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Elly50
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« on: October 23, 2010, 09:59:24 AM »
Hi I have been on dialysis before in 2006, had a transplant in the Dec of 07 and it is now failing.  About to go for Fistula op on Friday. Feeling really low about it all as know what to expect.  Not able to relate to other people who moan about life and do not realise how lucky they are ! Glad this site is here and is there anyone from UK ? Forgot to say that I did have FSGS but now I have been told I have igA ?? does anyone have this ?
« Last Edit: October 23, 2010, 10:07:51 AM by Elly50 » Logged
RichardMEL
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« Reply #1 on: October 23, 2010, 05:51:15 PM »
Hi Elly & Welcome!!! I'm so sorry your transplant failed so soon :(

I think we can all relate to healthy people moaning when they have no real perspective as we do suffering such a disease. What can you do? I still don't wish it on those people. Perspective would be nice, but well in a way it's good to know that they're healthy at least. I wouldn't wish this on anyone.

We have lots of members here from the UK! They will welcome you with open arms and a curry !!  :rofl;

 :welcomesign;

RichardMEL, Moderator
« Last Edit: October 24, 2010, 07:31:04 PM by RichardMEL » Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kellyt
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« Reply #2 on: October 23, 2010, 06:26:38 PM »
Welcome.  I had IgA nephropathy.  I'm guessing that is what is causing you to lose your new kidney?  I've heard of transplanted kidneys contracting IgA.  I asked my neph what the odds were that my new kidney would also get IgA and he said the odds were slim, but it does happen.

So glad you found us.  I look forward to hearing more from you.  I hope you can get a new kidney very soon!!!   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
galvo
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« Reply #3 on: October 23, 2010, 07:02:34 PM »
G'day Elly and  :welcomesign;.
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Galvo
Rerun
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Going through life tied to a chair!
« Reply #4 on: October 24, 2010, 06:55:15 AM »
Hi Elly, and it really sucks that your transplant is failing.  Mine did too but only after 17 years of the good life.  I always said I'm not scared of the UNKNOWN.....   I'm scared of the KNOWN!   But, you will get back into the routine as much as that sucks.  It is just hard to give up the good life.

Come her often to vent!

Rerun, Moderator           :welcomesign;
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Elly50
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« Reply #5 on: October 25, 2010, 03:49:53 AM »
Hi all and thank you for all your replies it is good to know you are there  :)  I am not sure how to reply to each individually so will do a block one to all !
Firstly Yes I am also scared of the known !  It was bad enough waiting for the first six years for the kidneys to fail and not knowing but yes it is  a nightmare that has returned all over again.  Also I am not too confident that I would be able to have another transplant as having problems getting my consultant to agree to me going back on the list.  I understand that it needs to be done at the right time, though I have met two people who had a transplant without ever going on to dialysis.

Re my vent about the well people - I too am as bad. When I was on dialysis I used to say that I would never moan again about being in Que in the bank, supermarket , but all too soon after my transplant I was back to my old ways and forgeting how lucky I was :)
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peleroja
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I have 16 hats, all the same style!
« Reply #6 on: October 25, 2010, 12:25:08 PM »
Welcome to the group, Elly50.  Lots of good information and friends here.  Glad you joined!
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Poppylicious
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« Reply #7 on: October 26, 2010, 01:57:42 AM »
 :welcomesign;

I am in the UK (England).  My Blokey (husband) is the unfortunate soul on dialysis.  Where in the UK are you?
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Elly50
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« Reply #8 on: October 26, 2010, 02:00:30 AM »
Hi I am in Berkshire and go to the Royal Berks - that was not the bad dialysis place by the way :) 

How long has your husband been on D for ?
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Jean
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« Reply #9 on: October 26, 2010, 04:17:10 PM »
Hi Elly, and  :welcomesign; to IHD. Glad you joined us.
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One day at a time, thats all I can do.
ChickenLittle56
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Chickenlittle and Maria
« Reply #10 on: October 26, 2010, 06:08:39 PM »
Welcome to IHD Elly, I hope your stay is both long and enjoyable. :flower;
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: October 26, 2010, 08:15:25 PM »
Welcome to our community, Elly!  And a special welcome from one born under the Union Jack (born in Barbados, now living in the British Virgin Islands).  So sorry to hear that your transplant is failing.  Hope that everything goes well for you.  This is a great place to be for information, support and encouragement.  We are really a genuine family here  :grouphug; - caring and sharing.  So just keep reading and keep posting.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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