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hi I'm new here
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Topic: hi I'm new here (Read 2271 times)
knittingdan
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hi I'm new here
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on:
December 20, 2010, 11:03:27 AM »
My name is Dan and I live in Northeast Washington State. I am a 29-year old male. I was diagnosed with IgA Nephropathy in 2003, and ESRD in February 2007. I started dialysis in February 2007, and moved to nocturnal dialysis in June 2007. The local transplant center won't even talk to me until I lose 100 pounds, so for the forseeable future I continue to get my blood sucked 3 times a week.
I drive 67 miles one way from my home to the dialysis center. I've narrowly missed dozens of deer & elk, a few moose, and other various wildlife. I've hit a few deer, grazed a moose(luckily no damage to either of us), and smacked a few skunks.
I can't sleep on my nocturnal dialysis shift, so I started knitting last year to help pass the time. I mostly do hats, but recently moved on to scarves and mesh bags.
I look forward to learning more about the site and sharing our common experience of dialyis.
knittingdan
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MooseMom
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Re: hi I'm new here
«
Reply #1 on:
December 20, 2010, 11:19:31 AM »
So, what do you do with all of the stuff you knit? I wish I could knit...I really admire people who are creative and crafty.
As you will see, everyone has their own unique experience with CKD/ESRD; I know there are plenty of people who have the same underlying disease as you do. We are always happy to share and hope you will do more of the same.
Man, you have to drive a LONG way to your center! I'm confused...do you do nocturnal at home, or do you do it in-clinic three nights a week? I thought people did nocturnal most nights of the week...shows you how much I know. I have been considering at home nocturnal. Anyway, we're so glad you are here. I think you will find this site to be very helpful!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
knittingdan
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Re: hi I'm new here
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Reply #2 on:
December 20, 2010, 12:33:34 PM »
Most of the stuff I knit has gone as gifts to family and friends as gifts, but I still have a bit of a stockpile. I haven't felt comfortable selling many of my knit items as I am still pretty much a novice and the finished products are not as good as I would like.
To clarify, I do a 8-hour nocturnal run at the dialysis center 3 times a week. At home dialysis is not an option for me, and I really don't mind the drive so much...it's all that time spent away from home that bothers me.
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Poppylicious
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Re: hi I'm new here
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Reply #3 on:
December 20, 2010, 12:53:27 PM »
Dan! I tried to teach myself to knit in 2008 using a teddy bear pattern ... I'm still only on row 34! I will get there one day, maybe.
My Blokey (he's the one on dialysis) had oodles of weight to lose before they would list him for transplant, but the long hard slog was worth it on the day they decided that he was okay to go on the list. He actually produced a smile that day ...
Again, welcome!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
kristina
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Re: hi I'm new here
«
Reply #4 on:
December 20, 2010, 02:20:16 PM »
Hello, Dan,
I knit too, but only when I need something special.
When I first went into ESRF (Kidney-function now 10-12%, no dialysis yet)
I felt very cold and knitted for myself a few pairs of wool-socks
& I have noticed those socks are much warmer than any bought ones.
I am very pleased that I took the trouble to knit.
Kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
tyefly
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This will be me...... Next spring.... I earned it.
Re: hi I'm new here
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Reply #5 on:
December 20, 2010, 02:29:13 PM »
Dan WELCOME...... I live in the NW too.... you are doing nocturnal in the clinic..... good for you ..... have you thought about doing Nxstage....and maybe nocturnal at home...... I do Nxstage at home and I love it..... I would think that this would be a good fit for you and reduce the drive time.....
Good to see you
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
natnnnat
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Re: hi I'm new here
«
Reply #6 on:
December 20, 2010, 03:54:40 PM »
oooo another knitter!! Hi Dan!
Have you seen ravelry?
Ravelry is a community site, an organizational tool, and a yarn & pattern database for knitters and crocheters.
www.ravelry.com/
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient:
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.
Over the years: skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.
