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Author Topic: Hey I'm Ash  (Read 2108 times)
ashwee
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« on: December 11, 2010, 06:17:05 PM »
Hi I'm Ash,

I am the primary carer for my mum, who has been on dialysis for 2 months.
I'm sitting here at the moment while my mum prepares for yet another hospital admission. (the 6th one this year).
Her fistula (done Aug 2nd this year) has collapsed and she is going in to have a permcath implanted.

Her Kidney failure has come as a bit of a shock to me (i found out may this year), but i think she has known for some time.

i found this forum while researching the permcath as i wasn't there when she was told the news last friday.

I've read many posts and i find it amazing to have something here where people can talk, both dialysis patients and carers. Thank you!

i have much more to say but my mums out of the shower now and have to hit the road to get her to the hospital.

thanks Ash...
p.s i will apologise for any spelling, i'm from Australia...
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"When you get to the end of your rope, tie a knot in it and hang on" - Eleanor Roosevelt
boswife
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us and fam easter 2013
« Reply #1 on: December 11, 2010, 06:42:11 PM »
a big welcome to you Ash  :welcomesign;  You truly have found a place you will want to  come back too.  Lots of support for patient and caregiver..  I wish you well for todays hospital visit.  It's so hard to go through this alone so im really glad you found us here.  Let us know how it goes..  prayers for you and mum.. :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
chook
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Born to be a Granma!
« Reply #2 on: December 11, 2010, 06:45:54 PM »
 :welcomesign; Ash from a fellow Aussie (I'm in western NSW)
Sorry that you had to find IHD BUT you will gain lots of support from here. There are plenty of carers that post regularly.
And sorry to hear that your Mum is not travelling too well.  :cuddle; for both you and your Mum, as I can only imagine how hard this all must be for both of you.
Looking forward to more posts from you - when you can find the time.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Rerun
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Going through life tied to a chair!
« Reply #3 on: December 11, 2010, 07:37:05 PM »
Hi Ash, and welcome to IHD.  I'm so glad you found us.  Yes, we can be a lot of help to you and your Mom Mum.....    Just keep coming here and read and ask questions.  It may have already been asked, but we get new people all the time.

Rerun, Moderator          :welcomesign;
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RichardMEL
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« Reply #4 on: December 11, 2010, 09:07:33 PM »
G'day Ash and welcome!!! DOn't worry there are enough aussies here that you'll fit in fine!  :ausflag;

Your mum has had a bit of a rude introduction to dialysis it seems but it's great that she has someone like you looking out for her - thank you!!! It's so good of you to come here and try and find out more info to try and help her - I am sure she appreciates that.

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
looneytunes
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Wishin' I was Fishin'
« Reply #5 on: December 11, 2010, 09:45:16 PM »
Hey Ash.  Glad to have you here!   :welcomesign;

I'm also a caregiver to my hubby who has been on Dialysis for a little over 3 years.  It was also a surprise to us.  We also have been through the failed fistula routine recently and now he has a graft that we will start using this next week.  Catheters are the worst for getting infections so PLEASE have your mum be overly cautious in taking care of it. 

Wishing both of you the best and bless you for being there for your mother.

 
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"The key to being patient is having something to do in the meantime" AU
galvo
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« Reply #6 on: December 11, 2010, 11:02:26 PM »
G'day Ash and :welcomesign;. Aussies can spell, mate.
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Galvo
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will of the healthy makes up the fate of the sick.
« Reply #7 on: December 12, 2010, 12:18:18 AM »
Hello Ash!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
monrein
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Might as well smile
« Reply #8 on: December 12, 2010, 07:19:27 AM »
 :welcomesign; to IHD, Ash.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Desert Dancer
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« Reply #9 on: December 12, 2010, 09:28:26 AM »
Hi, Ash!  :welcomesign; to IHD... sorry you have a reason to be here, but I'm glad you found us!
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Jean
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« Reply #10 on: December 12, 2010, 04:31:47 PM »
Hi Ash and   :welcomesign;  to IHD. Glad you found this site, it is going to be so helpful for you. And Mum too.
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One day at a time, thats all I can do.
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