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bigmike
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« on: March 06, 2011, 10:08:52 AM »
I've been checking this forum out for a while but never signed up.  My name is mike and I have esrd stemming from years of dealing with wegner's granulomatosis.  I'm only 29 years old and am starting on hemo in the next few days.  A bit of history....I was diagnosed with wegner's granulomatosis when I was 12 and spent most of my teenage years in and out of the hospital for various complications (kidney failure, lung bleeds/collapse, arthritis, etc...) Luckily I was only on dialysis for a short period when I was 14 and have been recovering basically ever since.  My doctor's always told me this day would come, eventually dialysis would return and they'd have to look at transplant options.  Unfortunately none of my family is the same blood type as me so hopefully I can do a paired exchange in the future.  For now, I've got a nice fistula which I will test on tuesday, hopefully it works.
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YLGuy
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« Reply #1 on: March 06, 2011, 10:21:07 AM »
 :welcomesign; Welcome mike.  I am glad you signed up.  Good luck on Tuesday! Let us know how it turns out.
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Poppylicious
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WWW
« Reply #2 on: March 06, 2011, 10:37:34 AM »
 :welcomesign; Mike!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: March 06, 2011, 11:08:15 AM »
HI, Mike!

 :welcomesign;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!
« Reply #4 on: March 06, 2011, 04:19:34 PM »
Hi Big Mike and welcome to IHD.  I'm so glad you joined us.  You have already been through a lot in your young life.  Let's hope your fistula works just great for you.  Keep reading this site for new information as well as a good support for you.

Rerun, Moderator     :welcomesign;
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chook
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Born to be a Granma!
« Reply #5 on: March 06, 2011, 04:44:23 PM »
 :welcomesign; All the best for Tuesday.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Zach
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"Still crazy after all these years."
« Reply #6 on: March 06, 2011, 04:47:52 PM »
It's good to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MooseMom
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« Reply #7 on: March 06, 2011, 07:09:08 PM »
I can't wait to hear more about Tuesday.  I will be thinking of you then, so if you feel like it, do please come back and tell us how the day went, OK?  We're all cheering you on.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #8 on: March 06, 2011, 10:33:16 PM »
G'day, bigmike and :welcomesign;.
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Galvo
peleroja
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I have 16 hats, all the same style!
« Reply #9 on: March 07, 2011, 08:25:24 AM »
Welcome to the group, Mike.  Lots of good information and friends here.  Glad you found us!
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boswife
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us and fam easter 2013
« Reply #10 on: March 07, 2011, 12:04:54 PM »
sure glad ya found us and glad i found your post just in time to send you my best wishes for tomorrow will be looking forward to your posting how GREAT your day
went ;-)   :welcomesign;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lou
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« Reply #11 on: March 07, 2011, 02:07:10 PM »
a big hello and good luck for tomorrow :welcomesign;
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DomJDavis1985
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« Reply #12 on: March 08, 2011, 05:42:15 AM »
Welcome Mike!!!!! glad you decided to officially join this family of great people!!!!!!! look forward to hearing your opinion on many things
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bigmike
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« Reply #13 on: March 08, 2011, 07:56:10 PM »
well day 1 is done and honestly it was easier than I expected.  They started me with a 16 gauge sharp to start my buttonhole and I really was surprised that it hurt less than an iv.  The fistula worked fine for the 3 and a half hour run.  I thought I would feel tired or something but really just felt like I always do throughout the whole thing.  The only problem was at the beginning when my blood pressure dropped quickly right when it started but it was fine after about 5 minutes.  All in all, could have been a lot worse.  I think round two will be more interesting
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looneytunes
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Wishin' I was Fishin'
« Reply #14 on: March 09, 2011, 06:39:40 AM »
Hi BigMike and welcome to IHD!   :welcomesign;  You sound like you have a great attitude about this and  I hope round 2 is as non-eventful as round 1 was! 
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"The key to being patient is having something to do in the meantime" AU
boswife
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us and fam easter 2013
« Reply #15 on: March 09, 2011, 08:03:51 AM »
I was so happy to read this last night that all went well, but danged phone wouldnt let me sign in... Soo, just wishing that "round 2" and 3&4 etc  ;) will continue to be as uneventfull...   Very happy for you and i agree, i love your attitude..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
chook
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Born to be a Granma!
« Reply #16 on: March 09, 2011, 03:16:08 PM »
Great to read that your first run via your new fistula was all okay. All the best for many more problem free runs.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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