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Author Topic: Fellow Patient Died  (Read 4358 times)
Hazmat35
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« on: March 22, 2011, 07:49:39 AM »

I just learned that one of my fellow patients at our Dialysis center has passed away from Uremia. 

She was only 20 years old and had not been at our center very long, only a few month at most.  She was terribly ill with ESRD as well as other things too, I'm told.  I don't exactly what else was wrong with her. 

I am so sad!   :'(  I didn't really know her very well, but I sat next to her a few times, and cried with her as she was in such pain. 

GOD I HATE THIS DISEASE!!!!!!!

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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: March 22, 2011, 07:51:01 AM »

 :grouphug;

I understand. Hugs to you. Keep yourself as healthy as you can....

 :cuddle;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
carol1987
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« Reply #2 on: March 22, 2011, 07:54:27 AM »

so sorry....  :cuddle;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #3 on: March 22, 2011, 10:06:32 AM »

 So young... so sad....   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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« Reply #4 on: March 22, 2011, 11:11:28 AM »

 :'( So young. So sorry for you too.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #5 on: March 22, 2011, 11:35:04 AM »

I can understand a dialysis patient dying from a heart attack, but from uremia?  I would think THAT is the one thing that dialysis is supposed to effectively treat!  This just seems to be so illogical, which makes it all the more tragic.

I am so sorry.  How awful.  Twenty years old... :'(
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Hazmat35
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« Reply #6 on: March 22, 2011, 12:01:09 PM »

I can understand a dialysis patient dying from a heart attack, but from uremia?  I would think THAT is the one thing that dialysis is supposed to effectively treat!  This just seems to be so illogical, which makes it all the more tragic.

I am so sorry.  How awful.  Twenty years old... :'(

From my understanding, she did not NOT come to her treatments regularly, she did not follow her renal diet, and she did not take her meds.  Unfortunately she was in complete denial. 

She had other health issues as well.  She was a very sick young lady.  My heart broke every time I saw her come in to the center, but broke even more when I knew she was too sick to make her appointment. 

I sat next to her a few times, and listened to her sob and cry because she was in so much pain, I cried along with her!  It was awful, just awful.  But I have to say, she AND her family brought it on themselves.  Her parents made excuses for her when she didn't come, they didn't push her like the should have. 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
MooseMom
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« Reply #7 on: March 22, 2011, 12:09:45 PM »

Ah, that explains it.  This story just gets sadder and sadder.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Poppylicious
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« Reply #8 on: March 22, 2011, 12:13:54 PM »

Oh gosh, that's so terribly sad.  *huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
KICKSTART
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In da House.

« Reply #9 on: March 22, 2011, 04:05:08 PM »

Invincible ..no     sad , very sad ..yes
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
jbeany
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« Reply #10 on: March 22, 2011, 04:52:51 PM »

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Des
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« Reply #11 on: March 23, 2011, 12:15:32 AM »

 :grouphug; Sorry to hear, I had the same thing happen to me not too long ago.

But she was actually a friend on mine. I hate this disease more.  :'(
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
RightSide
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« Reply #12 on: March 24, 2011, 08:38:01 AM »

I'm so sorry.    (((((((((( hugs ))))))))))

The war against kidney failure is like a real war--we have to be able to deal with casualties. 

I had become friends with a dialysis patient at my center.  He died five months later.

And another patient sitting across the way from me coded--the EMTs came but couldn't restart his heart--and that was that.

All you can really do is mourn for a few days--and then get on with our jobs and our lives.
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Aubrey
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I say, you fellows!

« Reply #13 on: March 26, 2011, 10:42:11 AM »

I'm never sure of the etiquette when someone it the unit stops coming. I have asked other patients where someone was (that time the woman had died; I had only talked to her once, about cats, but it was still a shock) but other times they have had a transplant or just gone to another unit.

Still, it's asking the nurses where someone is: is it good etiquette? I have heard a nurse telling someone off for asking (this on a regular ward): some privacy issues that time. Since then I have not liked to ask.
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casper2636
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« Reply #14 on: March 27, 2011, 11:42:54 AM »

Yes, it is a sensitive issue. So sad to notice that "one of the family" is missing; whether just noticing them in passing, or having an meaningless conversation. They are physically not there. It hits home what a devastating disease this is. It kills. I think we are all humbled by the truth of life. It is fleeting. We are lucky for each day. I'm sorry for your loss. Take today with good heart.
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billmoria
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Living life to my max

« Reply #15 on: March 27, 2011, 04:47:51 PM »

We have a young girl who misses all  the time. You can't or won't understand that part of the reason she is sick is that she misses dialysis. She eats and drinks without regard to her D either. Her parents indulge her behavior and even lie for her to our unit. She was moved from our unit to the Royal London which is the base for all the units in our area. She has improved but still misses. It is sad but I don't know what the docs and nurses can do.
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Hazmat35
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« Reply #16 on: March 28, 2011, 08:38:29 AM »

I'm never sure of the etiquette when someone it the unit stops coming. I have asked other patients where someone was (that time the woman had died; I had only talked to her once, about cats, but it was still a shock) but other times they have had a transplant or just gone to another unit.

Still, it's asking the nurses where someone is: is it good etiquette? I have heard a nurse telling someone off for asking (this on a regular ward): some privacy issues that time. Since then I have not liked to ask.

We were never told that she passed away from anyone at our center.  I happen to ask our Administrator how she was doing.  I just assumed that she was still either in the hospital or she was doing the 1st shift (I'm on the 3rd or later shift at the center).  That was when she told me. 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
*kana*
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« Reply #17 on: March 29, 2011, 05:02:07 PM »

I'm never sure of the etiquette when someone it the unit stops coming. I have asked other patients where someone was (that time the woman had died; I had only talked to her once, about cats, but it was still a shock) but other times they have had a transplant or just gone to another unit.

Still, it's asking the nurses where someone is: is it good etiquette? I have heard a nurse telling someone off for asking (this on a regular ward): some privacy issues that time. Since then I have not liked to ask.

SAdly, it is againt HIPA privacy for the nurses to discuss another patient.  Most nurses will freely give that info if asked, because it is just human kindness and most know that people get to know one another. 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
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