2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.
http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
boswife
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us and fam easter 2013
Re: hi I'm new here
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Reply #7 on:
December 20, 2010, 05:46:31 PM »
Welcome to a great place to share what ever ya wanna share :-) Glad ya found it and i wish you well... and.....I go through intence times of crocheting (gee how ya spell that?) and a bit of knitting... Love both for stress reliefe I carry a ball of yarn with me whereever i go JUST INCASE i might get board..lol
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
kellyt
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Re: hi I'm new here
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Reply #8 on:
December 20, 2010, 06:08:48 PM »
Welcome knittingdan! 67 miles is a heck of trip, but worth your life for sure. I hope dialysis helps you. I'm sure the wildlife would love for you to get a kidney and get off dialysis.
I started a nonprofit 501c3 very recently in honor of my sister-in-law, Etta, for graciously donating her kidney to me in 2008. It's called Etta's Gift. You'll see some stuff about it here, but you can also find us on Facebook. Anyway, I would LOVE to be able to work something out with you in order to sell the hats and stuff you knit while on dialysis. I could resell them at a profit for Etta's Gift. That would be fun!!! What would you charge me for them? Send me a photo!
Glad you found us!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
Rerun
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Going through life tied to a chair!
Re: hi I'm new here
«
Reply #9 on:
December 20, 2010, 08:11:14 PM »
Hi Kinittingdan! Finally someone I told about this site has joined!
I sit 2 chairs down from you. Woof woof! (personal joke)
I think you will enjoy this site. You can come here and ask questions or just vent about the rude people who sit around you at dialysis or anything you want. I know you have lots to contribute also.
Dan's hats are awesome!
See you Tuesday night.....
Rerun, Moderator
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galvo
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Re: hi I'm new here
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Reply #10 on:
December 20, 2010, 09:03:02 PM »
G'day Dan and
. I've lost 70.4 lbs over the last few years. All is possible.
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Galvo
looneytunes
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Wishin' I was Fishin'
Re: hi I'm new here
«
Reply #11 on:
December 21, 2010, 03:01:25 AM »
Hi knittingdan and glad to have you here.
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"The key to being patient is having something to do in the meantime" AU
Jean
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Re: hi I'm new here
«
Reply #12 on:
December 22, 2010, 12:29:41 AM »
Hi Knittingdan, and welcome to IHD. One of the biggest, most masculine men I ever knew did crocheting to calm his nerves. And he made some awesome shawls too. I also knit some and crochet a little bit. Glad you joined us.
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One day at a time, thats all I can do.
mm2010
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Be the person your dog thinks you are.
Re: hi I'm new here
«
Reply #13 on:
December 22, 2010, 04:07:21 AM »
Hi Dan,
Like you I am also very new here, but have found this place is a great way to pass some time and learn. We all do what we can here to help each other cope, and I think you will fit right in. Also like you, I have IgA, but I have not needed dialysis as yet. Time will tell, I'm taking all kinds of pills to try to slow the progression. When I was a kid, I used to get a hat from my aunt for my birthday, who was a very accomplished knitter. Warmest thing, and just didn't compare to the store bought hats. Drive safe, slow down, wildlife can't read all those road signs
, and Welcome from Mark in
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Mark ( aka mm2010 ) Sunderland Ontario, Canada
2009-10-26:Diagnosed with IgA nephropathy.
2010-12-10:Started high doses of Prednisone, 70mg daily.
2011-01-06:Prednisone reduced to 35 mg every other day, Myfortic 720mg daily. eGFR 40.
MOTD:A house is not a home without a dog.
Desert Dancer
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Re: hi I'm new here
«
Reply #14 on:
December 22, 2010, 06:35:28 AM »
Hi, Dan and
to IHD! What a great intro! Knitting (or crocheting) is a GREAT way to pass the time on dialysis; when I was in-center I could complete three 3-dimensional snowflakes in one session - guess what everyone's getting for Christmas this year? Have you considered donating your items? Project Linus is always happy to accept blankets, tiny hats can be donated to a local NICU, and scarves, bags, and slippers are always welcome at your local nursing home.
Oh, and watch out for those elk. Geez.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10: Began dialysis through central venous catheter
8.25.10: AV fistula created
9.28.10: Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!
Good health is just the slowest possible rate at which you can die.
The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.
The early bird may get the worm but the second mouse gets the cheese.
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