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I Hate Dialysis Message Board
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Hi everybody
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Topic: Hi everybody (Read 1977 times)
Heymike
Newbie
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Hi everybody
«
on:
March 20, 2011, 04:31:21 PM »
Hi, my name is Mike (male 57yrs.old) I live in San Diego Ca. I was diagnosed with ESRD in 1996. I noticed I was feeling run down and tired for two or three weeks before Christmas 1995 I toughed it out until after the holidays and went to the doctor on the 6th of January. The next day my doctor called me and said I want you to go to the hospital immediately. I did and three days later I had my first dialysis treatment.
Talk about a shock. Evidently it was glomerulonephritis (pretty sure caused by undiagnosed high blood pressure) that killed my kidneys. It's been 15 years now. I was extremely fortunate and got a transplant that first year. It lasted 8 (mostly great) years and I've been back on dialysis (hemo in clinic) for 7 years now.
Doing O.K. with dialysis looking to get back on the transplant list this year. In the past 7 years I've survived extreme neuropathy, congestive heart failure, calciphilaxis, aortic valve replacement and one major fistula reconstruction.
I thank God everyday that I am still here. I am able to drive myself to treatment and take care of my daily needs. But as you all know it's hard sometimes very hard to deal with this disease.
I'm really happy I found this site and I want to thank its creator and all of you who volunteer your time to make it happen. I've been reading the posts on the different boards an I'm looking forward to getting to know the people here.
Take it easy everybody...Mike
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The most fundamental thing about understanding is...Understanding that you don't understand.
MooseMom
Member for Life
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Re: Hi everybody
«
Reply #1 on:
March 20, 2011, 04:45:46 PM »
Well, we're thankful you're here, too.
If you've been on D 7 years, then you're an old pro and have lots to share with the rest of us. Thanks so much for joining IHD!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
WishIKnew
Sr. Member
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Posts: 635
Alports, dialysis '07-'12,cancer'11,transplant '12
Re: Hi everybody
«
Reply #2 on:
March 20, 2011, 04:46:25 PM »
Glad you're here! What a kidney journey you've been on!
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Marsh
Full Member
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Re: Hi everybody
«
Reply #3 on:
March 20, 2011, 04:57:39 PM »
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boswife
Elite Member
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us and fam easter 2013
Re: Hi everybody
«
Reply #4 on:
March 20, 2011, 07:43:45 PM »
heymike :-)
Good to see you found it here as it is the best ever for info and conversation sharing of great stuff...
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
peleroja
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I have 16 hats, all the same style!
Re: Hi everybody
«
Reply #5 on:
March 21, 2011, 07:35:38 AM »
Welcome to the group, Mike. Sounds like you've been through a lot. Glad you found us!
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Sugarlump
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10 years on and off dialysis
Re: Hi everybody
«
Reply #6 on:
March 21, 2011, 11:59:24 AM »
Anyone who can survive 7 years of dialysis after a transplant gets my vote!
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense
Heymike
Newbie
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Re: Hi everybody
«
Reply #7 on:
March 21, 2011, 01:02:54 PM »
Thanks for the welcome everybody. I'm off to treatment and I will definitely be telling my fellow patients about this great site.
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The most fundamental thing about understanding is...Understanding that you don't understand.
galvo
Member for Life
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Re: Hi everybody
«
Reply #8 on:
March 21, 2011, 06:42:51 PM »
G'day, Mike, and
.
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Galvo
ODAT
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Nala - Mom's Cat
Re: Hi everybody
«
Reply #9 on:
March 24, 2011, 11:23:30 AM »
Mike!
Mom does in-center hemo as well. It surely takes a lot out of you. Hope you feel good more days than not!
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As is your sort of mind, so is your sort of search: you will find what you desire.
Rerun
Member for Life
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Going through life tied to a chair!
Re: Hi everybody
«
Reply #10 on:
March 26, 2011, 04:54:36 AM »
Hey Mike, and welcome to IHD. I'm so glad you found us. Sounds like you have been through a lot. I'm glad you had 8 years of mostly freedom. Best of luck with your second try.
I sure hope you get something out of this board. It has helped me immensely.
Rerun, Moderator
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Zach
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"Still crazy after all these years."
Re: Hi everybody
«
Reply #11 on:
March 26, 2011, 05:18:37 AM »
It's real good to have you join our community!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
Heymike
Newbie
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Re: Hi everybody
«
Reply #12 on:
April 06, 2011, 11:18:23 AM »
WOW! What a great bunch of folks. I must say you have made me feel welcome. I thoroughly enjoy and learn so much from your posts. I can see what a great blessing this site is to all who participate here. Thanks again...Mike
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The most fundamental thing about understanding is...Understanding that you don't understand.
AguynamedKim
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Re: Hi everybody
«
Reply #13 on:
April 07, 2011, 06:22:11 AM »
Heymike! San Diego, eh? One of the greatest places in the world to live in my humble opinion. I grew up in Orange County and loved visiting my Aunt and Uncle in San Diego (I've lived in Houston for 20 years now). I have always joked that the easiest job in the world has to be a weatherman in San Diego, "Today will be 75 degress with a breeze off the ocean. Tomorrow will be 75 degrees with a breeze off the ocean. Looking at next week, looks like 75 with a breeze off the ocean."
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Pre-dialysis - Intro:
http://ihatedialysis.com/forum/index.php?topic=20344.0
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