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Author Topic: Narble From Kentucky  (Read 1795 times)
karrye
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If Life give you Limes, make lemonade instead.
« on: January 26, 2011, 10:59:19 AM »
Hello everyone!

As per say on the rules, I am introducing me and my family.  We are a small family of 3: My husband Lee, Me (karrye) and our daughter Leah.  We live in the crux of 3 mountains in the heart of the Appalachian Mountains.  Our home is the last home in a long hollow with no other neighbors but my mother-in-law and her bf that live next door. 

My husband was diagnosed with end stage kidney failure the last of November 2010 and started dialysis 6 weeks ago from today (1/26/2011).

I am a gal! :)  I am 46, my husband is 43 and our daughter is 16 going on 30.  She is a typical teenager.  My husband is/was manager of an off shoot medical transportation organization.  Whether he returns to work, we both don't know.

Anything else, just ask.
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Caregiver to husband:
Had surgery April 25, 2011 to bring fistula nearer to top of the skin.
Had staples removed from surgery on fistula May 3, 2011
Who started dialysis 1st week of December 2010.
Complete kidney failure November 30, 2010.
Surgery for 95% blockages in his right carotid and jugular February 22, 2011
Heart attack -- January 24, 2011
Chemotherapy -- September 2009 to April 2010
Colon Cancer -- April 2009
Colon removed --August 2009
Diagnosed with diabetes, Summer of 1996.
MooseMom
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« Reply #1 on: January 26, 2011, 11:59:18 AM »
It sounds like you live in such a lovely place!  Thank you for joining us.  I'm sorry to hear that your husband is having to dialyze.  How is he doing?  How are all of you coping with such a drastic change in your lives?  If you or anyone in your family have any questions or just need to vent a bit, that is what we are here for.  There are plenty of people here with all kinds of experiences.

Does your husband dialyze at home or in a clinic.  If he goes to a clinic, is there one fairly close by?  It sounds like you may live a ways from "civilization"! :rofl;

Good luck to you and know we are here to support you!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
karrye
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If Life give you Limes, make lemonade instead.
« Reply #2 on: January 26, 2011, 12:10:34 PM »
My husband is living on the River of Denial I do think and is not doing well.  TYVM for inquiring.  We are not dealing as much as coping with this huge change in our lifestyle.  Well I made a post in another column, so that should answer alot of questions! lol

He goes to our local clinic which is about 7 miles away and not hard to drive to as long as the weather is nice, but we are having tons of snow this winter and it has been very bad going back and forth.

Yes, I love where we live and can watch elk, deer, rabbits, squirrels, grouse, and tons of wildlife from my back door every day. :)
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Caregiver to husband:
Had surgery April 25, 2011 to bring fistula nearer to top of the skin.
Had staples removed from surgery on fistula May 3, 2011
Who started dialysis 1st week of December 2010.
Complete kidney failure November 30, 2010.
Surgery for 95% blockages in his right carotid and jugular February 22, 2011
Heart attack -- January 24, 2011
Chemotherapy -- September 2009 to April 2010
Colon Cancer -- April 2009
Colon removed --August 2009
Diagnosed with diabetes, Summer of 1996.
MooseMom
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« Reply #3 on: January 26, 2011, 12:28:55 PM »
Oh yes...I read your other post and yeah, that River of Denial can be a b*tch.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
looneytunes
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Wishin' I was Fishin'
« Reply #4 on: January 26, 2011, 06:48:43 PM »
Hi Karrye and welcome to the best forum on the web.  I hope things get a little better for you all and soon.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Rerun
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Going through life tied to a chair!
« Reply #5 on: January 27, 2011, 04:29:39 AM »
Hi Karrye and welcome to IHD.  I'm so glad you joined us.  I'll have to go read your other post.  Before I go I just want to welcome you and your family to our family.  I think you will find this site very very helpful.

Rerun, Moderator    :welcomesign;
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monrein
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Might as well smile
« Reply #6 on: January 27, 2011, 05:14:40 AM »
 :welcomesign; to IHD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!
« Reply #7 on: January 27, 2011, 07:21:05 AM »
Welcome to the group, Karrye.  Lots of good information and friends here.  Glad you joined!
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #8 on: January 27, 2011, 03:15:08 PM »
welcome!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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