What a mess today at D was !

[KICKSTART]

I struggle so much with hemo , even after all this time. As you know the lights are a major factor in my head exploding , and i could only do 3 hours before i really started throwing up and nearly collapsing. We solved this by giving me a small dose of morphine about an hour into treatment and it got me through  the fours hours and this has been working well for months. Well today was chaos , machines going faulty all over the place and despite asking for my morphine was put to the back of the queue as not important enough. They finally got round to giving it me and i only had an hour and a bit left to do , by that time my head had already started , next thing im throwing my guts up. The solution was to say , you not so well today ? we had better take you off , you are in no fit state to carry on. Shouldnt they have said no morphine today ..our mistake, look whats happened because of this, but thats too much to ask. So sat here one crappy feeling KS , just starting to recover and only 3 hours D today.

[boswife]

How horrobly awful!!  Not only the feeling horrable, but the responce you get...I feel so bad that above all, you have to deal with some of the crap you shouldnt have to.  im guessing theres no way for you to go for home hemo??    Its just awful that you have so much else to gothrough besides just the fact you have to do the dang D in the first place.. Im sorry.

[rsudock]

sorry KS what a bunch of jerks. I don't get it why isn't patient care the top priority?!?!? here's to hoping that next time they get their act together!!!

xo,
R

[Des]

sorry to hear, the two of us seem to be battling with our units , like crazy! 

They make it very clear that non-emergency stuff will be dealt with when and if they get time.


  

[Gandalf]

It must have been absolutely awful and scary, both in terms of the experience and in terms of the response, or should I say Non-Response.   I pray that your Nephrologist assists you to establish a longer-term a solution for you - a solution which you yourself can manage so that you are not forced into such a situation again, where you are dependent on people who are not recognising your situation.  I admire your resilience in having to deal with this for what seems to be quite a time, and yet remaining steadfast and going back!  My heart really goes out to you - I too find Hemo an enormous challenge, and every session feels like a century or more (Although, today I see that maybe I have little to complain about in terms of what you have had to go through).  Keeping you in my mind.

[Poppylicious]

Ack, Kickie!  You have some silly buggers at your dialysis unit.  Hope you woke up this morning feeling better.

*huggles*

[billybags]

I noticed the date  "13th " not very lucky for you, was it? I hope you are feeling better to-day, another thing I did not put you down for a collector of Dr Who stuff, well what do you know!

[Jean]

As another poster said, maybe your Dr. could give you the morphine in a pill form, so you could just take it when needed, instead of having to go thru all that crap. The term"customer service" has completely gone out the window.   

[KICKSTART]

Hi Jean , i dont get it IV to start with , i get it in syrup form !!! but i am told i cant have any because it is a controlled drug, yet i know of people who get morphine patches etc (not dialysis related) I am going to speak to my neph at my next appt ...whenever that comes around !

[Jean]

Dont delay Kickie, call your neph and get something. Gotta stop already with this pain.