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Author Topic: Rest In Peace  (Read 3690 times)
rsudock
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will of the healthy makes up the fate of the sick.
« on: April 10, 2011, 02:42:41 PM »
Last night Aaron's Uncle (only one) passed away after having a heart attack. He was only 52 leaving behind 3 children. One is in Iraqi, another New York, and the other one still lives with him.

It was so amazing because the doctor at the end said, "Well he was an organ donor so we will begin seeming what is viable to use." Aaron's mom came up to me and said because of you he wanted to donate his organs to help others.

They donated his organs in honor of me and in remembrance of him...it was very touching. I just kept thinking maybe some of my IHD friends will be getting a new kidney today and Uncle Steve's giving spirit will live on.

May God Bless and Keep Him!

xox,
R
« Last Edit: April 12, 2011, 01:09:46 AM by rsudock » Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
jbeany
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Cattitude
« Reply #1 on: April 10, 2011, 03:02:40 PM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
monrein
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Might as well smile
« Reply #2 on: April 10, 2011, 03:37:21 PM »
Very touching honor and remembrance of "Uncle Steve".  Condolences to your family.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boswife
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us and fam easter 2013
« Reply #3 on: April 10, 2011, 04:04:08 PM »
Rest in Peace  :pray; .. And its so touching that someone lives because of him AND you..  Still, makes me so sad knowing that these things happen and we must love all we can while we have the love to give.  His lives on... Bless him.
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sluff
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« Reply #4 on: April 10, 2011, 04:34:21 PM »
Condolences to the family and you for the loss of Steve. Hopefully some lives have been saved because of Steve. Steve is a hero and didn't even know it.
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #5 on: April 10, 2011, 06:38:48 PM »
 :grouphug; :grouphug; :grouphug;
RIP Uncle Steve  :pray;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #6 on: April 10, 2011, 09:04:51 PM »
R.I.P.
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Galvo
bette1
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My dear daughter
« Reply #7 on: April 11, 2011, 06:44:19 AM »
RIP :grouphug;
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
Poppylicious
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WWW
« Reply #8 on: April 11, 2011, 06:57:20 AM »
Awww, RIP Uncle Steve.  *huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
phyl1215
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« Reply #9 on: April 11, 2011, 08:47:58 AM »
Sad, he was young.  Prayers for him and all his family..... :grouphug;
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
carol1987
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« Reply #10 on: April 11, 2011, 09:15:24 AM »
I am sorry for your loss....

What a wonderful gift your uncle and his family have given... :grouphug;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
RightSide
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« Reply #11 on: April 11, 2011, 02:44:22 PM »
Rest in peace, uncle Steve.

You and your family are doing something great for humanity.
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MooseMom
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« Reply #12 on: April 11, 2011, 02:52:46 PM »
What a bittersweet story. :cuddle;

I try very hard to understand other people's points of view/opinions on most topics.  I understand that for some populations, organ donation is just not something their culture may condone.  I can't claim to understand it, but whether or not I do is irrelevant.  But I honestly (and I have tried) do not understand why anyone in our run-of-the-mill American culture would not sign up to be an organ donor or would refuse to donate the organs of their just-deceased loved one.  Speaking very selfishly, and I have thought about this a lot, if my husband or my son suddenly died, the only consolation that I could possibly find would be in offering their organs to save the life of someone in need.  To let that opportunity pass would add so much to my grief.

I am so glad that your uncle Steve loved you enough to honor you in this way, and I hope that your family find the greatest consolation in his gift.  Will you be able to find out if any of his organs were actually donated?  If so, would you be interested in meeting the recipients?

Love to you. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #13 on: April 12, 2011, 01:08:57 AM »
OKAROL I wanted to let you know that Aaron's mom (Vicki) met Jenna's donor. Vicki started telling me about a woman named Patrice coming over to the house and that she donated a kidney to a stranger, and I jumped in "Yeah a girl named Jenna in California right?" Vicki was like "Oh my goodness how did you know that?!?"  It was just cool to see how small the world really is!!!!

Quote from: MooseMom on April 11, 2011, 02:52:46 PM
What a bittersweet story. :cuddle;


I am so glad that your uncle Steve loved you enough to honor you in this way, and I hope that your family find the greatest consolation in his gift.  Will you be able to find out if any of his organs were actually donated?  If so, would you be interested in meeting the recipients?

Love to you. :cuddle;

His daughter was the executor of his estate and talked to the LifeBanc so when I see her I will ask what organs they ended up  using. I would LOVE to meet the recipients. What an amazing opprutunity to talk to someone whose life was change out of a tragedy.

Thanks for all the LOVE and SUPPORT folks!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
texasstyle
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« Reply #14 on: April 12, 2011, 07:32:09 AM »
I am sorry for your loss and so young. My goodness.. It must feel good knowing that in his death he is giving life. That doesn't make your families heartache go away of course but it must  help give a sense to what had suddenly happened. I'm thinking of the one son in Iraq. That must have been hard for him hearing of the passing for him  so far away.
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caregiver to husband using in-center dialysis 4 years
Rerun
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Going through life tied to a chair!
« Reply #15 on: April 12, 2011, 07:50:59 AM »
I'm so sorry for your loss, but what a blessing he left behind.


                       :pray;
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