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Author Topic: Hello everyone!!  (Read 4969 times)
froggy
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« on: January 07, 2007, 12:35:27 PM »
Hello! My name is Sara I am 26 years old. I have been dealing with kidney failure since I was 15. I thought I had the flu, I hadn't been able to keep anything including water down for three days. That is when my mother decided it was time to take me to the hospital. There, I was told I had 7% kidney function a huge shock! From there I was taken by ambulance to a larger hospital. They stabilized me and told me I had two options dialysis or transplant. As young as I was we decided a transplant would be the best option.  I lived a year on just 7% function and then without hesitation my 18 year old brother told me he was donating his kidney to me and if I did not take him up on his offer he would give it to a stranger but he would appreciate it if I would take it. So on the first day of  my sophomore year of school (his senior) we went in for surgery. It was a success. Sadly two and a half months later my wonderful brother that had just saved my life was killed by a drunk driver >:( I miss him dearly. I had that kidney for about 6 yrs? Then I got a really bad stomach infection almost had to get a feeding tube and my kidney did not survive it so I started peritoneal dialysis and after 18 months of that my mother gave me her kidney! Right from the start before I left the hospital I had trouble with infection. It was a two year battle but they finally gained control of it however the damage was already there. I started feeling better and then found out I was pregnant. My first two trimesters went wonderful my kidney function continued to improve. It all came crashing down by the third my blood pressure was out of control and no medication was helping. Here it was July and my baby was not due until October but the doctor said they had no choice but to take her by c-section. She came in weighing at 2 pounds 1 ounce. She is now 5 and a half months old and weighs 9.5 pounds and is perfect. She has no health problems and has to be on a monitor only at night. Back to me--- I had to start on hemo after she was born. I have had a tech-off catheter placed and am waiting to start back on PD it will be easier not to have to leave my baby three times a week. I am very thankful fore my family they are extremely supportive. This website seems to be just the place I need right now :angel;
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saralea
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Sluff
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« Reply #1 on: January 07, 2007, 12:43:16 PM »
Hey Froggy,

Nice introduction, you've been through a lot and I'm sorry for the loss of your Brother. I'm sure that the loss of his kidney had to hurt you deeply.

On a brighter note; Welcome to IHD here you will find support and answers for almost anything regarding dyalysis.

Everyone here understands your trials and triumphs.

It's great to have you here.

Sluff, Moderator
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: January 07, 2007, 12:53:03 PM »
Hi Sara -
Given all you have been through you seem to have a good outlook and that will carry you through! And that baby must be a wonderful
addition to your life. I couldn't help but sob when I read about your brother. Our son is 18 and wants to donate to his sister, but we asked that
he finish high school first. Then a wonderful woman in Ohio offered to donate and the surgery is set for Jan. 16! Anyway, I know you miss him
but he will always be a part of your soul! And your sweet mom donating too! What a great family! I hope things continue to improve for you
and you can get the PD going. Best wishes to you! This site is a great source of support. How did you find it? Welcome and keep coming back!

~Karol  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ohio Buckeye
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« Reply #3 on: January 07, 2007, 02:28:51 PM »
hi Froggy (Sara)

Welcome to IHD family.
You sure have been through a lot.
So glad you got to be blessed with the little bundle of joy.
I'm sure there is a lot we can learn from you.
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If I must do this to live, I must strive to live
while I am doing this.
Black
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« Reply #4 on: January 07, 2007, 02:39:12 PM »
Wow!!  All of that by age 26!!  You have to be a very strong person to have survived with such a good attitude!

I'm so sorry about your brother -- I lost my baby brother in 2002 and I still miss him terribly.

Your baby is amazing -- tough like Mom and Grandmom.  ;D  Such a happy blessing for all of you I'm sure.  Can you post pics?

 :welcomesign; and I hope you like it here.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Jill D.
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« Reply #5 on: January 07, 2007, 03:12:08 PM »
 :welcomesign; Froggy! You have lived an amazing life already. My heart goes out to you about your brother. I agree with Black and Okarol..you have a wonderful outlook and I'm sure we will all be able to learn from you!
PS - I am from Michigan too!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
froggy
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« Reply #6 on: January 07, 2007, 03:33:00 PM »
Thank you everyone! I found this website doing a search. I will post pictures as soon as I can.
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saralea
http://ihatedialysis.com/
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #7 on: January 07, 2007, 03:35:18 PM »
Hi Froggy,

Welcome to IHD. Glad you found the site.

