I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 25, 2024, 12:36:58 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  Myself		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Myself  (Read 3205 times)
EllenW
Newbie
*
Offline Offline

Posts: 2
« on: February 26, 2011, 10:28:35 AM »
 I've been on dialysis since September, 2008.  At first I was on hemo but the graft (couldn't do a fistula on me) keep clogging up so after the third surgery I elected to go on PD.  Then in August of 2010 I got a moldy GI infection, which was never diagnosed beyond being a mold.  It filtered into the peritoneum and probably infected the catheter, although that was never diagnosed either.  Nevertheless, the doctors removed the catheter and inserted what they called a "temporary" graft.  That was on November 2 and it is still painful.  The cause of kidney disease is high blood pressure, which four medications do not affect.  I've been on bp meds since diagnosis in 2007, with absolutely no results. 
Logged
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #1 on: February 26, 2011, 01:25:50 PM »
Hi, Ellen.

It sounds like you have had your share of problems!

Welcome to the site. You'll find lots of companionship here.

 :welcomesign;

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #2 on: February 26, 2011, 01:42:49 PM »
I've never heard of a "temporary" graft...do they eventually put in a permanent one?  I apologize; I don't know much about grafts.

That's amazing that none of your meds work at least a little bit.  Do your docs have any other suggestions?

Welcome to IHD.  I'm looking forward to hearing more from you!
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile
« Reply #3 on: February 26, 2011, 01:45:43 PM »
 :welcomesign;  sorry you're going through such a rough time.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!
« Reply #4 on: February 26, 2011, 05:47:11 PM »
Hi Ellen and welcome to IHD.  I"m so glad you found us.  My middle name is Ellen.   :)

Where is your temporary graft?

Rerun, Moderator           :welcomesign;
Logged
looneytunes
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2071


Wishin' I was Fishin'
« Reply #5 on: February 26, 2011, 07:43:06 PM »
Hi Ellen and welcome to IHD!   :welcomesign;  Sounds like things have been pretty tough for you recently and I sure hope it becomes smoother quickly.   :welcomesign;
Logged
"The key to being patient is having something to do in the meantime" AU
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252
« Reply #6 on: February 26, 2011, 08:26:02 PM »
G'day, Ellen, and welcome.
Logged
Galvo
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154
« Reply #7 on: February 27, 2011, 01:55:20 AM »
Welcome to IHD Ellen!!!

It's good to have you with us. You've had a few problems so far - I hope that they clear up soon and your "temporary" graft can continue to serve you.

 :welcomesign;

RichardMEL, Moderator
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
peleroja
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1585


I have 16 hats, all the same style!
« Reply #8 on: February 27, 2011, 06:52:51 AM »
Hi, EllenW, and welcome to the group.  Lots of good information and friends here.  Glad you found us!
Logged
Poppylicious
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3023


WWW
« Reply #9 on: February 28, 2011, 09:36:46 AM »
 :welcomesign; Ellen!
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
DomJDavis1985
Jr. Member
**
Offline Offline

Gender: Female
Posts: 58
« Reply #10 on: February 28, 2011, 08:56:05 PM »
i like you was diagnosed with high blood pressure and that has been given as the reason that my kidneys have failed and even with dialysis and taking two meds my blood pressures are still high..if they don't lower in the next month or so i am gonna try to get put on another medicine...i don't want high blood pressure to keep me from getting a transplant  :Kit n Stik; :stressed;
Logged
chook
Sr. Member
****
Offline Offline

Gender: Female
Posts: 774


Born to be a Granma!
« Reply #11 on: February 28, 2011, 09:23:19 PM »
 :welcomesign; Ellen.
Logged
Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
EllenW
Newbie
*
Offline Offline

Posts: 2
« Reply #12 on: March 09, 2011, 10:12:37 AM »
Thank you all for the welcomes!  I am chronically angry at the treatment I receive incenter.  I requested (and my doctor backed me up) one of several techs who seem to me to be better than the others (they cause no pain inserting the needles) but the clinic manager refused adamantly and in fact gave me a tech that is extremely rough.  I can choose my own doctor in this country, my own representative, my own senator, my own husband, but not my own tech apparently.  This summer I am going on home hemodialysis when a caretaker is free to take the training with me.  Protests, anyone?
Logged
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #13 on: March 09, 2011, 05:31:25 PM »
Quote from: EllenW on March 09, 2011, 10:12:37 AM
Thank you all for the welcomes!  I am chronically angry at the treatment I receive incenter.  I requested (and my doctor backed me up) one of several techs who seem to me to be better than the others (they cause no pain inserting the needles) but the clinic manager refused adamantly and in fact gave me a tech that is extremely rough.  I can choose my own doctor in this country, my own representative, my own senator, my own husband, but not my own tech apparently.  This summer I am going on home hemodialysis when a caretaker is free to take the training with me.  Protests, anyone?

Good for you!!!  You will have so much more control because no, you can't choose your own tech.  On top of that, you'll probably feel much better, too.
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!