Hello

homepartnerctl

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Hello

« on: March 15, 2011, 04:17:32 PM »

Definitely a first for me. I have never sought support, let alone an online forum. But this really caught my eye. I am a care partner for my Dad who is on home hemodialysis. We have been at it for 2 and 1/2 years. Quite a challenge. He was a newbie when we started (never been in-center) then got real sick (sepsis) due to a delay in starting treatment after the catheter was placed and we nearly lost him. Now it is better but he still has a central line catheter. Murtiple attempts at fistula have failed. I work full time in a pretty high stress field and 5 days of 3 hourHHD treatments is hard. But my Dad is worth it. I seek a forum to talk to other caregivers, patients and families especially HHD. I look forward to "meeting" new people.


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willowtreewren

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My two beautifull granddaughters

Re: Hello

« Reply #1 on: March 15, 2011, 04:29:54 PM »

You have come to the right place Homepartner!

I was a HHD partner for my husband for a bit more than 2 1/2 years. We used NxStage. What do you use?

They came and took our dear machine away after my husband got a transplant about 6 weeks ago.

We both work and with home hemo, my husband was able to keep up our hectic schedule.

You'll meet lots of nice folks here.

Aleta


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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.

homepartnerctl

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Re: Hello

« Reply #2 on: March 15, 2011, 05:33:23 PM »

Good luck with the transplant! What a great way to say good bye to the machine. We are on NxStage and very satisfied. Dad is not a transplant candidate so our machine is truly the only life line. I pray that in the future that neither of our families will ever need one.
Thanks for posting
Carolyn