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Author Topic: Extra meds  (Read 3199 times)
cariad
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What's past is prologue

« on: January 07, 2011, 09:28:30 AM »

The pharmacy down in Chicago just phoned. They wanted to know if they should ship me more Myfortic. I have been off Myfortic since September, and have mentioned this each and every time I've spoken to them since. This did not stop me receiving a massive bottle of Myfortic in November (to add to the two massive bottles I already had) and I suspect I still have not got through to them. Is this really so complicated?

Anyhow, I've heard UCSF has a meds closet where they will accept leftovers from patients to give to their financially struggling patients. I love this idea but somehow suspect Northwestern is not on board with it. When I checked in last March, it rather felt like a prison when Northwestern confiscated all my meds and had them looked over by their pharmacists. The nurse told me that some people have expired meds!!! as if this was obviously akin to inadvertently mixing up the rat poison with the sugar. The woman on the line told me I could give them back to the pharmacy but they would only be binned. These cost me nothing since I am still in my Medicare free-pass year, but I so hate to waste them. What do others do with extras if they are taken off an expensive specialty med with no indication that they will ever need it again?
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billybags
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« Reply #1 on: January 07, 2011, 10:16:47 AM »

cariad, we give them back to the pharmacy who bins them. What a waste.
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okarol
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« Reply #2 on: January 07, 2011, 10:50:29 AM »


I have heard of patients (discreetly) passing on meds to others who contact them.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BASSMAN
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« Reply #3 on: January 07, 2011, 04:04:44 PM »

If I were going to give my extra meds away,  I would remove the labels and all communication would be done in extreme privacy and I would have to  be absolutely sure that I knew who I was communicating with.  It is against  federal law.  A person caught doing so could be charged with "Distribution of a controlled dangerous substance".



« Last Edit: January 07, 2011, 04:06:24 PM by BASSMAN » Logged

Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
jbeany
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« Reply #4 on: January 07, 2011, 04:11:29 PM »

But yes, such a thing has occurred before - quietly, privately, PM'd.....     ;D

 
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okarol
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« Reply #5 on: January 07, 2011, 04:18:56 PM »


I don't think all meds fall into the illegal category, but I cannot find the exact law. I found this:
...No controlled substance in schedule II, which is a prescription drug as determined under the Federal Food, Drug, and Cosmetic Act (21 U.S.C. 301 et seq.), may be dispensed without the written prescription of a practitioner.
And this would apply to Class 2 drugs such as pain killers and sedatives.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #6 on: January 07, 2011, 04:23:49 PM »

Well, as the current IHD legal student - I say that leaves a big gap to squeeze through.  We all have written prescriptions for these!   >:D
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cariad
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« Reply #7 on: January 07, 2011, 04:43:00 PM »

Thanks for the replies!

As a perfectly law-abiding citizen, I would never suggest that a member PM me if they could use roughly four hundred 180mg tablets of Myfortic shipped to their door....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

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okarol
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« Reply #8 on: January 07, 2011, 04:57:18 PM »

Thanks for the replies!

As a perfectly law-abiding citizen, I would never suggest that a member PM me if they could use roughly four hundred 180mg tablets of Myfortic shipped to their door....

Yes, I also would not condone or encourage such activity.....  ;D
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #9 on: January 08, 2011, 01:37:50 AM »

I was actually asked to take my unused Renagel (when I was taken off it) to the renal ward and hand it over because they use them for patients. They were quite happy to accept it. I guess there are different rules for different things, or maybe different meds. Still I was happy that they wouldn't be binned and actually used - since I had over 100 tablets left!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
natnnnat
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« Reply #10 on: January 08, 2011, 05:54:59 AM »

 ;D  Richard always seems to live in this amazing other world where everythings seems to be done in a gentlemanly and reasonable way.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
bette1
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My dear daughter

« Reply #11 on: January 08, 2011, 06:09:23 AM »

I was able to leave my extra meds with a nurse who was able to give them to a patient in need.  I'm sure this was all under the table, so I won't name the center, but it wasn't U of Wisc.
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
cariad
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What's past is prologue

« Reply #12 on: January 08, 2011, 11:36:51 AM »

;D  Richard always seems to live in this amazing other world where everythings seems to be done in a gentlemanly and reasonable way.

 :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;

Oh my God, how I laughed at this! It is so true! Priceless observation, Nat!

Their differences are always settled by calm and respectful discussion, followed by sending each other cards, flowers and chocolates just because they all appreciate each other so much. I think I'll plan our next holiday to Melboune....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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