need a buddy who understands

[denise]

Anyone who's willing to chat who understands being tired of the same scene...a chair 3 times a week just to stay alive...please hit me up.I could use the company

[paris]

    I think you have found the right place to find friends who truly understand.   This site was created so everyone could speak freely and share their experiences.  There is a lot of information here. And the support is incredible.    We also have a chat room where people can set up times to meet and talk there.   Glad you found us and we look forward to getting to know you.   Welcome to IHD.




paris, Moderator

[Rerun]

Hey Denise, welcome to IHD.  I'm so glad you found us.  You can come here anytime to vent and talk to people who know what you are going through.

I hope you post often.

Rerun, Moderator        

[galvo]

G'day, Denise, and  . Tell us a bit about yourself.

[Hazmat35]

Join the club, Denise!  Dialysis SUCKS!!!!!

It's no fun in sunny Florida, when you have to look at it through the window in your chair 3x / week!!!!!! 

[RichardMEL]

Welcome Denise! You are totally in the right place. All of us who have been there (or are there) know exactly what you mean. This is the place to vent and share!!

Tell us more about yourself - where you are, what your experiences have been etc. Our community is very supportive and hopefully we can help you on your journey!

RichardMEL, Moderator

[sumalee]

Hi  you come to the right place. I am alone and feel the same I am happy to chat with everyone.

[Ang]

  Denise

                                    theres always someone around to chat to,we are all  at different  stages in this journey.

somebody will offer there experiences of what they've been through

come back often to say gidday, then we know your doing ok

[dialysisinsider]

MouseMom - In terms of dialysis companies doing what's in the best interest of doing what is best for the patient and what is best for the bottom line... there are many factors going on here, and yes, money has something to do with it.

The concern of another patient here that DaVita might shut down nocturnal once it completes acquisition of her facility is welll founded. Any of the dialysis companies would do this because it is a business of making money... yes I said it. The companies will not be legally doing anything wrong because they would still offer dialysis, just not nocturnal. The patient could go somewhere else (perhaps farther away at her own expense) to get nocturnal, and she could still be treated during the day - that is the mindset.

In terms of nocturnal home, I don't know the answer. But many, many of the dialysis decisions made at the dialysis providers are financially driven. Even the outcomes of a facility are, in my humble opinion, really pushed to be better so that one provider can say, "we are the best" in terms of outcome, some come dialysis with us. This is not all bad in reality since this drives for better outcomes, it just doesn't always work out in the favor of patients.

[karrye]

Welcome Denise!!  I sit in the lobby 4 to 5 hours a week, while Lee is having dialysis next door.  So, it isn't as bad as y'all having to watch your blood whirl around the machine or listening to all those blessed bleeping machines!!!  I go wild just listening from the lobby!! LOL  So, hang in there!

[Brightsky69]

Welcome Denise...

[Des]

 

[KrazeeBrod]

 

I, too, hate this whole process.  In fact, my doctor was worried about me back in Jan/Feb because I was terribly depressed and nearly suicidal about the whole thing.  But several things happened that helped bring me out of it.

First, I met a really nice gal who sat next to me in dialysis, who had been on dialysis for two years... and she was only 28!  She does her own sticking, knows the machine interface backward and forwards, and she was very nice about telling me what was going on and, better yet, what to expect.  That, I realized, was part of the problem... they don't give you enough information on what to expect, so things seem to come at you quick and hard.  Before you have time to absorb one issue, another is coming at you.  Do you find that happening to you?

If you do, then get aggressive about knowing exactly what to expect, what is going on, and asking questions about what the techs/doctors are doing to YOUR body!  I am not an aggressive person normally, kind of quiet and somewhat reserved, but I learned to get aggressive about knowing what was going on.  This is YOUR life and YOUR body.  Take possession of it, hon.

If you need someone to talk to on the phone, send me a private message and I will be happy to talk to you at any time of the day or night.