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Author Topic: Dodging a bullet...  (Read 2338 times)
mm2010
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Be the person your dog thinks you are.

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« on: November 06, 2010, 07:29:41 PM »

Hi Everyone,
Life can fire a few near misses our way, and if we are lucky, we manage to see the shot coming, and we get out of the way.

Here is my story...
47 years old in 2010, my name is Mark.

A few years ago I was denied life insurance from a test result of high cholesterol.  Didn't think much of it, but my wife did, and began restricting my diet.  A couple of years later, I got a skin infection, so back to the doctor to see if they had some cream to treat my skin issue.  While I was there, they took some urine and blood and so it began...

High protein levels, high cholesterol, and the GP says, "hmmmmmm, I think we should do some more tests" and I agreed.  With a smile, she says, "we need to have a look at your bladder, can I schedule an appointment for you?"  Sure I said, with no idea how they go about looking at a bladder.  Can you say cystoscopy?  The results, negative, so next is the biopsy to see if we can get a diagnosis.  A few days later the Neph doctor says "you have IGA".  I still cannot say it or spell it.

Today its 1 and 1/2 years after diagnosis, and my latest test results sparked a very uncomfortable conversation with the Neph Doctor,  "do you have brothers or sisters"?   The answer, no.  So its a lucky man who sees the bullet coming, and who is lucky enough to be forwarned of the challenges to come.  How fortunate I am to have learned at this early stage, ( kidneys are still working but in decline ) that I have options and time to adapt to the changes to come.

And, how fortunate I am to have found such a wonderful place, where positive people can come together to create such a wonderful support group.  I am a better person to have met you all, and your strength is an inspiration to those of us who are frightened to death of things unknown.

Sincerely,
Mark
« Last Edit: November 07, 2010, 04:24:48 AM by mm2010 » Logged

Mark ( aka mm2010 ) Sunderland Ontario, Canada
2009-10-26:Diagnosed with IgA nephropathy.
2010-12-10:Started high doses of Prednisone, 70mg daily.
2011-01-06:Prednisone reduced to 35 mg every other day, Myfortic 720mg daily. eGFR 40.
MOTD:A house is not a home without a dog.
cariad
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What's past is prologue

« Reply #1 on: November 06, 2010, 07:43:43 PM »

Welcome, Mark.  :welcomesign;

So delighted that you've found us.

I see you've had the transplant discussion. That is certainly one option in your situation, and of course brothers and sisters are not the only source of spare kidneys. Do you have anyone in your life who has expressed interest? If your nephrologist is discussing transplant, and it is a path you wish to go down, you would do well to start the listing process now.

I absolutely love the pic. What's you friend's name?

I look forward to getting to know you better. Please make yourself at home and jump right into the discussions.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
boswife
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us and fam easter 2013

« Reply #2 on: November 06, 2010, 08:24:37 PM »

 :welcomesign;  and youbetcha its a great place you've found  ;)  And im so glad you did.  I cant even emagine going through all this without all we've learned here.  And what a great picture is right!!  So nice to see who we're talking too   :waving;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sax-O-Trix
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« Reply #3 on: November 06, 2010, 09:45:15 PM »

 :welcomesign;
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Preemptive transplant recipient, living donor (brother)- March 2011
MooseMom
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« Reply #4 on: November 06, 2010, 09:57:57 PM »

Awwwww....look at that faaaace!  Awwwwwww!  A dog and his human!

I'm very glad you found us.  I know we can help you.  Now is the time to start building your support team.  You have your doctor and you have us and you have your dog, so you are off to a great start!

Are you on meds now for high cholesterol and the other things that go with kidney disease?  Any talk about a renal diet?  What's your treatment plan for right now?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #5 on: November 07, 2010, 12:31:58 AM »

G'day Mark and  :welcomesign;. You've got a great mate there in the photo!
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Galvo
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Going through life tied to a chair!

« Reply #6 on: November 07, 2010, 01:05:18 AM »

Mark, How lucky you are to have such a fine dog.  I'm glad you found us and I hope you come here often

Rerun, Moderator           :welcomesign;
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Poppylicious
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« Reply #7 on: November 07, 2010, 03:33:23 AM »

 :welcomesign; Mark!  Love the photo!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Brightsky69
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« Reply #8 on: November 07, 2010, 06:06:29 AM »

Hi Mark,

I have IGA too. Love your puppy dog....cute.  :welcomesign;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
st789
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« Reply #9 on: November 07, 2010, 07:02:18 AM »

Welcome, we r here to support one another.
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Jean
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« Reply #10 on: November 07, 2010, 01:52:43 PM »

Welcome Mark and I am so glad you found us. I, like you, am still waiting around to go on D. I am, however, very willing to wait as I am sure you are too. Lovely little puppy you have there. What is his /her name?
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One day at a time, thats all I can do.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: November 09, 2010, 06:50:32 PM »

Welcome to our community!  That was a great intro.  I tend to look at intros through Epoman's eyes.  He liked people to give a detailed intro. When you think of it, we are not seeing each other face to face - it is only our words  which bind us together (except for those who went to the fantastic reunions that we have had!).  I am glad that you found us.  I myself found IHD just a month before I started dialysis and it is impossible to quantify the help that I received (and still receive).  This is a genuine family  :grouphug;  You task is to keep reading and keep posting so that we will know how you are doing.
Lovely pict.  We also have a thread in the IHD family section where people post their picts (expecting to see some more of yours)



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Desert Dancer
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« Reply #12 on: November 11, 2010, 11:25:34 AM »

Hi, Mark, and  :welcomesign;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
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