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Barbinska
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« on: December 03, 2010, 06:54:44 AM »
My name is Barb and I have been on hemo dialysis for about 1 year and half.  I currently dialyzes in center, but am interested in starting in home dialysis as soon as I am freed next month from my HMO insurance that does not cover it.  I am also a cancer patient diagnosed with Multiple Myeloma 10 years ago.  The beast worked away at my kidneys all those years until they finally gave out.  My goal is to achieve what they call a "complete response" so that I may be eligible for a kidney transplant.  My social worker at the kidney center referred me to this website so here I am looking to glean from others and hopefully contribute as well.
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MooseMom
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« Reply #1 on: December 03, 2010, 08:12:28 AM »
Thank goodness for your social worker!  S/he knows what s/he's doing!  There are so many people here who are in all different stages of this process; a wealth of information and compassion and understanding is at your disposal here on IHD.  Welcome to our community!

I have never heard the phrase "complete response"...what does that mean?  How long does that take?  When might you be eligible for pre-transplant evaluation?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: December 03, 2010, 01:10:07 PM »
Hi, Barbinska.

There are many folks here doing home hemo. I am a care partner to my husband and we have been using NxStage for over 2 years.

I hope you are able to make that switch.  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!
« Reply #3 on: December 03, 2010, 02:29:48 PM »
Barb, welcome to IHD.  I guess there is at least one smart Social Worker out there.  Yours!  He/She referred you to this site!   :thumbup;

You will get a lot of support from here and you don't have to pay a dime.  Just come here where we understand.

Rerun, Moderator        :welcomesign;
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kellyt
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« Reply #4 on: December 03, 2010, 06:13:11 PM »
 :waving;   Welcome!   I hope you can get on home hemo very soon.  Those here who do it really seem to like it.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
looneytunes
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Wishin' I was Fishin'
« Reply #5 on: December 04, 2010, 11:21:55 AM »
Hi Barb, glad to have you join IHD.   :welcomesign;   I also am caregiver to my husband and we currently do home hemo with NxStage, which he likes a lot better than in-center.  Hope to see you posting. 
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"The key to being patient is having something to do in the meantime" AU
Nancy
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One of many caregivers to my Dad.
« Reply #6 on: December 04, 2010, 08:15:51 PM »
hi!
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Nancy
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« Reply #7 on: December 11, 2010, 05:26:06 PM »
Hi, Barb and  :welcomesign;  I think you're really going to love home hemo; it's a world's difference from in-center.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
boswife
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us and fam easter 2013
« Reply #8 on: December 11, 2010, 07:20:42 PM »
Welcome to a great place  :2thumbsup;  So glad you were guided here..  Hubby and i are in the beginning stages for home hemo as well.. NxStage..  Im so glad i had this place to come to for advice.  I know i couldnt have done it alone!  all the best to you
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
galvo
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« Reply #9 on: December 11, 2010, 11:03:59 PM »
G'day barb and :welcomesign;.
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Galvo
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #10 on: December 12, 2010, 12:21:38 AM »
Hello Barb! Way to go for being such a fighter!!  :boxing;  You have overcome so much, your strength will be a great addition to the forum.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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