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Author Topic: Hell  (Read 8407 times)
YLGuy
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« Reply #25 on: May 01, 2011, 10:58:54 PM »
I have been in contact with Kickstart via her personal email.
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #26 on: May 01, 2011, 11:04:44 PM »
glad to know someone has been in contact with her YLGuy!! Please tell her I am thinking about her...

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: May 02, 2011, 12:42:49 AM »
Quote from: YLGuy on May 01, 2011, 10:58:54 PM
I have been in contact with Kickstart via her personal email.

Thanks for letting us know. I have been very worried as she doesn't respond to my messages.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Poppylicious
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« Reply #28 on: May 02, 2011, 02:44:54 AM »
Quote from: YLGuy on May 01, 2011, 10:58:54 PM
I have been in contact with Kickstart via her personal email.
Brilliant!  Hope she's okay.  Send her *huggles* from me.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
willowtreewren
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My two beautifull granddaughters

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« Reply #29 on: May 02, 2011, 04:53:22 AM »
That is good to know, Marc.

 :thx;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
RichardMEL
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« Reply #30 on: May 02, 2011, 05:06:33 AM »
Thank you for letting us know. I must admit even in the middle of my recent struggles my thoughts had been with KS and honestly feared the worst. She may not be OK, but she is still out there, and that at least is a comfort. I hope things are improving for her and she will come back sometime and let us know.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
natnnnat
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« Reply #31 on: May 02, 2011, 06:47:48 AM »
Quote from: YLGuy on May 01, 2011, 10:58:54 PM
I have been in contact with Kickstart via her personal email.
O that's something, at least someone is in touch with her.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Jean
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« Reply #32 on: May 03, 2011, 11:51:18 PM »
Awwww, come on Kicky, we miss you and you know we all look forward to your posts, good news or bad. Come on back!!!
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One day at a time, thats all I can do.
Des
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« Reply #33 on: May 04, 2011, 12:11:39 AM »
This is really scary now!

I am worried about you - just pop a note so that we know you'r ok. Pretty PLEEEEEEASE.

 :flower; :cuddle;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
lola
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I can fly!!!
« Reply #34 on: May 04, 2011, 03:41:18 AM »
Quote from: YLGuy on May 01, 2011, 10:58:54 PM
I have been in contact with Kickstart via her personal email.

 :pray;..... Mark is she OK???? She has been having such a tough time, glad she has been in contact with you.... :grouphug;
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www.caringbridge.org/visit/ottomachado
lmunchkin
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"There Is No Place Like Home!"
« Reply #35 on: May 05, 2011, 07:12:01 PM »
How is she, Mark?

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Des
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« Reply #36 on: May 05, 2011, 11:27:54 PM »
I received two greeting cards from her on my e-mail. (Thanks KS) You are so special thinking of me - while you are going through the same thing.

 :flower;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
natnnnat
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« Reply #37 on: May 11, 2011, 06:09:58 PM »
Just dropped in to see if KS is back online.  I see she's messaged Des which is something.  Here's a quick hug Kickie, for when you read this, and maybe a flower
 :flower;
o better put the hug hadn't i
 :cuddle;
Hope you're alright too Des, seeing as you are going through the same thing.  Not good.  Keep posting.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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