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Author Topic: Christmas apology  (Read 2832 times)
paris
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« on: December 25, 2010, 08:09:00 PM »

Dear Friends, please forgive my absence. Life kind of got overwhelming and I needed to re-group and move forward. I didn't expect to have so much emotional issues after the transplant, but I couldn't stop thinking and worrying about the donor's family during these holidays.  I felt very guilty and felt so much sorrow for them.  Not rational, but it was how I was feeling.  Plus, lots of family stuff going on---and there will always be problems. My 38 yr old DIL has to have a hysterectomy and it is sad for someone that age. She has been very ill for months. Her Mother starts chemo on the 3rd for agressive lymphoma, so that has her even more stressed.  A lost job in another part of the family---you know, just everyday stuff that is happening to everyone all the time.   We really feel that as a family, we are very fortunate and we are not complainers.  But, sometimes it is all a bit much. And I can't fix any of it.  Now that the holidays are winding down, I think my stress and frame of mind will be so much better.  I have pushed myself too much this month and am ready for some rest.   Again, I apologize for my time off.  I love you all and depend on your wisdom and kindness so much.   I hope your Christmas has been full of peace, calm and comfort.  I learned all about "the best gift ever" and new life and am full of gratitude, appreciation and joy. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #1 on: December 25, 2010, 08:57:40 PM »

Hi paris,
I have missed you immensely and am happy to see you post. It almost sounds like survivor guilt and that's a heavy burden to carry. You are such a sensitive soul that it does not surprise me, but I hope you will eventually be able to let go and enjoy the gift in the spirit it was given. The family will always grieve, but there must be some satisfaction knowing that the donor lives on through the organ's that were saved for the living. I hope someday you'll be able to meet them - I think it would be a bittersweet, but happy event, because they were lucky to have you as the recipient, and you were lucky too.
I hope you have a good year in 2011 and family situations improve. Sending you lots of love - wish I could hug you tight!
Love,
Karol  :kiss;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #2 on: December 25, 2010, 09:22:40 PM »

 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
galvo
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« Reply #3 on: December 25, 2010, 10:49:13 PM »

Have a great new year, paris!
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Galvo
Darthvadar
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« Reply #4 on: December 26, 2010, 02:23:56 AM »

Thank God you've posted, Liz...

I was getting seriously worried that I hadn't seen you, and that you hadn't replied to my messages... Was beginning to wonder if I'd offended you!....

Good that you're okay!....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
monrein
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Might as well smile

« Reply #5 on: December 26, 2010, 05:00:30 AM »

 :cuddle; to you Liz.  Life really isn't for the feint of heart and even the "normal" ups and downs can be so difficult sometimes.  I hope you can regain and enjoy some calm and of course I know that you will.  These drugs we take can make adolescence, pregnancy, menopause and other major hormonal upheavals look like minor events.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boswife
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us and fam easter 2013

« Reply #6 on: December 26, 2010, 06:39:38 AM »

aww liz,,, everything these lovely people have already said and some personal  :cuddle; from me...  Hopes for a blessed year  :pray; :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
phyl1215
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« Reply #7 on: December 26, 2010, 07:19:16 AM »

Bless your heart....it is amazing with all you have going on in your life and you still are so concerned about the donor family.  I'm sure knowing they have helped you and maybe others has helped them over Christmas.  Sit back and try to relax and enjoy the gift you have been given. 
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
jbeany
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Cattitude

« Reply #8 on: December 26, 2010, 10:22:54 AM »

 :grouphug;

Prednisone after my transplant made me weepy at holiday commercials, so it's no wonder you are having problems coping with real stress!  Sometimes all we can do is batten down the hatches and ride out the storm.  I hope your skies are clearing now.  :cuddle;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

del
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del and willowtreewren meet

« Reply #9 on: December 26, 2010, 12:25:18 PM »

 :cuddle; :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #10 on: December 26, 2010, 12:31:00 PM »

Life does have challenges.......    To a Great New Year   Paris... :grouphug;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
looneytunes
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Wishin' I was Fishin'

« Reply #11 on: December 26, 2010, 12:37:01 PM »

Paris, I've missed you and am glad to see you back.  Here's to a better 2011 for you and all the others who can relate...  :beer1;
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"The key to being patient is having something to do in the meantime" AU
rsudock
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« Reply #12 on: December 26, 2010, 06:17:24 PM »

paris the first couple of months with my transplant i was a crazy basket case. breaking down in sobs, throwing stuff, and yelling at my family members....pretty ugly stuff BUT it does get better! hang in there! thankfully my family didnt disown me. 


xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
paris
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« Reply #13 on: December 26, 2010, 07:54:32 PM »

Thank you    :cuddle;   I literally could feel all your hugs and it felt great.   I tend not to let everything out, but I may need to just start talking and letting the world know how I am feeling.   Christmas Eve, two of our ministers came to me after service. They both had visited the hospital and one even sat in on the meeting about what you can do, eat, etc.  He is always asking me if I use sanitizer, wear gloves in the yard.  And the other minister knows Beth very well. She is on the board at the Methodist Home for Children where Beth works.  She has taken a personal interest and watches over me.  Our church has over 4000 members so I am amazed they even know who I am.  Rev. Lisa is giving me support with the whole emotional thing and trying to convince me that I am worthy of this gift.  I am hoping that my thoughts will make more sense after the New Year begins.  I need to put the holidays behind and now is the time to write the donor's family a letter.      I wore myself out during the last 3 weeks and did too much.  I have a stack of books ready to read and plan to rest, read and rest some more.     Thank you all, again.   Sean is doing great.  Finally got the creatinine to 1.4!  It had stayed at 1.8 for so long and we are glad went down.  Life really is good--I feel so much better and I will get this emotional stuff figured out soon.   And yes, even with emotional junk, this whole thing is so worth it!  It is amazing to have a working kidney!!!!   Love and good wishes to each of you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
natnnnat
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« Reply #14 on: December 26, 2010, 10:03:19 PM »

Gregory had his prednisalone doses raised by large amounts when he was fighting off pneumonia in november and he was all over the shop.  ALL OVER IT.  So like the others have already said, the preddy alone won't be helping.  I am glad to hear you are planning to rest.  And you know how much you mean to the people here don't you.  So from that point of view, we definitely think you deserve that kidney.

 :grouphug;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Sunny
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Sunny

« Reply #15 on: December 26, 2010, 11:34:14 PM »

Paris, now it's time to get lots of rest after the busy holidays and I'm sorry about the stress going on for others in your family.
 Someone was destined to have that donor kidney of yours and that fact can't be changed, so I'm glad it was you. I have to be honest with you about the guilty feeling you may be having about your kidney. I had a living donor and I have that guilty feeling too. It can be a no win feeling sometimes for those of us with kidney transplants when we get to thinking about what it took for the person we received it from. All we can do is honor the gift by getting the most out of it we can when we can.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Jean
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« Reply #16 on: December 27, 2010, 01:03:11 AM »

Ahhhh Hormones. What would life be like without them? Dont feel guilty Paris, I bet the donors family would love to hear from you, and to know that a part of their loved one lives on and is so helping some other person. You are so deserving of this kidney Paris. I cant wait until the reunion when you and Richard show off your scars!!!!
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One day at a time, thats all I can do.
breezysummerday
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« Reply #17 on: December 27, 2010, 09:18:27 PM »



Lotsa cyber hugs Miss Paris..
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Chris
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« Reply #18 on: December 27, 2010, 09:55:10 PM »

I simply can say that No Apology Needed.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kristina
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« Reply #19 on: December 28, 2010, 03:17:31 AM »


Paris, I was wondering and I am glad to see you back.  No need to apologize.

You had huge changes in 2010 and I hope 2011 will be a good year for you and your family.

Best wishes from Kristina.

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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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« Reply #20 on: December 28, 2010, 02:51:13 PM »

 :flower;  Nice to see you  back.  May the new year bring you nothing but happiness and healthyness.
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May you live as long as you want and never want as long as you live.
paris
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« Reply #21 on: December 30, 2010, 08:03:23 PM »

Okarol, your statement about survivor guilt hit me like a ton of bricks.  Also, Darth, your words about your friend helped also.  Those two things have made a huge difference!  It is almost the New Year and I need to make peace with my thoughts and just live with gusto!  It hasn't been a huge depression thing, just feeling "guilty".   I think I have been overly tired with the holidays and that hasn't helped.  In a few days, the house will be "defrocked"  and I can't wait to get out all my projects and start being productive.  I am glad I finally said what was bothering me out loud--- or typed quietly!  You all always help.  You never know what small word or thought will help another ---  Thanks to all of you.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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