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Shaymon
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« on: January 05, 2011, 02:22:33 AM »

My name (on-line) is Shaymon but most people call me Shay, either is good for me. I have polycystic kidney disease and am  now at stage 5 CKD with a gfr of 9.9. which means that dialysis is just round the corner for me. I'm due to have a fistula created in a couple of weeks , then we see where it goes from here.

I stumbled across this site by accident and have been a regular visitor for several weeks now. It is really interesting to hear real life experiences and op ions rather than those being spoon fed by the professionals.

I wish you all well.


Shaymon
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galvo
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« Reply #1 on: January 05, 2011, 04:12:03 AM »
G'day Shay and  :welcomesign;.
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Galvo
looneytunes
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Wishin' I was Fishin'
« Reply #2 on: January 05, 2011, 04:14:23 AM »
Hi Shay and welcome to IHD.  Glad you stumbled in but sorry you had to join the CKD club.  Folks on here will certainly give you the scoop, advice, support or whatever you need.   I sure hope all goes well with your fistula and beginning dialysis and look forward to seeing you posting.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Desert Dancer
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« Reply #3 on: January 05, 2011, 05:20:19 AM »
Hi, Shay and  :welcomesign; to IHD... glad you found the place!
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
RichardMEL
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« Reply #4 on: January 05, 2011, 07:03:21 AM »
G'day Shay & Welcome to IHD. I also have a friend that calls herself Shay, short for Shereen (no not sure how that links up, but anyway)....

I'm sure it's a daunting time for you what with fistula surgery coming up and then the prospect of dialysis. Hopefully we can help you along the way. This place is great because the medicos can only tell you so much - with few and far exceptions none of them have been through this or really know what it is like, how you feel etc, so hopefully our experiences and combined wisdom (such as it is!) can help you get a better idea of what you're facing and what to expect, and hopefully to be able to face it with understanding and a sense that YOU are in control of your life and your treatments - and not them.

 :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Rerun
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Going through life tied to a chair!
« Reply #5 on: January 05, 2011, 07:41:54 PM »
Hi Shay and welcome to IHD.  I'm glad you joined.  It is a great place to get the truth and vent when you need to.    We are here for you.

Rerun, Moderator    :welcomesign;
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Bruno
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« Reply #6 on: January 05, 2011, 10:38:33 PM »
Hello Shay and my very best wishes to your about to be fistula. I'm sure you will find it a very useful ally.
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Poppylicious
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« Reply #7 on: January 06, 2011, 11:22:34 AM »
 :welcomesign; Shay; lovely to meet you!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Shaymon
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« Reply #8 on: January 12, 2011, 01:47:11 AM »

Thank you all for such a hearty welcome.

Shaymon
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peleroja
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I have 16 hats, all the same style!
« Reply #9 on: January 12, 2011, 07:45:04 AM »
Welcome to the group, Shay.  I've always said the professionals only know book learning.  They haven't been there, done that like we have.  Glad you joined!
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