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Author Topic: Stop my Headaches!  (Read 3518 times)
amyloid man
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« on: May 31, 2011, 07:05:41 PM »

 :Kit n Stik;

I am getting a splitting headacbe just above my left eye after about 2 hrs of in center hemo.  It then lasts until around 6-8 hours at an 8/10 on the pain scale.  Then it is gone.
Has anyone had a problem like this-if so were you able to do anything to help?

I am starting to consider PD because of this.
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Des
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« Reply #1 on: June 01, 2011, 12:23:49 AM »

ME TOO!

I think it is when they remove too much fluid.

I have wondered myself about this.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
DomJDavis1985
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« Reply #2 on: June 01, 2011, 02:17:38 AM »

yes i have these....i have been on dialysis for about 4 months....the first two months were okay...but for the last two months i have had the same thing...splitting headaches, mainly above my left eye....that are really bad, cause me to vomit and last for at least 4 or 5 hours after treatment...where all i can do is lay in bed...and i agree with the above comment, they usually occur when they take off more than 3.3 kgs......and yes because of this...and wanting a better more flexible schedule...i am switching to PD soon....i say go for the PD!
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needlephobic
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« Reply #3 on: June 01, 2011, 09:16:25 AM »

I have had them too. epo and iron gives me real bad headaches. I talked to DR and since my Hemoglobin and iron are in the target range he has ordered no more epo or iron for me and no more headaches. Now if my Hemoglobin drops low he has ordered a iron shot to bring it back up so right now don't need it. Have not had epo or iron since late last year cause labs look good .  :yahoo; :yahoo;
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lmunchkin
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"There Is No Place Like Home!"

« Reply #4 on: June 01, 2011, 08:22:48 PM »

Hey Dom, how you doing girl?  Hadnt heard from you in a while.  Everything going ok with you?  Girl, I thought you'd be on PD by now!  Something must have come up to delay it.

Amyloid, probably too much fluid removal!  But absolutely, do PD or Home Hemo, you get better dialysis when you are in control of your own health. In-Center are set in their own ways and have to go by clinic's rules which sometimes seems like "Communism", Ha, ain't heard that used in years!  But seriously, doing it at home is so much better cause you can do what is suitable for your lifestyle.

Hope your headaches subside!

lmunchkin   :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
amyloid man
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« Reply #5 on: June 02, 2011, 02:38:56 PM »

 :banghead;

Thanks to all of you who replied.  I need the EPO because I am anemic-but I get headaches each session and I don't get EPO each session.
As far as for fluid removal, unless my dry weight is way off, they are not having to take off much fluid.  Some days they only have to take of 1kg
but I still get the headaches.

And now my new group ins. will not pay for the neph, that comes to our center.  I am going PD and switching centers if I can.
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lmunchkin
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« Reply #6 on: June 02, 2011, 04:56:46 PM »

Good for you!  Hope all goes well.  Make sure your new insurance will pay for home dialysis just to be sure.  Don't want any surprises here!  lol

lmunchkin    :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
jojosmommy
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« Reply #7 on: June 04, 2011, 06:31:01 AM »

I was also suffering from headaches on a regular basis on hemo for awhile.  My doctor was a little stumped about it, as he couldn't find a possible cause, and said it was common.  I just got in the habit of taking a few Tylenol just before I go into the center for treatment (by suggestion of my doctor).  It really makes a huge difference.   
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #8 on: June 04, 2011, 05:56:00 PM »

shut the UF a half hour before you get off the machine. that has helped my headaches. good luck!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
DomJDavis1985
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« Reply #9 on: June 04, 2011, 09:44:32 PM »

hello@lmunchkin...i am doing great...have been super busy with work, life, and Dialysis lol...yeah there is a hold up with the surgeon who is performing the stomach catheter operation....i really like this surgeon so i said i would prefer for him to perform the operation but if i don't hear from him soon i may have to go with someone else...but no worries, i am doing pretty good
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sullidog
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« Reply #10 on: June 05, 2011, 06:47:20 PM »

The only thing that has helped with my headaches is sodium modeling, talk to your neph about it.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Ang
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« Reply #11 on: June 05, 2011, 09:42:05 PM »

sounds like a fluid problem to me.

when i was on dialysis, if fluid gain was up there i requested lot of fluid off

first 2 hours , minimal fluid off last 3 hours.

usually worked pretty well
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M3Riddler
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« Reply #12 on: June 06, 2011, 07:51:41 AM »

:banghead;

Thanks to all of you who replied.  I need the EPO because I am anemic-but I get headaches each session and I don't get EPO each session.
As far as for fluid removal, unless my dry weight is way off, they are not having to take off much fluid.  Some days they only have to take of 1kg
but I still get the headaches.

And now my new group ins. will not pay for the neph, that comes to our center.  I am going PD and switching centers if I can.

Could be from running at a blood flow that is too high.  When BUN is removed too quickly, this can cause headaches. This is common with in-center dialysis.  For more info on this...lookup  Dialysis Disequilibrium Syndrome...DDS
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texasstyle
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« Reply #13 on: June 06, 2011, 08:16:51 AM »

I'm just wondering how is your blood pressure, before ro during dialysis. Frequent bad headaches area symptom of high blood pressure. That being said, dehydration can most definetly cause headaches and they're the really crappy kind.
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caregiver to husband using in-center dialysis 4 years
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