still fighting in frustration

[sullidog]

Just a little update,
I saw my new surgteon last Tuesday and ironically, my access clotted the day I was to see him so good timing, He did a thrombolysis and finally the new surgeon gave me some answers as to why I have so much trouble with it, he said it's full of calcium deposits, he broke up some of them with a balloon with a razor blade but wasn't able to get them all. The deposits are still making it hard to canulate, they have to stick the upper part which will probably die sooner or later as well. He said that he hopes it will stay open longer this time but couldn't guarantee, I asked about a new access and he and my neph said do to my age we need to use this access as long as we can which means if it breaks try to repair it and I just need to deal with it. I am so tired of this, I'm thinking of refusing dialysis until something is done, but I know that's not good on my health. I just wish my doctors would listen to me and realize that I just need a new access. It's like a broken record and I'm fed up!
Troy

[okarol]

I'm with you, it sounds painful and gruesome to have them manipulating it so much. Have they considered a graft instead? What causes the calcium deposits? (Is that related to the parathyroid? Somewhere in the back of my brain I thought I read that...?)

[sullidog]

I already have a graft, I want a fistula. The weird thing is yes it's the parathyroid but my graft is the only place that has them, I don't have them anywhere else.

[okarol]

ohh sorry, I misunderstood.

[texasstyle]

I don't know exactly what's meant about the calcium deposits personally, but I do know how frustrated you must feel. I just wanted to let you know that.