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Author Topic: USA: Wait List Activity and Transplant Outcomes: View data for your hospital  (Read 13272 times)
okarol
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« on: September 02, 2010, 10:14:38 PM »
Wait List Activity and Transplant Outcomes: View data for your hospital

To see specific reports with statistics about organ donation and recovery, waitlist activity such as transplant rate, and post-transplant outcomes such as graft and patient survival, go to the link below and select your state. These reports are published every six months with revised data about each Organ Procurement Organization and Transplant Program operating in the United States.
Scientific Registry of Transplant Recipients
http://www.srtr.org/
« Last Edit: September 25, 2012, 11:07:42 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sunny
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Sunny
« Reply #1 on: September 03, 2010, 01:53:14 PM »
Thanks for the information.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Kelli
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« Reply #2 on: September 25, 2012, 08:26:38 PM »
FYI: I tried this link and it directed me to here: http://www.srtr.org/ for the info. It says they're no longer the contractor for that information any longer.
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okarol
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« Reply #3 on: September 25, 2012, 11:07:01 PM »
Yes thanks, I will change it. :2thumbsup;
okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Restorer
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« Reply #4 on: March 29, 2013, 02:39:45 PM »
The old site calculated projected waiting times for each hospital, up to 12 years for UCLA. The current data only shows the waiting times of percentiles of patients up to 72 months (anything longer is ">72 months"), which is kind of useless for the transplant centers I'm listed at. Any idea where I can find up-to-date estimates of average longer waiting times?
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
okarol
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« Reply #5 on: April 04, 2013, 10:31:32 PM »
Not sure you can get any numbers beyond five years on the OPTN site - but you can try - go to http://optn.transplant.hrsa.gov/ then click on DATA, then select "View Data Reports" from the pull down menu.
Choose "Center Data" -
Step 1 : click on your state
Step 2 :   Choose Center :   
Choose Category : Candidates - A patient who is waiting at more than one center, or for multiple organs, would be counted as only one candidate.
       
Step 3 : Choose a Report below that is closest to your data needs: Organ by Waiting Time

I hope that helps??
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mykey711
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mykey
« Reply #6 on: August 03, 2013, 07:32:18 PM »
My surgery is in 4 days. Wish me luck.
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I'm a 58 year old Family doctor with Alport's syndrome. I've been on PD for almost a year. I've been on transplant list since May 2010 at three centers, Michigan, Cleveland, and Indiana.  My brother has the same disease and is on his second transplant for about 12 years now.
natnnnat
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« Reply #7 on: August 03, 2013, 09:35:17 PM »
Good luck MyKey, I can't wait to hear about how you are recovering.  Start a new thread in the Transplant section, for us to cheer you on and to post your updates!  :cheer:
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
okarol
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« Reply #8 on: August 23, 2013, 09:57:17 PM »
Quote from: mykey711 on August 03, 2013, 07:32:18 PM
My surgery is in 4 days. Wish me luck.

How are you doing?  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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