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Author Topic: Rejection or BK virus  (Read 3045 times)
topazbeauty
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« on: December 21, 2010, 05:22:13 PM »
Got bad news today. I went in for my normal checkup today and my creatinine was 2.6! A few weeks ago it was at 1. They did an ultra sound to make sure that there wasn't an obstruction and there wasn't so they did a biopsy. A few hours later they came back that I either am in rejection or I have a BK virus infection. I have to wait until tomorrow to find out the results of the biopsy stain to see what the verdict is.

But after speaking a little to the doctors and doing my own research (I'm a med student) it looks like 1-5% of transplant recipients come down with a BK virus infection and of that group 50% end up losing the transplant. So it sounds counter intuitive but at this point my doctors and I are all hoping for rejection?!

I feel like I have no control over my life and I hate it.  :banghead;

I needed to vent.
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
natnnnat
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« Reply #1 on: December 21, 2010, 06:14:09 PM »
Gah!!! Hoping for a good outcome.  Maybe its just a glitch!   ???
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Chris
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« Reply #2 on: December 21, 2010, 07:01:23 PM »
Sometimes it's bad to research to much, but hoping you wil pull through. I am checked for the BK every 2 weeks since switching meds, but was checked once a month previously. I forgot what I read about the BK vius before my transplant 10 years ago, but hope they made some progress to treat it. I'll have to take out the my nurses guide o transplantation to read about it again.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
topazbeauty
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« Reply #3 on: December 22, 2010, 06:32:18 PM »
It's rejection! Ahhh! I'm in the hospital. Not fun during the holidays :(
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
Chris
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« Reply #4 on: December 22, 2010, 06:41:59 PM »
True, but hopefully they can control the rejection with the use of the other medications so the kidney can keep goion.
 
Sort of a catch 22 on which is better right now for diagnosis, rejection good compared to BK virus (if rejection is controlled in time)
 
Good Luck
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #5 on: December 22, 2010, 10:18:41 PM »
Hang in there! Let's reverse that rejection!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
okarol
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« Reply #6 on: December 22, 2010, 11:53:09 PM »
Thanks for saying hi on facebook today. I know how frightening it was for Jenna last January when she was going through rejection rescue. It sounds like you've got a good team, acting quickly, and that's what you want. I hope things stabilize and you can get home soon. Sending you lots of {{BIG HUGS}} - let me know if you need any help.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #7 on: December 23, 2010, 12:07:38 AM »
I pray things work out, and that your team of Docs can stop the rejection. Hang in there   :angel;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
edersham
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« Reply #8 on: December 23, 2010, 05:00:08 AM »
Here's hoping you improve quickly and can still enjoy some of the holidays. It's a good reminder for us recipients of how quickly those bumps in  the road can become another mountain to climb but there are a lot of good people here praying for you so keep us updated as possible.

Best wishes

Ed
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paris
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« Reply #9 on: December 27, 2010, 08:11:52 PM »
Saying prayers for good meds to help with rejection.   It sounds like you have great doctors and they are doing what they need to do.  Keep us posted because everyone here worries and cares about you.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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