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stillrides
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« on: December 13, 2010, 01:31:43 PM »
I'm Tom, and I live in DC and I really really hate dialysis. Been going since May 2006 and although it is what it is, I can't stand it. On the other hand, other than dialysis I'm in good health - nothing ancillary yet. I don't make any concessions to the disease which drives some people crazy (mostly the dietitian) but I will not let myself be defined by what I have. I have two grown daughters that keep me going and require a lot of energy, I still work full time (great boss thankfully) and cool friends who don't treat me like an ill person. So hello all.
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Rerun
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Going through life tied to a chair!
« Reply #1 on: December 13, 2010, 02:14:47 PM »
Hi Tom, I like your attitude.  I live in the other Washington (state).  I've been to DC a few times and love the museums.  This is a great board so I hope you stay and read lots.  It is a good place to vent because we can relate where your friends have no idea what you are talking about.

So glad you found us.

Rerun, Moderator         :welcomesign;
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MooseMom
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« Reply #2 on: December 13, 2010, 02:17:37 PM »
Yay you!  It's astonishing to discover how many people very successfully manage chronic illness.  I'm glad you see yourself as more than a set of kidneys.  You are right..neither your disease nor your treatment define you.

Sometimes exactly what we need is to be around people who don't know the first thing about ESRD.  Sometimes we have to be reminded that there are other things more interesting to talk about. :waving; :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
looneytunes
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Wishin' I was Fishin'
« Reply #3 on: December 13, 2010, 06:27:21 PM »
Hi Tom!  Glad to have you here.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
cloud393
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« Reply #4 on: December 13, 2010, 06:45:03 PM »
Hello & welcome aboard.
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May you live as long as you want and never want as long as you live.
galvo
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« Reply #5 on: December 13, 2010, 07:53:12 PM »
G'day Tom and  :welcomesign;.
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Galvo
ChickenLittle56
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Chickenlittle and Maria
« Reply #6 on: December 13, 2010, 10:14:21 PM »
 :welcomesign;Tom to IHD, stay awhile and you'll learn much from our members.
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
Desert Dancer
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« Reply #7 on: December 14, 2010, 05:32:35 AM »
Hi, Tom and  :welcomesign; Hope you're staying warm out there in DC.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
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