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Author Topic: Could handle tis better if werent so alone  (Read 2901 times)
dyann
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« on: January 23, 2011, 10:25:39 PM »

I feel bad complaining as I knowthere are people who have been ding dialysis for much longer than me,
but I am tred and so alone yes I have my kids but they dont fill that void of a comitted relationship someone to share my fears with they are my kids and to young to have to throughthis with me.  I nolonger date, I dont meat people who would want a 47 yr old sick lady raising 3 kids.  I am so lonely :sos;
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Ang
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« Reply #1 on: January 24, 2011, 03:32:02 AM »

come on line here you'll always find someone to talk to :thumbup;
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live  life  to  the  full  and you won't  die  wondering
KICKSTART
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In da House.

« Reply #2 on: January 24, 2011, 05:12:41 AM »

Yeah i know exactly what place you are in now ! Only i dont even have kids for company. But then again i try and look at it from a different angle .... er , i dont have arguments, i dont have to wash his dirty clothes , i can eat what i want , i can watch what i want, i can buy that handbag or pair of shoes  :rofl; I can come and go as i please , i dont have to have a tug of war for the duvet ! What i really need is a handy man !!! I know this wont solve your problems but it might make you chuckle !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Tracy
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Loved the Movie!

« Reply #3 on: January 24, 2011, 12:10:31 PM »

Please don't lose hope.  I have been on D since May of last year and I am getting married next month.  There are some men out there who are so compassionate, they would be thrilled to know a beautiful 47 year old with 3 amazing kids!  I pray a lot and there is some positiveness that comes from it.  Hang in there girl!!

 :cuddle;
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9/1990 Found out I have Type 1 Diabetes
7/2008 Told I have GFR 30
2/2009 Kidney/Pancreas Transplant
5 days later, both removed due to massive rejection
Back on List
2/26/10 Fistula placed
3/11/10 Told GFR 9
5/14/10 Started in center Hemo
Waiting on another Transplant
st789
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« Reply #4 on: January 24, 2011, 01:17:35 PM »

Many of us here are in the same circumstance.  Focus on things that keep you moving every day. :grouphug;
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #5 on: January 24, 2011, 01:25:47 PM »

 Its terrible to feel alone....    stay strong.... come here for support  and  try to find some hobbies or activities that you like even if its simple as a walking group ... or online group... or ??    meeting people who share the same interest as you is the key..... 

stay strong...you  kids  need that.....   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
The Lone IT from HM
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« Reply #6 on: January 24, 2011, 03:16:58 PM »

Dyann, there is always time when one needs ADULT company.  Not knowing where you live, I couldn't tell you if there are any actual "get together" groups in your area.  However, you found us on the internet, look a bit deeper and see what you can find.  I have to say that I haven't checked to see if you gave an introduction, so I don't know how old your children are, so I don't know if you can just pickup and go visit.

First thing to do is stop thinking of your self as a 47 yr old sick lady.  You are a woman, and like all humans, you have some bagage...just like all of the rest of us (healthy or not).  Pick up the challenge and get back in the game, that is why we are here,  to help you with that.
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James C. Reed
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #7 on: January 24, 2011, 04:07:21 PM »

hang in there   :cuddle;

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
looneytunes
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Wishin' I was Fishin'

« Reply #8 on: January 24, 2011, 06:49:53 PM »

Dyann...sending you a cyberhug!   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
RightSide
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« Reply #9 on: January 24, 2011, 07:01:12 PM »

Dyann,

believe me, I empathize.  I'm in a worse boat.  Like you, I have no spouse.  But unlike you, I have no kids either.  So I know those feelings of loneliness.

We do have each other here.  And that's good because most healthy folks don't really understand what we dialysis patients put up with.

What I wouldn't give for a WELL-MUSCLED wife who can shovel 10 feet of 15 inch deep snow without getting tired!
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galvo
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« Reply #10 on: January 24, 2011, 09:47:00 PM »

And who preferably owns a liquor store, RightSide?
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Galvo
dyann
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« Reply #11 on: January 25, 2011, 05:15:05 AM »

Thank you everyone,  First I realized I must have been very tired as I spelled rather mis-spelled so many words last time I wrote.  I am trying to get out more  did look for a support group, but found out Indianapolis, IN doesnt really have what I am looking for.  but I will keep on fightng and see what happens
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del
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del and willowtreewren meet

« Reply #12 on: January 25, 2011, 06:03:05 AM »

 :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
peleroja
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I have 16 hats, all the same style!

