicted to it.  There is just always so much to learn! I hope you also find information and support here.
 :waving;
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Ash

Girlfriend and caregiver to an amazing man & dialysis patient
lmunchkin
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"There Is No Place Like Home!"
« Reply #3 on: September 04, 2011, 05:22:18 PM »
Welcome Freeman!!!  So glad you came to this site!  Now are you a caregiver to someone who has this disease or are you a care giver who works for a charitable organization?   Sorry, but I just didnt exactly understand that!  Im such a nerd that way!!

Anyrate, so glad to have you,

lmunchkin     :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
TINA HUBB
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« Reply #4 on: September 05, 2011, 06:29:42 AM »
Hi Freeman
I too was very happy to find this site when searching for info for my daughter.
 My daughter was 13 mths old when we attempted her first transplant, with my husband as her donor. This failed on the operating table due to vascular issues not known prior to surgery. She was in surgery for 16 hrs and left in critical care with many complications including a PRA level of 82%. This means she would reject most kidneys. To make a long story short, we put our story in every local newspaper and news station that would listen. We needed a live donor because Kiley reqired treatment just prior to surgery and with a cadaver, you just don't have enough notice. We had a news team in PA film Kiley on hemodialysis at her hospital and 14 people came foward to try to help. None of these people (ANGELS, AS I CALL THEM) were suitable for Kiley and so our wait continued for @ 5 yrs. She was transplanted last year and is doing well. We did find a living suitable donor!
My point is this, when I asked the hospital if these potential donors could possibly help one of the other children in Kiley's D clinic, I was told that they were not allowed to ask. These wonderful people would have to ask the hospital if they would help someone else or it would be soliciting. This was heartbreaking to me because I felt like these strangers were willing to help my child and they would probably want to help someone else's child too. The problem is that most people think that Kiley is alone in her battle. You don't hear much about children in renal failure.
I am currently being tested for a boy in Kiley's former D unit. I want to pay it foward for the wonderful gift we received.
Please understand where I am coming from when I say this next statement and know that I am not trying to influence you in any way but after watching children suffer on these machines and knowing that hospitals have to follow guidelines, I need to say this. There are so many other children and adults alike who are in your local comunity that could use an Angel. Would you ever consider donating to someone else? Again , this question comes from a loving heart and not trying to offend you. It is the exact opposite reason that I even bring this up. You do not find people every day who are willing to help others (especially when not related) in this situation and give the "gift of life" You are an amazing person and that is why I ask this question. You may already be thinking of this possibility and if so, please forgive my nosey question.
May God bless you every day for the work you do  and for your kindness. Please do not be upset with me but I just didn't want the same thing that happened to my daughter's potencial donors happen to you and to someone else's chance at a better life. Thank you for reading my post.
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Mother to 7yr old with VATER
Failed transplant at 13 mths of age
On dialysis for @ 5 yrs
Successful transplant at age 6
One of the happiest days of our life!
CebuShan
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« Reply #5 on: September 05, 2011, 09:49:59 AM »
    :welcomesign;  Freeman!  I'm still a bit of a Newbie myself but I agree with alewis328, this site is a bit addicting! You'll find tons of information and loads of friendly, helpful people willing to answer any question you might have.
Good Luck and again    :welcomesign;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
freeman
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« Reply #6 on: September 06, 2011, 10:30:37 AM »
Quote from: lmunchkin on September 04, 2011, 05:22:18 PM
Welcome Freeman!!!  So glad you came to this site!  Now are you a caregiver to someone who has this disease or are you a care giver who works for a charitable organization?   Sorry, but I just didnt exactly understand that!  Im such a nerd that way!!

Anyrate, so glad to have you,

lmunchkin     :kickstart;

Imunchkin,I'm a care giver to orphan on dialysis,and a charity worker which makes me both.
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lmunchkin
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« Reply #7 on: September 07, 2011, 11:02:09 PM »
Indeed You Are.  My goodness, you have your hands full, but I bet you wouldnt change a thing, right? It is so good to have caring people join this site.  IHD is full of them too, and you are very much welcomed here!

I look forward to your experiences and knowledge that you may have!  :thumbup;

lmunchkin    :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Ang
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« Reply #8 on: September 09, 2011, 12:53:55 AM »
 :welcomesign;


  :clap; :thumbup; :clap; :thumbup; to all caregivers
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live  life  to  the  full  and you won't  die  wondering
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