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Author Topic: Greetings from NJ  (Read 2261 times)
carol1987
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« on: August 27, 2010, 08:59:18 AM »

Hello!
I have been lurking on your site for a little bit and am just about to begin Dialysis.

I am a Polycystic Kidney Disease Patient who was diagnosed 9 years ago ,2 months after having my 3rd child.
There is no known family history of PKD in my background.  My fistula was placed a year ago on April Fools Day and I have been on the transplant wait list for over a year.  Family and friends have been tested but none are able to donate. 
My GFR is 6 and my Neph has been monitoring me closely and we have been delaying the start of Dialysis because I have been feeling pretty good.  Next Tuesday I will  be visiting the Dialysis clinic  and will be discussing scheduling.
So of course my emotions right now range from fear of the procedure /lifestyle changes  to thankfulness that dialysis is even an option!!
This page has already been such a great help in preparing me and I look forward to being an active member here!!

Carol in NJ :waving;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Red from Canada
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« Reply #1 on: August 27, 2010, 09:12:26 AM »

Welcome Carol!  If you've been "lurking" for a while, you may have read of your options.  With three children to look after, you may want to consider PD.  Especially the night cycler, which will leave you free during the dayhttp://ihatedialysis.com/forum/Smileys/classic/welcomesign.gif
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carol1987
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« Reply #2 on: August 27, 2010, 09:25:15 AM »

Hi Red!
Thank you... yes reading here and some other sites has been very helpful!
I do read a lot about the home options...  right now I am going to begin at a center with hemo.  My concerns about home care are that I do not have much space, i think I want to keep the medical things separate from home and I also have 2 cats and am concerned about infection.  Of course I may change my mind after experiencing dialysis at a center.   I met a very nice nurse at the hospital who is on PD and she had started at a HD center and then switched to PD at home... so I will certainly remain open to options .
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
cookie2008
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« Reply #3 on: August 27, 2010, 11:55:27 AM »

Hi Carol,  Welcome to IHD, I also have PKD and live in northern NJ.
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
texasstyle
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« Reply #4 on: August 27, 2010, 01:08:13 PM »

You have come to a great place!  I imagine you're so filled with so many emotions right now. Here is a great place to meet people in your situation, learn abou the dialysis process, and get support and encourgment. It is a life style "change", but don't let it "change" your life! There will  still be pleanty you can do. - Carolyn (born and raised in Mercer County lol)
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caregiver to husband using in-center dialysis 4 years
Jean
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« Reply #5 on: August 27, 2010, 10:25:05 PM »

Hi and  :welcomesign; to IHD. Glad you found us.
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One day at a time, thats all I can do.
Rerun
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Going through life tied to a chair!

« Reply #6 on: August 27, 2010, 10:59:06 PM »

Hi Carol and welcome to IHD.  I'm so glad you joined us.  It sounds like your mind is in a good place with this new change.  Come here with any questions or concerns.  You will do fine.

Rerun, Moderator         :welcomesign;
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cloud393
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« Reply #7 on: August 28, 2010, 05:44:39 PM »

Hello from another PKD member.  I was diadnosed 20 years ago and have been on dialysis for 1 1/2 years.  I started on PD then went to in center hemo and am now doing home hemo with NxStage.  If you have any questions, just ask.
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May you live as long as you want and never want as long as you live.
looneytunes
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Wishin' I was Fishin'

« Reply #8 on: August 29, 2010, 07:00:14 AM »

Hi Carol and welcome to the IHD gang1   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
kellyt
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« Reply #9 on: August 29, 2010, 11:30:58 AM »

Hi Carol!  :waving;  And Welcome to the best support site out there.  :D  I look forward to hearing more about you.  Good luck with dialysis.  I was going to do nocturnal hemo.  My Neph. felt that would have been best for me.  I don't have children, though. 
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
galvo
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« Reply #10 on: August 29, 2010, 07:19:25 PM »

G'day Carol and  :welcomesign;.
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Galvo
carol1987
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« Reply #11 on: August 30, 2010, 07:29:42 AM »

Thank you all for the welcome!!!   
I tour my clinic tomorrow ...  I was away this weekend and that is the thing most troublesome to me right now...  thinking about the scheduling and planning.....
but i was talking to my family and friends about how wonderful this site and others are...how nice it is to be able to prepare as much as possible by reading other peoples stories!!   
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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