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okarol
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« on: August 24, 2010, 01:53:47 AM »

How patients can stop doctors from blaming them for their health

by WarmSocks

If doctors need to listen to patients to figure out what’s going on, patients need to tell doctors what’s going on.  Why is that so hard sometimes?  It’s hard to speak up when you feel rushed, but have doctors ever done other things that made it harder for me to talk to them?

Sometimes doctors blame the patient

Years ago I got a terrible abdominal pain.  I could only explain that it felt like the stitch you get in your side sometimes when running.  Since I hadn’t been running, and it continued for days, I finally called my family doctor.  Unfortunately, she didn’t have any openings in her schedule so one of the other docs in the practice saw me.  Another symptom – very weird, and not one I exactly wanted to announce - was that the pain got worse when I used the bathroom.

The doctor learned this only based on questions that he asked (I certainly didn’t volunteer the information), then this obnoxious person told me that perhaps it hurt because I expected it to hurt.  I didn’t say anything else; I was done talking to someone who seemed to simultaneously dismiss a fairly painful and embarrassing problem, and blame me for my symptoms.  I’d been using the bathroom just fine for 24 years; why on earth would I suddenly start thinking it would hurt?   My expectation was that I would not live in pain.  When that doctor then asked if I’d be comfortable with him doing a pelvic exam, I told him no.  Another doctor, who made time to see me, discovered a grapefruit-sized ovarian cyst.

Experiences like this color future interactions with other doctors.  Don’t say anything that might be interpreted as something for which the patient could be blamed.  When a doctor wrongly suggests,  “It’s your fault that you feel this way,” that’s a sure-fire way to guarantee that I’ll clam up.

I can only think of one other time that I was blamed for a medical situation.  Tramadol was prescribed.  In the first place, I didn’t want to mask symptoms with pain killer; I wanted to solve the problem so that the pain killer wouldn’t be needed.  However, I was desperate so agreed to take the tramadol.  The instructions I was given said take 100mg up to four times a day.  Within minutes of taking my first (and only) dose, I felt horrible: the room started spinning, my speech was slurred, and I was extremely nauseated.  Then I began vomiting.  It was so awful that I couldn’t eat anything for the next three days.

The prescriber’s response was to blame me: “It looks like you’re medication sensitive.” By that time I’d done a little research – including a long conversation with my PCP.  This was not a case of being overly sensitive to the medication.  This particular medicine had to be titrated up to that dose.

Although it would be easy to go on and on in a rant against that particular prescriber, I’ll refrain.  The point is that he blamed me.  He’d made up his mind and was stuck on a specific treatment track without being open to my input.  In response, I was no longer willing to talk to him.  Sure, I showed up for follow-up appointments, but I didn’t volunteer any information that he didn’t specifically ask for.  I was done talking to him, and hated having to see someone like him.

What’s a patient to do?

If we can’t talk to our doctors, they can’t help us.  At least not effectively.  Like a harmful cancer, silence between doctor and patient needs to be eradicated.

In the spirit of not pointing the finger at others, the most obvious solution to the blame game is to avoid being at fault.  For instance, if I don’t want to be blamed for being non-compliant, then I shouldn’t be non-compliant.

Sometimes faultlessness isn’t sufficient.  As my two examples show, sometimes the patient gets blamed anyway.  I think there are two possible solutions when this happens.  The first is to address it directly.  Without being overly confrontational, it’s possible to say that it seems like you’re being blamed for something unjustly and would like to know why and if there’s any way to fix the problem.  It might be a simple misunderstanding; you’ll come out of it with a better relationship with your doctor, knowing that you can speak up and will be heard.  The other option is to find a different doctor who won’t place blame when it’s undeserved.  I’m not a big fan of doctor-shopping, but on rare occasions it might be needed.

There is one other situation, though.  Sometimes we might be blamed for problems in our health because we are to blame.  What a concept!  Personal responsibility.  Instead of getting offended and refusing to talk to the doctor, hard as it might be, wouldn’t it be better in the long run to admit it when we screw up and ask for help fixing the problem?

    * Do your best to not be at fault
    * If you are at fault, admit it and move forward
    * If you’re unjustly blamed, address it

Let’s respectfully speak up instead of letting blame create even more silence.

http://www.kevinmd.com/blog/2010/08/patients-stop-doctors-blaming-health.html
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mogee
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« Reply #1 on: August 24, 2010, 02:15:12 AM »

When therapy failed: Patient did not respond.  When therapy worked: Treatment was successful.
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PKD and IgA Glomerularnephritis
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Des
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« Reply #2 on: August 24, 2010, 02:41:45 AM »

I had the exact problem last night with my neph!!!!
History : He was very upset that I opted to have my left (very large, painfull, stone filled, infected) kidney removed.

So whatever complain I have he brings this point up. (happens everytime not just this time)

Last night I happen to mention that my right kidney is a bit sore. His reply(rudely): I am not removing that one!
I was suspecting an infection. I did not say anything about it being removed!!!
The $%#^@*& stupid doc.
Now I will NEVER EVER EVER again raise ANY complain about ANYTHING to him EVER!
Luckily the other neph that visits me on Wed's are nice and I will wait to talk to him.
     
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
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texasstyle
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« Reply #3 on: February 14, 2011, 09:45:30 AM »

Oh gee, my husband blames the Dr.s for just about everything. He was told to do D 3x a week instead of 2 for a year. he didn't until a crisis came up. "they just want the money". Then in the hosp. critical unit he stopped urinating. "they did something to me in that hosp" lol. You must tell your Dr. everything because they're not mind readers. Sometimes even what you think is the smallest thing, can be a factor of a diagnoses.
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caregiver to husband using in-center dialysis 4 years
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« Reply #4 on: February 14, 2011, 07:27:01 PM »

Des, that is absolutely awful!  I find it amazing that your Neph becomes so utterly hostile simply because you exercised freedom of choice, and took what sounds like a completely rational decision!  Am glad you are seeking an alternative opinion - more power to you; they guy is after all a Service Provider....  Good luck.
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