 :welcomesign;

Congratulations on your Baby, come on spill, girl, boy,name, etc, bet a lil cutie.

Anyway hope you find all the info you need, but not only that, we are here for you!

Love Tamara xxx ooo
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
jbeany
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Cattitude
« Reply #8 on: January 07, 2007, 05:11:50 PM »
Yup, we need baby pics!

Welcome to the site! 
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
froggy
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« Reply #9 on: January 07, 2007, 05:42:09 PM »
Ok a little more about the baby my daughter of course is adorable she spent three months in the hospital but she is very healthy and has a huge personality. I will post pict as soon as I can I have no way to download them yet but I am working on it! Her name is Olivia and she makes my life complete she is a true joy :thx;
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saralea
http://ihatedialysis.com/
Sluff
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« Reply #10 on: January 07, 2007, 05:53:00 PM »
Quote from: froggy on January 07, 2007, 05:42:09 PM
Ok a little more about the baby my daughter of course is adorable she spent three months in the hospital but she is very healthy and has a huge personality. I will post pict as soon as I can I have no way to download them yet but I am working on it! Her name is Olivia and she makes my life complete she is a true joy :thx;

This section is for introducing yourself.

When you post your picture or the babies picture you can post them here;  http://ihatedialysis.com/forum/index.php?topic=1227.0

Sluff, Moderator
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charee
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« Reply #11 on: January 07, 2007, 07:24:22 PM »
 :welcomesign; froggy Great to have you here..
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
angela515
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i am awesome.
« Reply #12 on: January 07, 2007, 07:31:15 PM »
 :welcomesign;

You have been through a lot and your a very strong woman! Your daughter will be very proud of you.. I have 2 beautiful kids I had after a transplant as well and am now on dialysis again but I wouldnt change a thing they are my world.

I look forward to chatting with you!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #13 on: January 07, 2007, 10:13:26 PM »
Welcome to our community.  As you have realized, this is just the place for you to be.  I am looking forward to hearing lots more from you as you become integrated into this wonderful community.
[Olivia is a very special name for me.  I had an older sister who was like a mother to me and her name was Olivia, so that is  my daughter's second name.  A few of my nieces are also named Olivia in memory of my sister.]
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jedimaster
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Stainboy is....alive!!!
« Reply #14 on: January 07, 2007, 10:34:01 PM »
 :welcomesign;
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Joe Paul
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« Reply #15 on: January 07, 2007, 10:49:12 PM »
Welcome froggy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
nextnoel
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« Reply #16 on: January 08, 2007, 10:11:04 AM »
Froggy, glad to have you here!  :welcomesign;  I'm sorry you've had to endure so much in your life, but I certainly am glad to hear about Olivia - what a blessing.

I'm looking forward to learning more about you and Olivia - what a beautiful name!

 :grouphug;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
mallory
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« Reply #17 on: January 08, 2007, 12:08:05 PM »
Welcome, Sara, I'm sorry for everything you've been through, but so glad to know that you have your little girl.  That's got to be wonderful for you.  Looking forward to your posts!  :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
goofynina
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He is the love of my life......
« Reply #18 on: January 08, 2007, 01:35:55 PM »
Hiya Froggy,  Welcome to Ihatedialysis.com.  I am also sorry for the loss of your brother.  I know you will enjoy yourself here and i hope you find the answers you are looking for, if you cant, just ask and we will be more than happy to help you.  :beer1;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
rimbo74
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My older brother and me (I'm on the right)
« Reply #19 on: January 08, 2007, 01:50:36 PM »
Welcome Froggy, I'm new to the board to so we'll see each other around!
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
Zach
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"Still crazy after all these years."
« Reply #20 on: January 09, 2007, 07:37:03 AM »
Hi Sara, it's really good to have you with us!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
aharris2
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Volcan Pacaya, Guatemala
« Reply #21 on: January 09, 2007, 12:26:22 PM »
hi Sara and  :welcomesign; enjoy ur stay in this wonderful site it's awesome n u can talk bout anything n everything.

 :beer1;

rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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« Reply #22 on: January 09, 2007, 09:54:16 PM »
 :welcomesign;  froggy, sorry you lost your brother and have been through so much already!  Glad you joined the community!
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