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Author Topic: FROM BONNIE SCOTLAND  (Read 2372 times)
gallagherrose
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« on: May 19, 2011, 06:47:50 AM »

HI my name`s Roseann,diagnosed with kidney failure in 1990, was very lucky got a transplant nine and a half weeks later it lasted 15 years have been back on dialysis for 5 years now things went along nicely for the fist three years but all hell broke loose at the beginning of last year when my fistula blew open lost 3 liters of blood on my bedroom floor before ambulance arrived if not for my brother i wouldn't be here to moan about things. had 16 admissions into Glasgow Royal infirmary  and iam on number four  this year they have been unable to great a new working fistula so far there will be the sixth attempt in the fowllowing month,  using a permcath at present  a bit peeved with it all at present depression has set in  nothing seams to help .
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Rerun
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Going through life tied to a chair!

« Reply #1 on: May 19, 2011, 07:32:31 AM »

Hi Roseann, and welcome to IHD.  I'm so glad you found us.  I'm part Scot and live in the USA.  Your story sounds a lot like mine.  Have they tried placing a fistula or graft in your upper leg?  That is what they say they will have to try next on me.  But, right now my fistula in my upper arm is behaving itself.

Hang in there.  Come here for support and vent if you wish.

Rerun, Moderator       :welcomesign;
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: May 19, 2011, 08:21:24 AM »

Oh, goodness, Roseann! What a frightening story! I am sorry you are having such a time with it, but this is a great place for support!

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
peleroja
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I have 16 hats, all the same style!

« Reply #3 on: May 19, 2011, 11:18:29 AM »

Welcome to the group, Roseann.  Sounds like you've been to hell and back a couple of times!  So glad you found us.
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #4 on: May 19, 2011, 09:07:32 PM »

Welcome! Thank goodness for your bro!! I know I love my bro! He is my partner in crime with this kidney disease thing!! (We both suffer with the same disease!!) Hang tough cookie!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Poppylicious
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« Reply #5 on: May 20, 2011, 10:12:02 AM »

 :welcomesign; Roseann.  Sounds like you've been through the mill.  Glad to have you with us.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
galvo
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« Reply #6 on: May 21, 2011, 12:30:20 AM »

G'day, Roseann, and :welcomesign;:ausflag;
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Galvo
aharris2
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« Reply #7 on: May 22, 2011, 09:11:29 AM »

Bloody hell, gallagherrose! That threat of death by exsanguination always lurks in the background, happily you and your brother fought it off.

16 admissions in (2 years?), 4 already this year! I have to say it's not a surprise that you are depressed. You need a break, a rest for your body and mind to heal. I know there's heavy pressure to have a fistula or graft, but if your permacath is working well with no infections, tell 'em all to "bugger off" and grab yourself a breather. I hope your 6th attempt goes well and puts an end to this string of hospitalizations.

Greetings Roseann and  :welcomesign; to the neighborhood. There's lots of good people and good information here (and some odd types who would try to welcome you by attempting to use your own slang, was it properly used?) I am looking forward to seeing your posts. 

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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
RichardMEL
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« Reply #8 on: May 22, 2011, 08:28:14 PM »

G'day Roseann, welcome to IHD!

I shuddered at the image of your burst fistula and all that blood!! yikes! I have never heard of that happening before. I am so glad you rbrother was able to save you and that you're still around to tell the tale!!! I'm just sorry you've had so many follow up problems in that dept. Do they even know what caused it to happen in the first place? That would have been just a wee bit scary (that's a true understatement - you know we scots are frugal by nature :) ).

It's great to have you wish us. I always like a nice scottish lass (though Glasgow is a bit grey and drab for me and my family's from up north in Aberdeenshire anyway   >:D). I understand how down you must be at this point with your trials and tribulations. Hoping things settle down and we can help you through this tough time, and you can add to our community through your many experiences of both transplant life and dialysis.

Again, welcome!

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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