Patient Lifestyle Meetings sponsored by Renal Support Network

[okarol]

The next Patient Lifestyle Meeting of 2009 will be held in Davenport, Iowa on Sunday, July 12th.

Come and meet others who've been there, get informed and enjoy a complimentary kidney-friendly brunch. Sign up now for this event at no charge to patients and one guest.

More cities to come:

Patient Lifestyle Meetings

For the past several years, RSN has hosted Patient Lifestyle Meetings (PLM) across United States (at no charge), attended by people with chronic kidney disease (CKD) and their family members.

At these meetings, healthcare professionals and renal patients—on dialysis or with a kidney transplant—speak on life-enhancement and illness-related issues relevant to living a fulfilling life despite renal disease.

Any illness—and particularly CKD—is too demanding when you don’t have hope. If people with CKD do not believe they have a future, then the demands placed upon them by dialysis or by the immunosuppressant regimen will prove overwhelming. The goal of the patient lifestyle meeting series is to let patients know that their kidney problems are just that... problems that can be overcome with hope, an eye toward the future, a working knowledge of their disease, and a touch of common sense.

Patients are treated to a renal-friendly lunch or brunch and refreshments, and raffle prizes will be given away throughout the day. During the scheduled breaks, attendees are encouraged to visit information stations located throughout the venue where they can speak with experts on topics such as cooking renal-friendly foods, making traveling easier, re-entering the workforce, taking charge of one’s own health, and honing one’s skills as a caregiver.

Representatives from companies and associations involved in renal care will provide updates on the latest equipment, pharmaceuticals, and patient resources.

Click Here to Register Online! http://www.rsnhope.org/programs/Regional%20Meetings/Meeting_Registration.php

2009 Meetings

07/12/2009  Davenport, Iowa 
08/09/2009  Denver, Colorado
08/16/2009  Glendale, California
09/13/2009  Little Rock, Arkansas
10/10/2009  Salt Lake City, Utah
10/11/2009  West Chester, Ohio
10/17/2009  Seattle, Washington
11/15/2009  Indianapolis, Indiana
11/22/2009  Las Vegas, Nevada

2010 Meetings

02/21/2010  Anaheim, California
03/14/2010  San Diego, California
04/11/2010  Pittsburgh, Pennsylvania
05/23/2010  Albany, New York
06/13/2010  New York City, New York

[okarol]

Upcoming Patient Lifestyle Meetings

RSN has hosts Patient Lifestyle Meetings (PLM) across United States (at no charge), attended by people with chronic kidney disease (CKD) and their family members.


At these meetings, healthcare professionals and renal patients—on dialysis or with a kidney transplant—speak on life-enhancement and illness-related issues relevant to living a fulfilling life despite renal disease.
 

Click Here to Register Online! http://www.rsnhope.org/programs/Regional%20Meetings/Meeting_Registration.php

2009 Meetings

10/17/2009  Seattle, Washington
11/15/2009  Indianapolis, Indiana
11/22/2009  Las Vegas, Nevada

2010 Meetings

02/21/2010  Santa Ana, California
03/14/2010  San Diego, California
04/11/2010  Pittsburgh, Pennsylvania
05/23/2010  Albany, New York
06/13/2010  New York City, New York

[KICKSTART]

Just a little bit to far for me to come !

[okarol]

A reminder - meetings coming up
Click Here to Register Online! http://www.rsnhope.org/programs/Regional%20Meetings/Meeting_Registration.php
02/21/2010  Santa Ana, California
03/14/2010  San Diego, California
04/11/2010  Pittsburgh, Pennsylvania
05/23/2010  Albany, New York
06/13/2010  New York City, New York
(thanks YLGuy!)

[greco02]

Okarol, looking forward to meeting you at the San Diego meeting.

[kitkatz]

Going to Santa Ana. Big blonde in the I need a nap shirt! Hehehehe!  Maybe!

[okarol]

Okarol, looking forward to meeting you at the San Diego meeting.

Yes! I plan to be there!

[okarol]

Patient Lifestyle Meetings

For the past several years, RSN has hosted Patient Lifestyle Meetings (PLM) across United States (at no charge), attended by people with chronic kidney disease (CKD) and their family members.

At these meetings, healthcare professionals and renal patients—on dialysis or with a kidney transplant—speak on life-enhancement and illness-related issues relevant to living a fulfilling life despite renal disease.

Any illness—and particularly CKD—is too demanding when you don’t have hope. If people with CKD do not believe they have a future, then the demands placed upon them by dialysis or by the immunosuppressant regimen will prove overwhelming. The goal of the patient lifestyle meeting series is to let patients know that their kidney problems are just that... problems that can be overcome with hope, an eye toward the future, a working knowledge of their disease, and a touch of common sense.

Patients are treated to a renal-friendly lunch or brunch and refreshments, and raffle prizes will be given away throughout the day. During the scheduled breaks, attendees are encouraged to visit information stations located throughout the venue where they can speak with experts on topics such as cooking renal-friendly foods, making traveling easier, re-entering the workforce, taking charge of one’s own health, and honing one’s skills as a caregiver.

