It's hurtful

[texasstyle]

Gee, sometimes it feels so hurtful when my friends don't get just how much it takes to take care of a person with kidney failuire (and heart comlplications) My family understands but my friends don't. It's a lot of freakin' work! Whew, just had to vent that. I know you guys totally undertand what I mean. A good vent for me, them tomorrow is always a brand new day. Always optimistic, the sun wiill rise, and things may be better. Each day different but the "bad" ones, sure do get you down. Thanks family!

[monrein]

 

[Dianejt]

Sometimes it's hard to understand something that they have not experienced. 

[paris]

There is no way to fully explain how hard this disease is on everyone.   Vent away!  You know we understand     

[Jean]

 

[galvo]

Yeah! I'm on my own and I take a bloody long time to get myself organised.

[looneytunes]

Tex, a good vent never hurts!  A suggestion for the friends....have one come to "job shadow" you for a day.  I did this with one very close friend who seemed hurt that I no longer had the free time to do the things we used to do.  I invited her to come spend a day with me with the warning up front that I couldn't get too far from the house that day.  She did and what an eye-opener it was for her.  It happened to be a day that we had a supply delivery come (with a small mix-up that I had to straiten out with the driver), pick up meds from the local pharmacy, return a call to our home care support nurse, figure out the logistics of a trip we needed to make and then do the set up for hubby to dialyze, monitor his tx for 4 hours and then unhook him.  Fixed a meal for us while he was running and she cleaned up the kitchen. 

After that visit, she has offered to help in any way she can and she has become a rock of support for me. 

Hugs to you!   

[Poppylicious]

The thing is, it isn't just a lot of 'freakin' work' is it?  It's emotionally draining as well, and that adds to the exhaustion.  It is difficult to understand that if you've never experienced the whole package.  I love Looney's idea.

*hugs*

[texasstyle]

I knew everyone would understand that's why I feel so comfortable here. that job shadow thing sounds pretty good but like poppy said, it's the emotional draining and I think you need to experience that day after day, week after week, month after month, and i don't think my friend would hang around that long lol. This is what we do and this is the lives we live, but once in a while it's gets to be a bit much. I'm usually a good mood kinda person but I'm aloud to get cranky sometimes right? lol Again, it's just great to know that SOMEONE else knows what I go through.

[Dianejt]

Sometimes it is hard to go through what we do. What I am grateful for is that I am able to take care of people that I love. And those around us take care of us. That includes this wonderful family IHD.

[RichardMEL]

Well TS just so you know I have it all planned. Continental are going to fly between Auckland and Houston from November next year. I'm going to be booked on one of those flights to arrive in Texas just as soon as I can to come give you some aussie style HUGS!!!!

 

[texasstyle]

awww Richard. Thanks! I like when men wear cologne by the way lol. How was your weekend?

[RichardMEL]

I wear Amani. Is that acceptable? 

weekend fine (well no, cold and rainy actually!) but yeah can't complain too much (just don't mention football to me  ).

 

[Bruno]

I've tried to keep my beloved out of it but I've finished my training and start at home this week. I know what is happening to me will be difficult for her and my solution has been to try and do it all myself. I hope that if I leave her to make her own pace, she will get used to it (as I have) and come to accept it but the big machine, the bloodlines, the needles...I hope the strength to adjust comes to her.
51 years and she is my rock so I'm hoping.

[Joe Paul]

On the flip side is the one you take care of. Speaking as a receiver of care during my illness, I know how hard it is for a loved one to give up life as they knew it, and dedicate themselves to giving me the care I need. How do you thank an angel like that? Whats more, the child who gave me his kidney is my angel now too. All i can say to all you care takers out there is Thank you very much