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Author Topic: I'm in my last 6 months of Medicare coverage...  (Read 2001 times)
kellyt
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« on: May 15, 2011, 11:19:24 PM »
Other than telling the doctor's office or the lab, what else do I have to do now that Medicare is primary for me until November?  (post transplant Medicare)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #1 on: May 16, 2011, 05:33:58 AM »
Pharmacy? Not sure how yours is set up though, Hospital if they have that information can wait unless you use their labs. Other than that I think all you need is your insurance card that will be your primary.
« Last Edit: May 16, 2011, 08:21:01 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
KarenInWA
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« Reply #2 on: May 16, 2011, 07:39:55 AM »
I would contact the SW at your TC and see what kind of help he/she can offer.  I'd also contact the Kidney Foundation and RSN.  The fact that we have to worry about this in this country is absolutely ludricous. Makes me want to marry someone overseas in one of those more progressive countries.

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
lawphi
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« Reply #3 on: May 16, 2011, 04:12:41 PM »
My husband actually did not lose his medicare coverage with his 1995 transplant.  Not sure what the laws where then. 

Just look forward to the new tax deductions you incur with your co-payments? 

I would also ask for a letter from Medicare to give your primary coverage.  I spent over 20 hours arguing with BCBS of NC regarding payment status years ago.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
kellyt
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« Reply #4 on: May 17, 2011, 01:34:45 PM »
I'm in the process of renewing our Aetna coverage in June and I was told by our coordinator that just to make sure where ever I'm receiving treatment knows to file to Medicare first.  Then she said if Medicare sends a letter stating "Your Medicare coverage ends on xyz date..." send that to her and she'd get that to Aetna.
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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