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Author Topic: Tougher stuff than me  (Read 3882 times)
ClarkWard
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« on: October 04, 2010, 04:31:47 AM »
I have a friend that is on dialysis and he suggested this site to learn more. From what I have read so far, I hear these same kinds of things from him and hope I can be better informed company! You all are made of tough stuff!
 :thumbup;
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:)
RichardMEL
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« Reply #1 on: October 04, 2010, 05:57:01 AM »
lol that's what the nurses tell me when they stick me. I have tough skin!!  :rofl;

Welcome!!! I hope you can learn more to help your friend!!!

 :welcomesign;

RichardMEL, Moderator - not reallly tough though
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
billybags
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« Reply #2 on: October 04, 2010, 06:11:57 AM »
Welcome to the site.
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carol1987
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« Reply #3 on: October 04, 2010, 08:36:41 AM »
Welcome ClarkWard!! :welcomesign;

Richard.. ouch!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Poppylicious
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WWW
« Reply #4 on: October 04, 2010, 08:51:55 AM »
Hi and  :welcomesign;

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
peleroja
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I have 16 hats, all the same style!
« Reply #5 on: October 04, 2010, 09:49:53 AM »
Welcome to the group.  How nice of you to want to be better informed about a friend.  Lots of good information here.  Glad you joined.
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Rerun
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Going through life tied to a chair!
« Reply #6 on: October 04, 2010, 09:54:24 AM »
WOW Clark, what a great friend you are to actually "look" at this site so you know more of what your friend goes through.  Are you thinking about donating a kidney?  No pressure, just asking.

Thanks for joining and learning.  Bless you!

Rerun, Moderator   :welcomesign;
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MooseMom
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« Reply #7 on: October 04, 2010, 10:02:05 AM »
We're no tougher than you.  We're just more unfortunate.  If you faced ESRD, you'd do exactly what we're having to do. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kellyt
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« Reply #8 on: October 04, 2010, 12:46:40 PM »
Welcome!!!   :waving;  What a great friend you are!!!!   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Zach
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"Still crazy after all these years."
« Reply #9 on: October 04, 2010, 01:25:02 PM »
It's good to have you here!
 :beer1;

PS: Is your friend a member of this site, too?

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
ClarkWard
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« Reply #10 on: October 04, 2010, 01:50:45 PM »
Thanks for the welcomes. No, my friend is not a member, he's not a big computer person. And, no, sorry, kidney donation isn't on my agenda.

I've two friends, married, where he donated a kidney to her and it worked. That was pretty astounding. She's diabetic, and doing well. I also have a friend who took Valium for years and got a kidney from a deceased organ doner. He is much better, too.

If only there was an easier way than dialysis.
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:)
ChickenLittle56
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Chickenlittle and Maria
« Reply #11 on: October 04, 2010, 02:50:51 PM »
Welcome Clark, you are a special kind of friend indeed.   :2thumbsup; :2thumbsup;
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
monrein
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Might as well smile
« Reply #12 on: October 04, 2010, 04:08:44 PM »
 :welcomesign; to IHD.   
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #13 on: October 04, 2010, 04:21:01 PM »
Quote from: ClarkWard on October 04, 2010, 01:50:45 PM

If only there was an easier way than dialysis.
Well, for many people, getting a new kidney via a live or cadaveric donor is easier than dialysis.  When you think about it, if your spouse or your child is the one with ESRD, your life is impacted also in ways you can't begin to imagine.  If you are able and willing to give your spouse or your child a kidney, your life becomes much easier, too.  Dialysis affects everyone in the family.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #14 on: October 04, 2010, 05:34:36 PM »
G'day, Clark and  :welcomesign;.
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Galvo
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« Reply #15 on: October 05, 2010, 12:10:50 AM »
 :welcomesign;
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One day at a time, thats all I can do.
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