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Author Topic: To My Real Family NOT my IHD family  (Read 3506 times)
KICKSTART
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In da House.

« on: February 20, 2011, 01:50:35 PM »

I hope you are proud of yourselves and never need anyones help and that you stay fit and healthy all your life. My sanity has been pushed to the edge tonight by my mother with her depression , her boredom, her illnesses that she wont see a doctor for, 12 months solid ive had all this.  Not only do you not acknowledge there is anything wrong with me , i even think you just think im lazy. Im screaming out for help from you tonight and one of you just told me to get lost , the other, well you just screened my calls and didnt bother ringing back. She is YOUR sister and you are not interested and you wont help me. I dont know what to do anymore, my head is going to explode with the stress. I so hope you are really proud of yourselves. I cant wait for the day that you need help.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
boswife
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us and fam easter 2013

« Reply #1 on: February 20, 2011, 02:21:09 PM »

  :(  hurts to even read.  Im glad you have us, but wish it were more.  Family is everything to me.  Im sorry yours........................... well sucks  :'(  It sad,  :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Darthvadar
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« Reply #2 on: February 20, 2011, 02:26:05 PM »

I SO know the feeling, KS....

At least you can chose your friends!...

I always say that good friends are God's apology for family!.....

Thinking of you!...

Power to the Pawed People!....

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
texasstyle
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« Reply #3 on: February 20, 2011, 02:53:08 PM »

Yell it-scream it- what ever you have to do right now and then do it again. Yell it-scream it..... Get it all out
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caregiver to husband using in-center dialysis 4 years
jbeany
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Cattitude

« Reply #4 on: February 20, 2011, 02:56:57 PM »

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

del
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del and willowtreewren meet

« Reply #5 on: February 20, 2011, 03:33:43 PM »

 :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
KICKSTART
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In da House.

« Reply #6 on: February 20, 2011, 04:36:52 PM »

I

I'M WORSE AT WHAT I DO BEST
AND FOR THIS GIFT I FEEL BLESSED
OUR LITTLE GROUP HAS ALWAYS BEEN
AND ALWAYS WILL BE TILL THE END

Kurt Cobain- Nirvana-Smells like teen spirit
Ive just spent the rest of tonight listening to him .R.I.P and Happy Birthday , he would have been 44 today.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
looneytunes
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Wishin' I was Fishin'

« Reply #7 on: February 20, 2011, 05:49:10 PM »

 :grouphug;  For you, KS. 
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"The key to being patient is having something to do in the meantime" AU
Rerun
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Going through life tied to a chair!

« Reply #8 on: February 20, 2011, 05:52:21 PM »

KS I wish you could block everyone out and just could take care of yourself.  But, your mother is your mother and you will not let her go and neither would I.  Blessings girl! 

       :cuddle;
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carol1987
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« Reply #9 on: February 20, 2011, 06:23:21 PM »

 :cuddle; :cuddle; So sorry Kickstart... hang in there..  I know as much as my family tried to understand they still thought I was being lazy....
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
paris
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« Reply #10 on: February 20, 2011, 07:12:25 PM »

I'm sorry Kickstart.  This makes me so sad.  Your mother has no idea of what a wonderful relationship she threw away. Mothers should care and love their children - no matter their age and they should always be there for them.   Sending you loving wishes - you are a very special person and I'm glad to know you.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jean
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« Reply #11 on: February 21, 2011, 12:46:39 AM »

That is so sad KS. I could never understand a Mother who puts herself before her children, no matter how old they are. Please, when they treat you like this, know that your IHD family loves you very much and you are so valuable to us.    :cuddle; :cuddle;
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One day at a time, thats all I can do.
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #12 on: February 21, 2011, 05:58:17 AM »

so sorry kickie that you have to deal with insensitive healthy people in your life...I always tell people, "live long enough and you will be sick too!" you are a fighter always have been and always will be...hang tough sistah!  :boxing;    :cuddle;

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Tracy
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Loved the Movie!

« Reply #13 on: February 21, 2011, 08:24:57 AM »

I don't know you, but I LOVE reading all your posts.  You are a pistol of a girl and I know you are a strong person!  Sometimes Moms really hurt us.  Not sure they realize how much or the damage they do.  You just smile.  You are a better person.  Hang in there!  :cuddle;
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9/1990 Found out I have Type 1 Diabetes
7/2008 Told I have GFR 30
2/2009 Kidney/Pancreas Transplant
5 days later, both removed due to massive rejection
Back on List
2/26/10 Fistula placed
3/11/10 Told GFR 9
5/14/10 Started in center Hemo
Waiting on another Transplant
Poppylicious
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WWW
« Reply #14 on: February 21, 2011, 09:51:24 AM »

Awww, kickkick.

*huggles*

If nobody else in the family will actually help you could you go and see your mum's doctor (or your own) and see if you can get some professional help for her?  Or, if not, could you just pop her in the car and drive her round to the person who's screening your calls and MAKE them help?!

Hope it gets sorted sweets. 
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
*kana*
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« Reply #15 on: February 21, 2011, 12:38:18 PM »

How very sad.....I do know how much this hurts because I have a sister that does this same thing to me.  The saddest part is she has the same kidney disease as me, but she was lucky to get a kidney before she even went on dialysis.

Sometimes people just like to ignore that you have a serious medical problem instead of facing it.  I guess they think it is too painful to face the fact that you are suffering, but then they make you hurt more because they refuse to acknowledge you! 

I know we aren't your real family and it isn't the same, but we care about you and know how you feel.   
« Last Edit: February 21, 2011, 12:40:01 PM by *kana* » Logged

PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
KarenInWA
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« Reply #16 on: February 21, 2011, 04:29:49 PM »

I'm having somewhat similar issues with my mother, who also needs professinal help.  I find that our IHD family is *wa-a-a-a-ay* more helpful than she is, as are my friends and other family members.  I will never be a parent, but I had always hoped that if I became one, I would be a much better parent than my mother.  She focuses on herself too much.  I like what Paris had to say.  She is to me the ultimate example of a fine, loving, caring, wonderful mother - and the same can be said for Karol, too!  Even though I'll never be a mom, I look at those 2 as heroes and examples of the kind of woman I aspire to. (Oh, and there are others, like monrein, and you too, KS!)

Hugs,
KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
billybags
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« Reply #17 on: February 22, 2011, 10:45:11 AM »

Sent you a PM. Look after your self. Don't let the buggers get you down.
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Brightsky69
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« Reply #18 on: February 22, 2011, 11:04:27 AM »

KS - sorry you have to deal with the stress of family.  :cuddle; I learned a long time ago that just because they are your mom or dad doesn't mean you have to like them or even love them.
There is no "law" that says you have to be there for a parent who does nothing to maintain a health relationship.  Just let go.... you'll be much happier for it.
I had to let go of my father because he was completely toxic to me. I haven't talked to him in a good 7 or 8 years......and I am much happier because of it. I do not miss the realtionship mainly because the relationship was so bad...there was nothing to miss.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
kellyt
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« Reply #19 on: February 22, 2011, 11:56:18 PM »

 :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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