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M3Riddler
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« on: January 04, 2010, 08:09:05 PM » |
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Update... The 2010 Freedom Cruise - Dialysis at Sea has started. The Freedom Cruise is a Western Caribbean Cruise on the Carnival Valor - January 4, 2010 through January 10, 2009 There is a group of 27 Dialyzors on Nxstage along with their Caregivers/Family who have set sail. This just shows that even those on dialysis can Travel, not on land, but by sea. For photos and videos of the cruise, visit: http://www.nxstageusers.com/2010cruiseWe will try to update photos as they come in to us strait from the Cruise. You can also visit http://www.billpeckham.com for another great souce of updates on the cruise. NxStage has given many the Independance they would not have otherwise. |
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____________________________________ Peritoneal - 13 years NxStage Since 4/06 3 Transplants Admin of Dialysis Discussion Uncensored on Facebook ___________________________________ |
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Jean
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« Reply #1 on: January 04, 2010, 11:52:00 PM » |
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Boy, that looks really great.
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One day at a time, thats all I can do.
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paris
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« Reply #2 on: January 05, 2010, 08:36:27 AM » |
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I've been following Bill Peckhams adventures on the cruise. He even shows how he stored all his supplies. Looks like a great time for all of them.
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Hanify
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« Reply #3 on: January 05, 2010, 05:19:31 PM » |
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So cool.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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okarol
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« Reply #4 on: January 05, 2010, 08:08:33 PM » |
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Rerun
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« Reply #5 on: January 05, 2010, 09:17:42 PM » |
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Did Anna go too?  |
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Meinuk
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« Reply #6 on: January 06, 2010, 06:16:25 PM » |
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No, I didn't go. But the pictures look great (Thanks Karol for the link!). I didn't know there were so many NxStage users going.
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« Last Edit: January 06, 2010, 07:04:58 PM by Meinuk »
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paris
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« Reply #7 on: January 06, 2010, 06:22:58 PM » |
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Hi Anna! I was looking for you in Bill's videos! How are you?  |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Meinuk
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« Reply #8 on: January 06, 2010, 06:36:25 PM » |
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Hi. I am great.
I'm headed to DC in March to lobby RE: PKD & Dialysis. It has been one heck of a ride. I've been pretty involved with the NKF, and that has been interesting to say the least. I am back to school next week, working on changing the world (at least my corner of it).
Other than that, I am taking my immunosuppressives, looking at my fistula every day when I get dressed and thanking a higher power that IHD exists (maybe not EVERY day).
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M3Riddler
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« Reply #9 on: February 16, 2010, 08:08:25 PM » |
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There were 11 or 12 NxStage Dialyzors that went with their parnters and family. Everyone had a great time and no problems. Bill did a great job blogging. There are pictures doing up weekly at www.nxstageusers.com/2010cruise if anyone is interested. NxStageUsers has already started planning for the next event that will be towards the end of the year. ///M3R |
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____________________________________ Peritoneal - 13 years NxStage Since 4/06 3 Transplants Admin of Dialysis Discussion Uncensored on Facebook ___________________________________ |
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tyefly
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« Reply #10 on: February 16, 2010, 08:27:11 PM » |
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where are we going next.........  |
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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M3Riddler
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« Reply #11 on: May 26, 2011, 04:00:08 AM » |
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where are we going next.........
NxStageUsers is taking home dialysis to sea.........AGAIN!!! Get Ready for the 2012 NxStageUSers Freedom Cruise in the Mexican Riviera in 2012. We are now accepting reservations and down payments on the cabins. Please visit the NxStageUserse Webpage for additional Detial.. For those who want to stay on land...We are also having our 2ND Annual NxStageUSers Meet-Up and Conference in New Orleans coming This October 2011... Both events are open to anyone and everyone. You do not have to be on NxStage to Attend..... Contact NxStageUssers for all details... ///M3Riddler |
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____________________________________ Peritoneal - 13 years NxStage Since 4/06 3 Transplants Admin of Dialysis Discussion Uncensored on Facebook ___________________________________ |
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vcarmody
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« Reply #12 on: June 01, 2011, 07:05:30 AM » |
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I wish this cruise was going out of NY, NJ or MD. I still have not been able to bring myself to fly and driving to CA. is out of the question. Would love to go on a cruise with other NxStage users. Maybe we can set a cruise up for the east coast in the future. I would be willing to work on setting one up if anyone is interested.
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Caregiver to husband Chris, NxStage 11-2009
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M3Riddler
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« Reply #13 on: June 01, 2011, 03:40:17 PM » |
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I wish this cruise was going out of NY, NJ or MD. I still have not been able to bring myself to fly and driving to CA. is out of the question. Would love to go on a cruise with other NxStage users. Maybe we can set a cruise up for the east coast in the future. I would be willing to work on setting one up if anyone is interested.
Hi vcarmody, Unfortunately, you missed the 2010 NxStageUsers Freedom Cruise. This cruise was out of Florida. We are having another event later in October in New Orleans. not a cruise, but there were be many on nxstage and prominent nephrologits and other docs and those on NxStage speaking. We are also planning other events to get together to hang out with others.. Here is a link to the 2011 Meet-Up and Conference in New Orleans..... |
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____________________________________ Peritoneal - 13 years NxStage Since 4/06 3 Transplants Admin of Dialysis Discussion Uncensored on Facebook ___________________________________ |
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