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Author Topic: When Enough Is Enough: The Nephrologist's Responsibility in Ordering Dialysis Tr  (Read 1377 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 24, 2011, 02:43:57 PM »

When Enough Is Enough: The Nephrologist's Responsibility in Ordering Dialysis Treatments
Michael J. Germain, MD, Sara N. Davison, MD, Alvin H. Moss, MD
Received 20 January 2011; accepted 18 March 2011. published online 23 May 2011.
Corrected Proof

Abstract
For more than 20 years, nephrologists have been reporting that they are increasingly being expected to dialyze patients whom they believe may receive little benefit from dialysis therapy. During this time, there has been substantial research about the outcomes of patients of differing ages and comorbid conditions requiring dialysis and the development of clinical practice guidelines for dialysis decision making based on research evidence, ethics, and the law. The importance of palliative medicine to the care of the patient throughout the continuum of kidney disease also has been recognized, and its application has been described. This article summarizes these advances and provides an approach for decision making and treatment for patients who are not likely to benefit from dialysis therapy.

http://www.ajkd.org/article/S0272-6386(11)00738-4/abstract#article-footnote-1
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Dannyboy
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« Reply #1 on: May 24, 2011, 03:45:20 PM »

I have only the "free" membership to that website....is the article worth joining the pay side?
---Dan
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ESRD Summer 2011
Started using NxStage September, 2011
"Everything is funny as long as it is happening to Somebody Else"--Will Rogers

Alcoa and Reynolds are in a bidding war to buy my serum Aluminum.
natnnnat
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« Reply #2 on: May 24, 2011, 07:31:28 PM »

I will have access to the article when it is published (it is still in preview mode prior to coming out in the next issue (vol 57 issue 6 I guess it will be in).
If you want I can email the full article to you then.  Send me your email via PM.
The article outline (of headers) is as follows:
Article Outline
Case presentation
Introduction
Ethical Principles Underlying Decisions to Forgo Dialysis
    Patient Preferences
    Physician Responsibilities
    Legal Aspects
Symptom Burden and Psychocognitive Considerations
Cultural and Ethnic Concerns
Withholding Dialysis Therapy
Withdrawing Dialysis Therapy
Time-limited Trial
Discussions With Patient and Family
Palliative/Supportive Care
Conclusions and Recommendations
Acknowledgements
References

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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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