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Author Topic: I think I can do this now.  (Read 2852 times)
SkyDancer
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« on: October 29, 2010, 03:50:38 PM »

Hi everyone,
               I know it's been awhile since I've been on here.I have some news for everyone.I tried to do this sooner,but I can't type without crying.

 My mom passed away earlier this month.It was totally unexpected,and it's been completely devastating.She had been in the hospital for awhile with a staph infection in her graft.They removed a section of her graft and we thought everything was ok.She fought the good fight and had to put up with a lot of crap from some people,but she made it on dialysis for 4 years.I love her with all my heart and will miss her always.
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MooseMom
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« Reply #1 on: October 29, 2010, 04:05:49 PM »

I lost my mom in July; it was unexpected, too.  I am so sorry; I can well imagine how you are feeling, and there are few sadder things in the world than losing your mom.  I am glad you've posted so that we can give you our sincerest condolences. :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
boswife
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us and fam easter 2013

« Reply #2 on: October 29, 2010, 04:13:10 PM »

This breakes my heart.. I too am fresh with this.  I lost my mom just this november, unexpected.  It hurts so much and im so sorry to hear that others are suffering this loss.  I send prayers for peace with it, and comfort.  Im so sorry. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
kitkatz
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« Reply #3 on: October 29, 2010, 05:13:08 PM »

I am sooo sorry for your mother and for you having to cope with her loss.

I had a MRSA infection in my graft in April, so her story hits me where I live.  I am lucky, my surgeon took the entire graft out and hit me for nine days with some serious antibiotics to clear the MRSA infection.  I have had anew fistula put in since and they are very careful to hit me with antibiotics whenever the work on me.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #4 on: October 29, 2010, 09:50:59 PM »

 :'( Oh SkyDancer, I am so sorry to hear this. You and your mom had such a special relationship. You took great care of her and even though the dialysis was tough on her, she was lucky to have your help and devotion. Sending you hugs, so sorry about your loss.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #5 on: October 29, 2010, 10:31:07 PM »

My condolences.
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Galvo
Jean
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« Reply #6 on: October 30, 2010, 12:47:13 AM »

So very to hear of your loss. My Mom died about 50 years ago and I still miss her.   :grouphug;
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One day at a time, thats all I can do.
natnnnat
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« Reply #7 on: October 30, 2010, 05:15:44 AM »

I am so sorry to hear this skydancer.  Hugs from here too   I only dreamt of mum the other day, and woke up troubled.  Mothers are hard to lose but we all have to do it I guess.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
SkyDancer
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« Reply #8 on: October 30, 2010, 03:24:48 PM »

Thank you all for your thoughts and prayers.I know it's going to take probably the rest of my life to get through my grief.It's been especially hard because I was her caregiver and couldn't do anything to help her in the end.I hope that all will understand if I don't post or return here very often,it's just too hard.

Thank you all for your support and kindness since I joined IHD.You have all been a big help with alot of dialysis issues for me and my mom.Also,I've had a few laughs and tears with you all.Take care and God Bless everyone! I hope that everyone stays healthy and happy even if you do have to go through or care for someone on dialysis. :grouphug;
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okarol
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« Reply #9 on: October 31, 2010, 12:30:14 PM »

 :cuddle; Come back anytime SkyDancer, you're part of the family.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #10 on: October 31, 2010, 09:05:17 PM »

 :grouphug;  I just read this and am so sorry for your loss SkyDancer. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Scarlet
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Can someone wake me up please

« Reply #11 on: November 01, 2010, 07:38:48 AM »

Oh Skydancer, my heart is with you as I also know what you are feeling. I lost my mom three and a half years ago and I is still hard.  I am not sure that youever really get over losing your mom, but know that she will always be with you and that the love that you shared is the best love int he world.

 Remember all that was good and try and forget all of the hard times, remember her laugh and let that guide you thought the next few months.
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Poppylicious
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« Reply #12 on: November 02, 2010, 10:56:18 AM »

So, so sorry for your loss.

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
billybags
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« Reply #13 on: November 05, 2010, 07:48:53 AM »

Skydancer. I am so sorry to hear this. Will be thinking about you.
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Joe Paul
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« Reply #14 on: November 09, 2010, 07:38:29 PM »

I used to hear MOM calling me, for the longest time after she passed. I pray you stay strong, things will be better one day. For me, when I reunite with her when its my time to answer her call...... There is no love dearer then the love of, and , for MOM.  Lots of warm wishes, chin up   :pray;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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