I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 24, 2024, 04:26:36 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  Hello from California
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Hello from California  (Read 2750 times)
Jimmyboze
Newbie
*
Offline Offline

Gender: Female
Posts: 3

« on: August 31, 2010, 03:03:03 PM »

Hi,

I have perused through this website many times but have been afraid to admit that I need support from other dialysis members.  My name is Sandy and I have been a type one diabetic since age 11. I am getting ready to celebrate my 50th birthday in November.  I have virtually been unscathed in diabetic complications, until the last couple of years.  When I discovered I was in renal failure, it was a complete surprise.  I have always tried to take very good care of myself.  I exercise 3-5 days a week, try to eat the right things, worked full time as an Operating Room nurse, have 2 active kids and a husband for over 27 years.  I don't have time to get sick.  I resisted starting dialysis until my GFR dropped to 8.  I wanted to be placed on the UNOS list for transplant, but needed to have a cardiac angiogram first.  They would not do the angiogram until I was on dialysis.  My GFR dropped to 6 after the procedure.

Everyone said I would start feeling better once I started CAPD.  I finally relinquished in April of 2010 and began treatments.  I was doing them manually every 6-8 hours, but found I was reabsorbing much of the fluid.  My neph told me to do the exchanges more often, which tied me to my house every 2-3 hours.  Then I switched to the night cycler.  What a difference that makes
Logged
carol1987
Full Member
***
Offline Offline

Gender: Female
Posts: 397


« Reply #1 on: August 31, 2010, 05:40:26 PM »

Hi I am pretty new here myself  :welcomesign;

My GRF is 6 and I will be starting HD in 2 weeks... I can relate to your feelings about being tied down or limited...

 so much good information and support here!!!

Sounds like you did a fantastic job of keeping your renal function for so long!!!
Logged

Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
jbrock
Jr. Member
**
Offline Offline

Gender: Female
Posts: 60


« Reply #2 on: August 31, 2010, 08:22:50 PM »

 :welcomesign;

 :flower;
Logged

Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114


« Reply #3 on: August 31, 2010, 10:51:31 PM »

Hi and   :welcomesign; to IHD, What part of Ca are you in? I am in Riverside, about 60 miles inland from LA.
Logged

One day at a time, thats all I can do.
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252


« Reply #4 on: September 01, 2010, 04:32:59 AM »

G'day and  :welcomesign;.
Logged

Galvo
Dianejt
Full Member
***
Offline Offline

Gender: Female
Posts: 413


« Reply #5 on: September 01, 2010, 06:07:48 AM »

 :welcomesign; :welcomesign;
Logged

caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Bajanne
Member for Life
******
Offline Offline

Gender: Female
Posts: 5337


Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #6 on: September 01, 2010, 06:27:22 AM »

Welcome to our community!  i am glad that you finally gave in and joined us.  It is great that you found a modality that suits you. 
This is a tremendous place for information and support.  You will soon find that out.  This is more than a website - it is a genuine family :grouphug; caring and sharing.   And we have lots of members from California.
Please take advantage of all this site has to offer.  Keep reading and please keep posting.  Let us know how you are doing.





Bajanne, Moderator




Logged

"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!

« Reply #7 on: September 01, 2010, 10:19:22 AM »

Hi Sandy and welcome to IHD.  I'm so glad you found us.  This site is full of information and tips.  I'm glad you found that the cycler is a better form of dialysis for you.  Hang in there girl.  I'll be 50 next July.   ;D  I hope!    :o

Rerun, Moderator        :welcomesign;
Logged

ChickenLittle56
Sr. Member
****
Offline Offline

Gender: Male
Posts: 637


Chickenlittle and Maria

« Reply #8 on: September 01, 2010, 10:37:52 AM »

Welcome to our community Sandy. I hope you much information here. :bandance; :bandance;
Logged

As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325


« Reply #9 on: September 04, 2010, 12:09:30 AM »

Hi,

I have perused through this website many times but have been afraid to admit that I need support from other dialysis members.

We are very nice people and not at all scary.  I'm glad that you've come out from behind the shadows and have allowed us the opportunity to give you our incredibly vast wealth of information and truly sage advice.  At the very least, you will be able to see that we know exactly how you are feeling and why.  You will quickly discover that new people will join IHD and that you will be the one giving them advice and support.  When they post that they have been afraid to admit needing support, you'll be able to in all honesty that you know how they feel; that will do them the world of good.

That's what communities do.

Welcome!
Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252


« Reply #10 on: September 04, 2010, 12:11:46 AM »

Beware of Stoday. He's scary!!!
Logged

Galvo
peleroja
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1585


I have 16 hats, all the same style!

« Reply #11 on: September 04, 2010, 08:32:04 AM »

Hi, Sandy, and welcome.  I see you're in the Inland Empire.  If you ever feel like taking a ride on the third Saturday of the month, Kidney Beings Renal Support Group will happily welcome you.  We meet from 2 to 4 at Kaiser Bellflower, 9400 Rosecrans.  It's just like IHD, but with real people.  Hope to see you at one of our meetings.
Logged
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!