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Author Topic: Hi Everyone  (Read 1927 times)
Big Dan
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« on: June 04, 2011, 05:27:21 PM »
Hi Everyone. Been on this thing for 15 months now. IT STINKS! 30 year retired Letter Carrier and  6 year Captain of Security at our local hospital in Northwestern New Jersey. Married 36 years , 2 sons, and a bunch of grandkids.
Was very active but can hardly walk at this point. I am quite depressed but I hold most of it inside. When I arrive at the center for my treatment I am a bit loud and I joke and kid around with everyone. Patients, and staff alike. I am  looking
forward to venting my inner frustrations here.  :waving; BIG DAN
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #1 on: June 04, 2011, 05:50:56 PM »
 :welcomesign;

Welcome!!!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
lmunchkin
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"There Is No Place Like Home!"
« Reply #2 on: June 04, 2011, 07:11:18 PM »
Hey Dan! You have the rite site, I can assure you.  You have been through alot, and hopefully you can find some comfort from some who have been through what you been through! Again   :welcomesign;    Look forward to your posts!

lmunchkin     :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
MooseMom
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« Reply #3 on: June 04, 2011, 07:26:32 PM »
Of course you're depressed.  Dialysis is depressing.  Sure, it can save your life and give you extra years with your family, something for which we should be grateful, I suppose, but it is a terrible burden.  Hiding your feelings is all very noble, and I am guessing that your family is grateful that they are spared your depression (people don't generally like to hear about others' fears and illnesses), but it takes a LOT of energy to hide your feelings...energy that you don't always have.  And that's where this site and all of its wonderful members can really make a difference to you.  You don't have to hide anything here.  You can bare your soul, and no one will judge you or chastise you.

I am concerned that a previously active man now has difficulty walking.  Can you tell us more about the nature of your kidney failure?  Do you have other medical problems that make it hard for you to walk, or is the dialysis you are receiving not good enough to drag you back to some semblance of health?  Depression is endemic in kidney patients, particularly in those who are not being well-dialyzed.  Are you happy (well, maybe "satisfied" is a better word!) with the quality of your dialysis?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kellyt
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« Reply #4 on: June 04, 2011, 07:27:21 PM »
Welcome Big Dan!  I love your screen name.  As has already been stated, you have come to the right site.  Are you on "the list" and/or do you have any living donors set up?

Little story...when I first met my husband he was a police officer for one of our local hospital systems, University Hospital, in San Antonio.  I never realized how necessary security/police were at hospitals until I heard some of the crazy stories from him.  lol   That's s tough job.  :)  When he left the police force he started his own security company.  I hated it!  We are still in the security business, but we do camera monitoring for a few car lots in San Antonio overnight.  It pays our bills and allows me to work in my PJ's, but I still hate the security industry.  It's much harder than most would ever believe.

Welcome again!!   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Zach
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"Still crazy after all these years."
« Reply #5 on: June 04, 2011, 09:17:25 PM »
It's good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
galvo
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« Reply #6 on: June 04, 2011, 11:17:16 PM »
G'day, Big Dan, and  :welcomesign;.  :ausflag; I'm much like you. I'm the joker at the unit. I keep the misery for when I'm alone. This is a good spot to share your felings. You're among kindred spirits.
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Galvo
Rerun
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Going through life tied to a chair!
« Reply #7 on: June 05, 2011, 03:13:07 AM »
Hi Big Dan and welcome to IHD.  You have found the right site.  If you don't have anything nice to say.... sit by me!    :angel;

I'm looking forward to your posts. 

Rerun, Moderator     :welcomesign;
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willowtreewren
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My two beautifull granddaughters

WWW
« Reply #8 on: June 05, 2011, 05:27:21 AM »
Hi, Big Dan!

 :welcomesign;

Even though you are putting on a good face for your family, it isn't good for your over-all health to hide your feelings. This is a safe place to share, though.

Come often and make yourself at home!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Dannyboy
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« Reply #9 on: June 05, 2011, 06:12:15 AM »
Hello Big Dan.  From one newbie (me) to another newbie, Welcome.
Can never hae enough 'Dans', right?
--Dan
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ESRD Summer 2011
Started using NxStage September, 2011
"Everything is funny as long as it is happening to Somebody Else"--Will Rogers

Alcoa and Reynolds are in a bidding war to buy my serum Aluminum.
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