Does your family ....

[angela515]

I use myspace for blogs and such, I don't see the need to make a website personally... although my mom always tells me that all that I have been through and at such a young age I could write  abook about it. 

[angieskidney]

I use myspace for blogs and such, I don't see the need to make a website personally... although my mom always tells me that all that I have been through and at such a young age I could write  abook about it. 

My friend Brian who I grew up with and had kidney transplants around the same time in the same children's hospital has a blog as well and feels the same way as you do. I thought him and I could work together to make something better but he sees no need. I felt that he didn't care about spreading awareness but you can't push a person to have the same views.

A blog is an easy way to tell your story. It is more of a personal site that is much like a diary that you put on display for the public. A website is different because you can do so much more with it! Look at what Epoman has done: Forums, information, Q&A, games, clothing and bags and badges, and so much more! You can't do that with a blog!

But if you just want to make your own little personal home on the world wide web, a blog is an easy way to do it and keeps your family and friends easily updated on your health

[angela515]

IHD also has lots of advertisement so it gets lots of hits, I made a personal website on geocities a long time ago... nobody ever viewed it unless I gave the the direct link.... so what awareness was I bringing to the table? LOL... None.

[angieskidney]

IHD also has lots of advertisement so it gets lots of hits, I made a personal website on geocities a long time ago... nobody ever viewed it unless I gave the the direct link.... so what awareness was I bringing to the table? LOL... None.

That's why it is good that sites like Epoman's IHD exsist! He knows the tricks  

I only know a little bit but he knows a lot about this (obviously lol). You can't just make a site and expect it to rate on the first page of all search engines. There is a lot of work involved and Epoman does that all so we can just come and enjoy the site! 

[angela515]

Yah I know... I know all about making webpages and what it takes... or used to anyways... I kinda moved to the medical field instead of computers... 

[angieskidney]

I guess I made my site as a way to get the support I was always looking for,  but then I found sites better than mine and found the support from people who are interested (because they are going through the same thing) all in the same site! 

And now I am kinda glad my family doesn't go to any of the sites or forums I do because I can talk freely without being judged

Plus with someone else doing all the work on their site it is nice just to spend all my time just reading posts lol

[Nan]

My story is pretty interesting too.....my dear mother passed away 10 years ago, she was not only my best friend but my "cheerleader" in life, it would simply destroy her to see me going thru all of this kidney failure stuff, she would not be able to handle it.  So four yrs after my mother passed, my father remarried, a wicked woman, I might add! Anyway, I got sick this past April 06, my father lives 12 miles away from me.....he has not come to the hospital to see me, he has not called, he has not sent me a card....EVEN a Christmas card this year...and I was stunned to find out he sent one to each of my daughters!  Apparently, he "asks" about me, says my sibling. but how very strange....is it guilt....not being able to "talk" about my situation, very interesting. I also have an older brother, here in the same city as I ....who also has never made contact with me since I became sick, it's like I have leprosy!!!! and HE being the only full blooded relative of mine who "might" be a transplant consideration.  I also have a younger brother , who was diagnosed with PKD a year ago....and I scare the HELL out of him....I am a look into his future and he does NOT want to see it!....but we talk on the phone every now and then.  They say, when life goes bad.....you find who your REAL friends are....that would be true of family too!

[angieskidney]

My story is pretty interesting too.....my dear mother passed away 10 years ago, she was not only my best friend but my "cheerleader" in life, it would simply destroy her to see me going thru all of this kidney failure stuff, she would not be able to handle it.  So four yrs after my mother passed, my father remarried, a wicked woman, I might add! Anyway, I got sick this past April 06, my father lives 12 miles away from me.....he has not come to the hospital to see me, he has not called, he has not sent me a card....EVEN a Christmas card this year...and I was stunned to find out he sent one to each of my daughters!  Apparently, he "asks" about me, says my sibling. but how very strange....is it guilt....not being able to "talk" about my situation, very interesting. I also have an older brother, here in the same city as I ....who also has never made contact with me since I became sick, it's like I have leprosy!!!! and HE being the only full blooded relative of mine who "might" be a transplant consideration.  I also have a younger brother , who was diagnosed with PKD a year ago....and I scare the HELL out of him....I am a look into his future and he does NOT want to see it!....but we talk on the phone every now and then.  They say, when life goes bad.....you find who your REAL friends are....that would be true of family too!

Wow I feel for you! Seems like they are all afraid but should be supportive! Well at least you now have IHD!