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Author Topic: twirl.....  (Read 13009 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: December 04, 2009, 05:48:48 PM »
 :flower; Hey twirl,
How are you? How is you daughter and new baby Lily? Just thinking of you and missing you!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: December 04, 2009, 06:00:02 PM »
I miss ya too, Twirly girl.  :waving; :waving;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MIbarra
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Stopping to smell the bluebonnets
« Reply #2 on: December 04, 2009, 10:57:35 PM »
Ditto for me! Hope you're doing terrific Twirlie Girl!  :flower;
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Cadaver transplant April 29, 2007
Mimi
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For any who do not like me I use - prayer.
« Reply #3 on: December 04, 2009, 11:02:16 PM »
Hurry on back Twirl girl.  It's not the same without you, but I know how time consuming granbabies can be.

Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Sluff
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« Reply #4 on: December 06, 2009, 03:38:35 PM »
Miss my favorite stalker.
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Rerun
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Going through life tied to a chair!
« Reply #5 on: December 06, 2009, 03:44:11 PM »
Please check in Twirl-Girl!

                              :cheer:
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Chris
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« Reply #6 on: December 07, 2009, 12:14:24 AM »
I sent her one of the humorous Chhristmas cards from Shoebox. Gotta mak her laugh a little somehow  :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
dwcrawford
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Getting the heck out of town.
« Reply #7 on: December 07, 2009, 06:23:49 AM »
Ok, you all know I miss Twirl more than any of you so I'll talk  "out of school -- what does that mean?" now cause I know you are all worried.

Twirl promised she'd come back to IHD after Christmas.  Although she is dealing with a lot of issues and needs time to herself, she still sends me the funny, mostly G rated -  well sometimes G rated, picture e-mails.  Lets me know she is thinking more like the Twirl we know.

Anything to post, do it today, as tonight I'll copy the thread and send it to her (your Christmas wishes maybe?).
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Darthvadar
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« Reply #8 on: December 07, 2009, 08:12:52 AM »
Good idea, Dan....

Twirl, have a lovely Christmas...

May it be everything you want it to be...

See you after Christmas, God willing...

God bless...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #9 on: December 07, 2009, 09:16:46 AM »
His Majesty, King Leon sends royal love and kisses to his Twirl.

That is all.
God save the King!

p.s. I send love and hugs too.
Logged
06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
monrein
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Might as well smile
« Reply #10 on: December 07, 2009, 01:21:52 PM »
Miss seeing you here twirl.  I think about you often and hope you have a Merry Christmas and also that 2010 will be a good year for you and all your family.
Love and hugs
Gail
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #11 on: December 07, 2009, 03:04:58 PM »
I am sending Twirl a box of stuff this week. I hope she enjoys it!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jbeany
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Cattitude
« Reply #12 on: December 07, 2009, 03:10:25 PM »
Merry Christmas, twirly!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
willowtreewren
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My two beautifull granddaughters

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« Reply #13 on: December 07, 2009, 04:07:21 PM »
Have a wonderful, wonderful holiday, Twirl girl.

And hug your grandbabies.

 :grouphug; :grouphug;

Thinking of you.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #14 on: December 07, 2009, 05:39:18 PM »
Hey twirl!  I hope everything is good with you.  We look forward to your return to IHD!    :waving;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #15 on: December 07, 2009, 06:06:34 PM »
You are missed very much.  Hold that new sweet baby and enjoy her first Christmas.   Love you!   :santahat;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
cariad
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What's past is prologue
« Reply #16 on: December 07, 2009, 06:19:12 PM »
Happy holidays, Twirl!

I miss your humor, the way you would so often write exactly what I was thinking but didn't have the nerve and/or comedic timing to put into words. 

All best to you and your family in 2010.  :)

 :bestwishes;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
pelagia
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« Reply #17 on: December 07, 2009, 06:56:17 PM »

 :cheer: Twirl, Remember when Karol first gave us the cheerleader?  It always makes me think of you!  xo Linda :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Chris
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WWW
« Reply #18 on: December 07, 2009, 07:28:16 PM »
I can't think of anything smart :sir ken; to say twirl, Sorry.
Times like this always makes me wonder "If a duck passes gas mid-flight, would it fly faster?"

Hope you have a good Christmas Twirl :santahat; :rudolph; (my seeing eye reindeer)
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kristina
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« Reply #19 on: January 18, 2011, 11:42:54 AM »
Hello, twirl,

how are you?

I miss your humour.

Kind regards form Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
monrein
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Might as well smile
« Reply #20 on: January 18, 2011, 12:10:46 PM »
I wish that twirl would empty her mailbox so she could get new messages.  Happy New Year Twirl.   :flower;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #21 on: January 19, 2011, 08:18:09 PM »

I heard from her recently. She's ok, changing centers this week. Her son played in the Cotton Bowl.
I hope she posts again someday. I asked her to empty her PM box.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #22 on: January 20, 2011, 10:43:46 AM »
glad to hear everything is ok
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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