Sady, The Third Time was NOT a Charm

[peleroja]

Had my third PD surgery on Wednesday, and like the title says, it was a no go, so I'm stuck on hemo now.  I really loved my PD.  It was so much easier on me and my life than hemo.  Now I have to have yet another surgery to get a fistula.  What pisses me off the most is that this never should have happened.  Elsewhere I related my story how the doc thought I had a fungus and it turned out to be a bacteria instead, and he said we probably didn't need to remove the PD catheter.  All that pain and suffering for nothing.  {insert a whole boatload of bad words here}.  Life goes on, but I am beginning to wonder why!

[boswife]

Im so sad for you.Not that i think hemos bad, but because your the one who i felt was the leader, the one who would be the forever PD"er, and i felt very happy about that.  For me, it was almost like part of your identy... (i hope that doesnt feel weard to hear, cause mabie you dont want to be identified by any of your kidney issues, but i do mean it it a, {we're in this with you kind of thing} and only in a kindly way.  And i can see where your anger would come from.  The only time i feel anger is when i think something could have been prevented and it was thier error.  Anyway, i dont really know what to say except.......just mabie??...... there is a reason for this too, and its time for some hemo.  We are loving our NxStage, and i dont know if that is an option for you, but if it is, i hope you give it a go.And if not, we also loved our clinic, and felt they did a great job with compassion as well.   I wish you the very best sweet lady, and now, ..you can become an advocate for good hemo    ... It's really not so bad.    for the best for you

[paul.karen]

Oh i am SOOO sorry to read this.
You are one of the main reasons (and i thank you) for me doing PD.  I rarly read a bad thing about people on PD.  ANd i could tell you were very happy doing pd.  I know for me if i had to switch to hemo i would be in the dumps.  And i can see your not to happy yourself.  Worst part being it (stopping PD) had nothing to do with you.
I wish i had words of wisdom for you Peleroja.  Im sorry the doctor screwed this up for you.  For him it is an Im sorry.  For you it is a whole new way of life.....
I can kinda feel how you might be feeling.  All i can say is Im sorry for and with you.

 

[carol1987]

I am so sorry...

[willowtreewren]

 

[MooseMom]

Is there even a word for what you must be feeling?  To have had a doctor screw up like this...do you think he has any idea how much his mistake has impacted your life?

[Henry P Snicklesnorter]

.

[monrein]

Very sad news indeed Peleroja.   

[billybags]

peleroja, I am so sorry to hear you have had to go on hemo. Will it be possible to rest your peritoneum for a few weeks and have another go. it would really pis* me off if this happened. Have they checked your peritoneum to see if it is still viable at a later date. Husband had e-coli really bad, he went on to hemo and then 3 months later went and had a new catheter in.

[looneytunes]

PJ, I am so sorry to hear this.  You were the queen of PD here at IHD.  I also am hoping that there may be another go at it in your future.  But, in the meantime, hemo it has to be.   Sending you huge cyber-hugs.        

[peleroja]

Thanks, everyone, for your well wishes.  I think I forgot to mention that doc said there were just too many adhesions.  Two years ago, when I had my first peritonitis (nasty old pseudomonas) and they finally replaced the catheter, they had to keep me in the hospital for 5 days, at a 30 degree angle in bed, to keep the fluid at a certain level, because he had removed so many adhesions.  I had my fingers crossed this time, but those nasty old adhesions just kept on growing.  {sigh}

[okarol]

I am sorry to hear it - I was also inspired by your PD success.
 

[jbeany]

 

[Jenabcd]

I too, am so sorry!  Last week I had to have a tunneled catheter put in my neck, so that my incisions from gall bladder removal could heal. I am on TEMPORARY hemo.  I was petrified!  My social worker could tell I guess, cuz she asked me if I need an anti-depressant.  I might have been tempted to say yes if this had to be permanent.  How ARE you feeling?  I'm hoping to just get through a few weeks, until I can go back to PD,  while you're having to go that way permanently.  I truly am sorry.  Are you on a transplant list?

[Jean]

Awww, so sorry to hear of this. I know how happy you were on PD and it had worked so well for you.   

[kristina]

peleroja, I am so sorry to read this,
and I send you my best wishes for the future.

Good luck from Kristina. 

[galvo]

Sorry, pal.

[rsudock]

sorry I know the adjustment to hemo can be tough....give yourself time to adjust....

xo,
R

[peleroja]

To those who asked, no, I am not in the transplant list, and will not be placed on the transplant list until I weigh 160 or less (currently about 182).  I also have to have a kidney biopsy.  I'm reading all I can about fistulas, grafts, and trying to wrap my head around the whole mess.  Man, I loved my PD!

[LostWife]

I feel for you.  My husband loves PD and is terrified of hemo.  He had quite a few issues getting the catheter placed, and they were the doctors fault.  Or should I call him the obnoxious, know-it-all, over-inflated-ego "surgeon".  As his neph likes to tell us, these surgeons love to do transplants but something like a cath placement is beneath them and they don't care at all about it. 

He's doing PD and doing ok for now but I worry someday we'll have to switch.

[carla13]

Sorry to hear this Peleroja,

I loved PD too and it's annoying how you ended up here. Does your centre allow for home haemo? maybe this is something that might make the move easier?

In the meantime lots of love. Keep us posted!!

xx

[chook]

I caught up with your shift to haemo on another thread and had to find this one and read about what has happened to you. Gob smacked! So sorry to read about it all and just sending you many  and wishing you a smooth run into haemo. I guess I need to thank my neph for insisting I have a fistula created prior to PD as 'back-up' - things can go wrong so easily and through no fault of your own. I'd be devastated to have to make the change. I've no doubt you'll step up to the challenge. All the best.

[calypso]

Sorry to hear you can no longer do PD Peleroja. I know HD sounds daunting right now but if you just be patient with the transition it should go well for you. I hope your veins are in good shape. You best bet now is to find a very good surgeon to make your fistula, do everything they tell you in terms of exercising your arm and taking care of it. I wish you well. Not sure if you remember but I went through the same thing last year. I was on PD for 6 years, developed peritonitis. I was also told too many adhesions and sent on my way to hemo. I'm now in training to do home hemo. Busy busy busy but it's going well the fistula is working nicely. I hope your transition goes as well.

Good luck to you, don't despair. You can do this.