young and new to dialysis

[rsudock]

Hello All!!!
 I have been reading your posts about working and dialysis as a guest and finally decided to join the IHD community! I have dealt with ESRD all my life. I have another sibling who has the same disease as well. I started dialysis this July for the first time ever. It has been very overwhelming and sad. I knew it was inevitable but it still is an adjustment. I had a transplant for ten years and was able to get through school and earn a masters degree in Education. During my ten years of health I had numerous operation and procedures....feels like I have been a pin cushion all my life!! Usually I am strong and rise above it but the shock of dialysis has been hard to manage. I am so honored to be part of a caring community with such knowledgeable folks!!

xo,
R

[Jean]

And, we are grateful you are here. Lots of people here who can help and answer your questions here, altho I imagine you could teach us a lot too. And, BTW,    to IHD.

[peleroja]

Welcome to the group.  Lots of good information and friends here.  Glad you joined!

[Poppylicious]

  R!

Lovely to have you with us.

 

[boswife]

  sweet heart.. Geesh, im amazed at what people go through at such a young age.  Im so glad you got to have those years to grow and learn, and am so sorry for all the 'sticking' you've gone through.  You'll come around again and things will get better again, but i hope while your getting back to some kind of normal, i hope you'll find some peace here with others in similar situations.  Bless your heart, and  for you..

[MooseMom]

Oh geez...I can't imagine what it must be like to have been transplanted and then have to go onto dialysis.  I know this same type thing has happened to IHD members, and every time I read about it, well, it's just very sad.  I am so glad you are here with us but am also sad that you've had to come find us.  I know we can provide the kind of support you won't get anywhere else.  Is there a chance you might get another new kidney?  Are you pursuing this option?

[Rerun]

Hello Rsudock and welcome to IHD.  I'm so glad you found us and I hope you find our site interesting and helpful.

Dialysis is a life changing event so don't be too hard on yourself for not adjusting overnight.

Rerun, Moderator      

[billybags]

rsudock, first of all    reading your post you have been through an awful lot  in your young life, it is so sad that young people have to go through all this shit. The more we go to the dialysis unit the more young people we see, it is so sad. You have been really brave and really lucky to have had a kidney, which has allowed you to get your education. What kind of dialysis are you on. Is there hope that you will get another transplant, I really hope so. Keep posting, we will keep listening and help where ever we can.

[galvo]

G'day rsudock and  .

[rsudock]

Hi Friends,
 Well I am active on the transplant list right now. I have O blood so I probably will be waiting for a cadaver for awhile I assume...My sister says she would donate a kidney to me but my brother has a lot of antibodies in his blood so, there is a part of me that thinks he deserves a chance to have a life (at least a decade) without dialysis. My boyfriend also said he would do the donor exchange program so there is always hope there!   For now just stuck doing in center hemodialysis 3x a week for 3 hours and 15 mins....eeek!!

xo,
R

[monrein]

   glad you joined us and I wish you all the best on the journey to a transplant. 

[Bajanne]

Welcome to our community!  I am so glad that you found us.  Since you have lurked for a while, you know that this is the best place for information, support and encouragement.   You are now part of a wonderful family   Just keep reading and keep posting.  We need to know how you are doing.




Bajanne, Moderator