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Author Topic: Offers of Donating a kidney  (Read 2701 times)
Cordelia
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« on: January 24, 2011, 02:09:48 PM »

Has anyone here had someone close to you, i.e. family member or friend who offered you a kidney when you went into renal failure and then after awhile backed out for any reason after offering the kidney to you- whether by their choice or by doctor's recommendation? If so, how did it make you feel?
« Last Edit: January 24, 2011, 02:12:22 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #1 on: January 24, 2011, 04:53:01 PM »

this happen to a close friend of mine. a stranger offered my friend's husband a kidney. he was on dialysis a year prior to the offer. as they were going through the transplant testing he kept having to jump through different hoops. ie-had to get both native kidneys out, some tumor in his throat removed, and then they told him he would have to get a pacemaker put in. that is where he drew the line and said "no once i get a new kidney my heart will recover." after 3 years of this they finally got to the point of surgery and the donor said , "sorry too much time had past." they were sad but just chalked it up to it wasn't God's will...he has since had a cadaveric transplant and is fine.
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Cordelia
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« Reply #2 on: January 24, 2011, 06:27:44 PM »

I'm really glad that he was able to get a transplant and is okay, thanks for sharing your story with me :grouphug;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Rerun
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Going through life tied to a chair!

« Reply #3 on: January 24, 2011, 07:38:18 PM »

No one in my family has ever offered, and two friends have but have not been tested.  I say to them "no, I don't want you to donate'....  But if I were them and really wanted to I would do it anyway to show I was serious.

Right?
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Riki
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« Reply #4 on: January 24, 2011, 07:40:58 PM »

A friend offered me a kidney before Christmas, but she hasn't said anything about it since.  She has bronchitis, so I'm thinking that she'd probably be denied as a donor anyway.

I asked my brother and he turned me down flat.  My mother thinks he'd still do it if I was really sick, but I don't think he would.  That's his choice.  I was mad at first, but there was no real point to dwelling on it.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
paul.karen
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« Reply #5 on: January 25, 2011, 07:36:13 AM »

I think it is easy to say you would donate a kidney.  Many people may say it thinking nothing will come of it.  They say it (maybe) to look good or look like a hero.  If they are serious they will bring it up again and again i would assume asking lots of questions.  If not serious after the inital i will donate they never bring it up again.

Everyone wants to be a hero or look like one.  But a real hero is the one who follows through with the offer.  And gets upset if for a medical or other reason cant donate.

We need more heros............
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
carla13
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« Reply #6 on: January 25, 2011, 03:10:23 PM »

This has been an issue that has come up more than once I believe. My brother offered but backed out pretty much after the first blood test. I think people often offer without thinking the process through thoroughly. As soon as the first tests start and they experience the dreadful reality of hospital treatments (that we know Oh too well!) they become scared.

It's a hard thing to have your cosy world interrupted by the sudden realisation of your own mortality and I think that a lot of people simpl ydon't want to deal with it. And who can blame them? If we had the option - wouldn't we?

Unfortunately we have to deal with it on  a daily basis... >:(
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Cordelia
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« Reply #7 on: January 25, 2011, 03:48:01 PM »

Omigod, I see what you all are saying, I very much agree with you all!  :grouphug; No one warned me what kind of a rollercoaster ride of emotions this would be!! ???
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Chris
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« Reply #8 on: January 25, 2011, 05:19:45 PM »

I have seen a post on here awhile back that has had this situation. When the sister finaaly agreed to do it, she put stipulations such as pay for the money she will loose off work, pay for a home health nurse, blah, blah, blah. I'm sure there have been other post about this topic, but are a few years old.
 
My dad flat out refused even before I thought about transplant and that's the clean version of what he said. Mother couldn't do to different blood type and paired donation was not available and I needed/wanted the pancreas too to kill 2 birds with one stone after I found out that was possible.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Cordelia
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« Reply #9 on: January 26, 2011, 06:42:21 AM »

I'm so sorry your Dad right flat out refused. :(
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Chris
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« Reply #10 on: January 26, 2011, 11:49:10 AM »

Eh,
We are not a normal family, not even one of those so called nuclear families.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Cordelia
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Posts: 2012


« Reply #11 on: January 26, 2011, 12:40:13 PM »

I know what you mean Chris, I understand completely
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
mike22
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« Reply #12 on: February 05, 2011, 06:40:50 PM »

I'm in a situation like this with my cousin. When i first told her I'm going back to dialysis, she quickly said she want to do it. I didnt ask or hint she want to. She even mention that she would bug me until i let her do it. So she called them and they told her they want her within a weight range. I guess i kinda gave up on her. But everytime  we talk she always bring it up and how she is losing weight. I saw her this summer and she did look slimmer. I've been talking to her recently and she still  talks about donate and her weight. They wanted her between 180 and 216 pounds. She says she is at 216 pounds but want to slim so more. So, i think she is serious. I do have one concern and it is her edema caused by a thyroid problem
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Chris
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« Reply #13 on: February 05, 2011, 07:23:35 PM »

The transplant center should be aware of that and address your and her concerns along with theirs.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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