Representatives from companies and associations involved in renal care will provide updates on the latest equipment, pharmaceuticals, and patient resources.
Click Here to Register Online!

Upcoming Meetings
10/24/2010 Oklahoma City, OK
11/07/2010 Glendale, California
11/14/2010 Phoenix, Arizona
02/13/2011 Anaheim, California
03/06/2011 San Diego, California
03/20/2011 Lancaster, California
05/01/2011 Albany, New York

More info go to: http://www.rsnhope.info/programs/Regional%20Meetings/Pt_Lifestyle_Mtgs.php

[needlephobic]

I am planning on going here in Oklahoma. Its perfect right down the road from me about a mile 
can't wait

[MooseMom]

I have never never ever never ever never ever even once seen any kind of renal support group in my neck of the woods (Chicago area).  I just don't understand that.

[needlephobic]

I have never never ever never ever never ever even once seen any kind of renal support group in my neck of the woods (Chicago area).  I just don't understand that.

Try this site  www.NKFI.org they have alot going in  chicago

[okarol]

I have never never ever never ever never ever even once seen any kind of renal support group in my neck of the woods (Chicago area).  I just don't understand that.

RSN trains and hires kidney patients to organize and run the Patient Lifestyle Meetings, so if they don't have a contact in your area, you wouldn't have seen one. If you'd like to get involved contact Lori Hartwell at RSNHope.org.

[ChickenLittle56]

MM, I've been to several kidney patient meetings when I lived in Chicago. I had a nutritionist who would tell us about them. This was because my boss was the distributor for DairyDelicious. (I miss that stuff)

[needlephobic]

got 1 1/2 days to go before the Oklahoma City Patient Lifestyle Meeting. Any body from IHD in Oklahoma going to be there Sunday?

[Bill Peckham]

I have never never ever never ever never ever even once seen any kind of renal support group in my neck of the woods (Chicago area).  I just don't understand that.

RSN trains and hires kidney patients to organize and run the Patient Lifestyle Meetings, so if they don't have a contact in your area, you wouldn't have seen one. If you'd like to get involved contact Lori Hartwell at RSNHope.org.

Hires? In Seattle the three to date were done with volunteer labor but there is a play book to follow.

[RightSide]

Have they ever done one of these in New England?

I live in northern Massachusetts.  I guess I could drive to Albany NY, but what about folks who live in Maine or Vermont?

[needlephobic]

Just got back from the meeting had a blast alot of info at this meeting got alot of stuff to be read so to speak. I was asked by a ERSD Network13 Rep how i heard about todays meeting. I told her through IHD she got a kick out of that cause she never heard of the web site so she started to spread it around and i had other people ask me about our site They had a table that had the NxStage machine on display i looked it over got info and a dvd about it. Checked out the transplant info table. Talked to a ESRD Network 13 Coordinator Patient Rep and found out she is also very afraid of needles and wants to keep in touch with me so we can lean on each other about our phobia. So if you have not went to one of these meetings I say go it was fun food was good met alot of people going down the same road im going 

[okarol]

From the Renal Support Network:

Glendale Patient Lifestyle Meeting Nov. 7th, 2010

Come to the Patient Lifestyle Meeting in Glendale, California. Our meetings are a great way to learn more about kidney disease, find new resources, and meet others who've been there and have stories to share their experience, strength and hope.

Topics at the Glendale meeting will include:

    * The Principles of Surviving and Thriving with CKD
    * Navigating Insurance with ESRD
    * Finding Romance While on Dialysis
    * Coping with Kidney Disease: Patient Panel
    * Understanding Your Treatment Options and Planning Your Course


Buffet lunch will be available and patients plus one guest are admitted at no charge.

Location
Pacific Community Center
501 South Pacific Ave.
Glendale, California 91204
12:00pm - 4:30pm

To Register: http://www.rsnhope.org/programs/Regional%20Meetings/Meeting_Registration.php

[okarol]

  Yay HemoDoc!!

Thursday, March 10, 2011

RSN Palmdale CA Patient Lifestyle Meeting
By Peter Laird, MD

Renal Support Network is sponsoring a patient lifestyle meeting in Palmdale CA and I am fortunate to have the honor to host this gathering at Embassy Suites on Sunday March 20th.  Dr. Phil Tuso, MD will present survival strategies in his talk titled Kidney Disease Life Plan.  Dr. Tuso is a recent recipient of the Spirit of Nephrology Award by the Southern California National Kidney Foundation for his work with a non-profit organization dedicated to improving nutrition in dialysis patients that he founded.

NxStage Medical will also present a detailed overview of renal replacement options for CKD-5 patients, but the meeting will highlight presentations by Marissa and Tom Carr, called A day in the Life of Kidney Patients Finding Romance while on Dialysis.

Lastly, I will present my own experiences and choices for home hemodialysis as a physician turned patient, not a role reversal that I had ever anticipated when I first began my career in medicine.

Renal Support Network is a non-profit, patient run organization started in 1993 by Lori Hartwell who is now recovering from a recent living donor renal transplant.  Her last renal transplant lasted over 20 years and it is our prayers that this graft shall last as long or longer.

http://www.hemodoc.com/