« Reply #13 on: January 25, 2011, 07:44:47 AM »

You're never alone as long as you have a computer and can get to IHD.  We're always here for you.  Is there a renal support group near you?  Attending one might help you find some friends.  Hope things get better for you soon.
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Deanne
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« Reply #14 on: January 25, 2011, 09:58:26 AM »

I'm sorry you feel alone. I don't think you should be feel bad for coming here to tell us about it, though. That's why we're here! Do you have activities that interest you? If you read, can you join a book club? If you like to walk for exercise, are there any walking groups (like Volkswalks) near you? If you garden, are there any garden clubs? If you cook, can you volunteer at a soup kitchen? Anything to get you out of the house and participating in life. It might be hard to get started, but if you can make yourself do it, it really helps!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
noahvale
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« Reply #15 on: January 25, 2011, 01:37:11 PM »

^^
« Last Edit: September 16, 2015, 04:51:18 AM by noahvale » Logged
murf
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« Reply #16 on: January 25, 2011, 03:53:41 PM »

Everybody on dialysis at some point gets in the dumps. I think it is the constancy of the treatment. The ennui. It just never goes away. There are no holidays for dialysis patients. That's why IHD is so good. Great to vent and whinge about daily life to people exactly in your position. Empathy, not sympathy is important. Can't agree more about the suggestion to find a group such as a bridge club or a volunteer organization. My own outlet is a travel club where we all get on a bus and travel to a rural area for a look see and lunch at the local pub.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #17 on: January 25, 2011, 10:21:47 PM »

The Renal Support Network (same organization that hosts the Kidney Teen Prom OKarol has written about) might be able to offer you support.  They hold patient lifestyle meetings across the U.S. - with one planned sometime this year for Indianapolis. 

Check out the web site: http://www.rsnhope.org
and
call for info on their toll-free numbers:
(800) 579-1970 / HOPEline, for peer support and info
(866) 903-1728

RSN is a nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by CKD and strives to motivate and assist patients in developing their personal coping skills, special talents, and employability by educating and empowering them (and family members) to take control of the course and management of their disease.

RSN helps people with kidney disease become self-sufficient thru education, advocacy, and hope for a better tomorrow.

I feel bad complaining as I knowthere are people who have been ding dialysis for much longer than me,
but I am tred and so alone yes I have my kids but they dont fill that void of a comitted relationship someone to share my fears with they are my kids and to young to have to throughthis with me.  I nolonger date, I dont meat people who would want a 47 yr old sick lady raising 3 kids.  I am so lonely :sos;

Good advice. The HopeLine is really great because it's answered by other patients.

The Patient Lifestyle meetings coming up:
 
02/13/2011 Anaheim, California download flyer (PDF)
03/06/2011 San Diego, California
03/20/2011 Lancaster, California
05/01/2011 Albany, New York

Dates Pending, make sure you check back often for updates
Indianapolis, Indiana
Harlem, New York
Pittsburgh, Pennsylvania
Dallas, Texas

Looks like IN will have a meeting at some point. http://rsnhope.org/programs/Regional%20Meetings/Pt_Lifestyle_Mtgs.php
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #18 on: January 25, 2011, 11:03:53 PM »

Don't worry, you'll make it through. I don't date, but moved back in with parents who do not nor care to understand about what is going on, so in essense I guess it is a comparrison to kids. I learned to rely on myself, come here, and have pets that stick by when I do not feel good (no not waiting to eat me!).
 
The National Kidney Foundation of Indiana maybe of service to you too with events they put on that could allow you to network and find support groups also. There is another organization that maybe of service also, but I need to find the magnet. They serve Illinois, Indiana, and Ohio. There is another resource I have, but need to wait for the next newsletter. I can't remember the name, but Renal Outreach pops in my head. I am not even 95% sure if that is it, but remember the newsletter was mostly Illinois and Indiana based.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
dyann
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« Reply #19 on: January 26, 2011, 05:31:37 AM »

thank you everybody  I am going to look some of the dates up and call the kidney foundation.  thank you all for listening I so needed it. :shy;
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