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blackandgoldfan
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« on: March 13, 2011, 08:45:23 AM »
I was diagnosed with FSGS about 5 years ago.  My nephrologist estimated 3-4 years before I would need dialysis.  Well, it's been 5 years and the time has come.  I get my training in home PD starting this coming week (March 14, 2011) and should start home automated PD on Friday.

As my job required extensive travel I had to give it up, even though I really liked it.  I'm old enough to retire even without the kidney disease but that just pushed up the date a bit.
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sparklelady
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« Reply #1 on: March 13, 2011, 09:52:30 AM »
Welcome, blackandgoldfan!! You will find lots of helpful information and really great people on this website.
Are you by any chance from Pittsburgh??
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blackandgoldfan
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« Reply #2 on: March 13, 2011, 10:02:50 AM »
You guessed it.  I live in NJ now but spent my first 22 years in the 'burg.
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monrein
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Might as well smile
« Reply #3 on: March 13, 2011, 10:08:51 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
sparklelady
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« Reply #4 on: March 13, 2011, 10:14:31 AM »
Very cool!!! Are you a Penguin fan??
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blackandgoldfan
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« Reply #5 on: March 13, 2011, 10:18:13 AM »
Of course, Penguins, Pirates, Steelers.  Black and Gold covers them all!
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sparklelady
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« Reply #6 on: March 13, 2011, 10:26:42 AM »
Me,too!! Not real thrilled with the Pirates, though. My husband and I are hard core hockey fans. Love the Steelers,. too!! Can't wait for March Madness, hopefully Pitt will do well this year.
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MooseMom
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« Reply #7 on: March 13, 2011, 02:49:25 PM »
So, that means you're starting dialysis training tomorrow!  Man, you seem so sanguine about it!  I wish I could be like that.  I hope it all goes well; come back and tell us how Friday goes.  We wish you all the best and hope PD will leave you feeling really good.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
chook
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Born to be a Granma!
« Reply #8 on: March 13, 2011, 02:57:00 PM »
Good luck with your training and start to PD. I'm a PD patient and had an easy start and it all works well.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #9 on: March 13, 2011, 05:03:13 PM »
 :welcomesign;

I do home PD as well, switching for the Baxter machine to the Fresenius machine and my retraining is this week, too.  I'll think of you!

 I think you'll adjust quickly.  Welcome!
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galvo
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« Reply #10 on: March 13, 2011, 05:13:51 PM »
G'day and  :welcomesign;.
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Galvo
boswife
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us and fam easter 2013
« Reply #11 on: March 13, 2011, 05:17:37 PM »
welcome  :welcomesign;  and all the best for ease of training :-)    Will be great to hear of your success  :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
blackandgoldfan
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« Reply #12 on: March 14, 2011, 03:01:05 PM »
Thanks for all the encouragement.  Day 1 of training was LONG.  Got as far as setting up the machine just short of attaching myself.  That drill will be tomorrow.  Also met with the dietitian but couldn't get real detailed as my bloodwork was just taken today.  So far, so good. I think part of the reason I'm so calm about it is that I've known it's been coming for almost 5 years now.  That's enough time to wrap my brain around the concept!
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chook
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Born to be a Granma!
« Reply #13 on: March 14, 2011, 04:57:24 PM »
I agree with the calmness b&gfan. After all the years of panic and worry, for me it was like a weight lifting: here it is, the BIG D and amazingly, it is not as bad as I thought. And how quickly it will all became 'routine'. Hope things go well for you.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
BillSharp
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rock 'n roll will never die
« Reply #14 on: March 15, 2011, 11:16:59 AM »
Welcome Black and Gold fan. I was born in Washington, PA, and lived in Pgh. for a long time. Use to have Steeler's season tix. Moved to CA in '72 and have been here ever since, but have retained my maniacal loyalty to the Rooneys and the Steelers. Not much of a hockey or baseball fan.
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Started passing stones at age 14 (Cystinuria)
Transplant in 1989 at age 50
Transplant failed in 2009 at age 70
Hemo and transplant list
Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
blackandgoldfan
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« Reply #15 on: March 15, 2011, 01:17:30 PM »
I grew up in Edgewood.  It's a small suburb out the parkway east, next to Squirrel Hill. Have now lived in NJ longer than Pittsburgh but just like you the Steelers seem to stay in your blood no matter where you move.
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peleroja
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I have 16 hats, all the same style!
« Reply #16 on: March 17, 2011, 10:03:24 AM »
Welcome to the group, blackandgoldfan.  Lots of good information and friends here.  Glad you found us!
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