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Author Topic: Howdy from Texas!  (Read 3167 times)
Harvey Wells
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« on: February 11, 2010, 10:12:55 AM »
My name is Harvey Wells and while I hate dialysis, I love the freedom and flexibility of NxStage!  Over the last two years I've travelled over 30,000 miles all over the United States with my two grandsons meeting hundreds of dialyzors in over 80 different centers.

I enjoy talking to others and sharing my journey.  Dialysis has helped me be more in tune with those things that make my life worth living (my family and friends) and it has given me a new sense of purpose advocating for dialyzors to be fully educated and informed of all their choices.

I hope in my travels I'll get the chance to meet some of you.
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Survived PD Jan '98 - Jun '98
Survived a transplant Jun '98 - Jan '06 (my wife was my donor)
Survived in-center Jan '06 - Mar '07
I now thrive on SHDD on NxStage 6 days a week since Mar '07
Zach
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"Still crazy after all these years."
« Reply #1 on: February 11, 2010, 10:18:29 AM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: February 11, 2010, 10:23:19 AM »

Hey Harvey! I am glad to see you join us. I have posted stories about your travels in the news section and was happy to meet you last year at a Renal Support Network meeting. Welcome!

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Harvey Wells
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« Reply #3 on: February 11, 2010, 10:39:50 AM »
Hi Carol, I remember.  I've read the forum often and I'm enjoying some 'downtiime' before my next adventure so I thought I'd stick my toes in the water.
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Survived PD Jan '98 - Jun '98
Survived a transplant Jun '98 - Jan '06 (my wife was my donor)
Survived in-center Jan '06 - Mar '07
I now thrive on SHDD on NxStage 6 days a week since Mar '07
Meinuk
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« Reply #4 on: February 11, 2010, 10:43:34 AM »
Hey Harvey,

Thanks for dipping a toe in!!!

Best,

Anna Bennett
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Harvey Wells
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« Reply #5 on: February 11, 2010, 03:56:39 PM »
Anna, good to see you here.  I hope all is well and that new bean is treating you good.
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Survived PD Jan '98 - Jun '98
Survived a transplant Jun '98 - Jan '06 (my wife was my donor)
Survived in-center Jan '06 - Mar '07
I now thrive on SHDD on NxStage 6 days a week since Mar '07
willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: February 11, 2010, 05:32:44 PM »
Hi, Harvey,
Glad to see you here!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
looneytunes
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Wishin' I was Fishin'
« Reply #7 on: February 11, 2010, 07:58:32 PM »
Hi Harvey.  I've read some of the stories about your travels.  Glad to see you join us!   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
galvo
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« Reply #8 on: February 11, 2010, 08:08:08 PM »
G'day Harvey! Now you've dipped your toe in, let the rest of you follow.
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Galvo
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #9 on: February 11, 2010, 11:45:38 PM »
Welcome.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Jean
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« Reply #10 on: February 11, 2010, 11:58:27 PM »
 :welcomesign;Harvey, glad you decided to join us.
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One day at a time, thats all I can do.
cloud393
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« Reply #11 on: February 12, 2010, 08:18:49 AM »
Welcome aboard.  Look forward to hearing more from you.
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May you live as long as you want and never want as long as you live.
kellyt
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« Reply #12 on: February 12, 2010, 10:42:58 AM »
Howdy back from another fellow Texan! (Ithought we had a smiley with a cowboy hat  ?  )
How's all that snow up there?  :clap;    I'm in the San Antonio area (actually just moved out of S.A. to Natalia).

You will love this site.  And, BTW, we are going to eventually get a Texas meet and greet together.  I've been working on it for a while now.   :shy;    I'll admit I got interrupted by my transplant and junk that followed.  :0)

 :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: March 23, 2011, 03:26:47 PM »
Harvey got "The Call" yesterday and is already able to post on his facebook:
Thanks to everyone for the messages of love and support. The kidney was peeing before I left the OR! Like many who deal with CKD, the love and support from family and friends is so important.
I'm convinced that had it not been for NxStage and home dialysis, I would not be here or healthy enough after almost 5 1/2 years of dialysis.
Peggy and I are blessed and grateful, we appreciate and love you all!
Harvey & Peg

Harvey traveled all over the US in his mobile home - helping others to see how NxStage works and how he was able to stay active. Here's one of the many news stories about him: http://ihatedialysis.com/forum/index.php?topic=19809.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #14 on: March 23, 2011, 03:50:20 PM »
Oh my goodness, how fantastic!!!!!

You know, some of blather on and on about "optimal dialysis", but the truth is that if you are on the waiting list, it is imperative that you keep your body as healthy as possible so that when YOUR call comes, you will be well enough to survive the surgery and enjoy your new life. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kellyt
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« Reply #15 on: March 23, 2011, 06:10:32 PM »
 :yahoo; :yahoo; :yahoo; :yahoo;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #16 on: March 23, 2011, 07:45:03 PM »
  Great news....Harvey..... I just want to know one thing......   since you are not going to be using Nxstage now since you got a transplant..... And I am sure after you heal up and your up and running  I am certain you will continue to hit the road in your RV.....  Who is going to be going from clinic to clinic talking to people about Nxstage...... we sure have loved to hear about all your adventures and to spread the work about Nxstage..... 
   Are you still going to spread the word......??   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
peleroja
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I have 16 hats, all the same style!
« Reply #17 on: March 24, 2011, 07:52:19 AM »
Howdy right back, Harvey, and welcome to the group.  What a great advocate you are for dialysis.  Glad you found us!
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